Staci Cushenberry—Aging out of NYA

Help 4 HD Live!

I’m Staci Cushenbery, formally Nicholas and am 34 years old. My husband and I live in Harper, KS with our 4 kiddos and several dogs. Together we own a trucking business in the oil field and I also am a LuLaRoe retailer. On top of my super busy life I try to advocate for HD as often as anyone will let me. My first experience with HD was when my mom tested positive. From there on I’ve wanted to be as active as possible despite having no local resources. I was one of the founding members of the NYA where I served on the board for many years and headed the Silent Auction. My very first experience with the HD convention was a support group, from there my love for helping others was created. I have a degree in Psychology and a Masters in Social Work. Facilitating groups, helping children, and HD families is my passion. Most recently, I’ve joined up with others who have reached the age of 30+ and felt lost without the support they’d known to grow and love. We came up with the HDYAC, where my role will be limited but definitely be support based for others and I’m super excited where this next adventure with my HD family will take me! Lastly, I’ve participated in research for over a decade and truly believe that we will be the last generation to live with HD.