Sure, it’s good to be flexible in life, but all things have their limits! If you’ve ever lived with a connective tissue disorder, you know all too well how often joint conditions like Ehlers-Danlos Syndrome (EDS) can go unrecognized by doctors and result in life-altering symptoms from pain and fatigue to gastrointestinal issues and insomnia. Whether you’re living with a hypermobility condition, treating one, or know someone living with their own – the greatest secret weapon you can use to ma ...
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Join on us on our individual journeys living, coping, and laughing at our lives with Ehlers Danlos Syndrome or EDS. We intend to raise awareness about invisible Illnesses, commiserate with fellow chronic disease friends, and share our own coping strategies and advice we have accumulated on our respective journeys
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Hypermobility Happy Hour is the first podcast exclusively dedicated to discussing hypermobility conditions including hypermobile Ehlers-Danlos Syndrome. Guests on the Hypermobility Happy Hour have included world renowned physicians, patient advocates, researchers, and individuals living with hypermobility. Listen in as we examine a wide range of topics, including treatment options for hypermobility disorders and ways to improve the doctor-patient relationship. The information provided on thi ...
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Sharing positive stories of recovery after a herniated disc or other spinal cord injury. Join herniated disc champion CK as she has informative and encouraging conversations with other back injury survivors. From people who elected to have back surgery (microdiscectomy, laminectomy, fusion, etc) to those who used more conservative methods, plus all things in between, join our podcast, and let's talk about how life can move beyond the bed after injury. If you are dealing with the isolation an ...
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The Chronically Courageous, where chronic illness warriors come to feel empowered and uplifted. Listen each week to be inspired by others who have found happiness and peace, despite the physical and emotional tolls of chronic illness. Together, we navigate this complex journey and move forward with courage, passion, and purpose! Hosted on Acast. See acast.com/privacy for more information.
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This is the Uncaged Clinician Podcast. Our goal is simple: to help you become an Uncaged Clinician. What does that mean? That means being free from corporate healthcare and having the freedom to practice as you always envisioned. If that is your goal, this podcast will be your guide to get there.
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An interactive podcast to help entrepreneurs grow their businesses by unleashing their natural resilience. Since I’ll be broadcasting these episodes live using the BLAB network. Viewers will be able to post questions during the show. This is a very exciting venture and I hope that you’ll join us. Brian R. King, LCSW is a 27 yr cancer survivor, adult with ADHD & Dyslexia as well as the father of three sons with Asperger's and ADHD. In addition, Brian suffers from Ehlers-Danlos Syndrome Type 3 ...
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Welcome to Finding Your Range, the Podcast which uncovers the truth behind living with hypermobility, Ehlers-Danlos Syndrome and chronic pain. Your host is Jeannie Di Bon, a movement therapist who specialises in working with clients with these conditions. She is also the author of two books - Pilates Without Tears and Hypermobility Without Tears. She is an educator of teachers and therapists in the field of movement for hypermobile patients and speaks regularly for The EDS Society and the HM ...
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The Spoonie Struggle is about the raw, honest look at living life with chronic illnesses and chronic pain conditions. Spoonies of all types are welcome to join us, but we will have a heavier focus on the lesser common, lesser understood, and difficult to diagnose conditions, such as Ehlers Danlos, Marfan’s, Ankylosing spondylitis, Sjogren’s syndrome, lupus, multiple sclerosis, sickle cell anemia, and endometriosis. In this show, we will discuss our own experiences of each aspect of life with ...
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PodcastDX is an interview based weekly series. Guests share experience based medical insight for our global audience. We have found that many people are looking for a platform, a way to share their voice and the story that their health journey has created. Each one is unique since even with the same diagnosis, symptoms and the way each person will react to a diagnosis, is different. Sharing what they have experienced and overcome is a powerful way our guests can teach others with similar ail ...
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Join Zarrin as she speaks to invited guests, experts and filmmakers about their health journeys.
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Sensory Matters is a weekly podcast featuring expert interviews from the world of Sensory Seeking, Stimming & Autism. Supporting the World‘s Number 1 community of Sensory Seekers at sensooli.com this show is all about helping sensory seekers, avoiders carers and professionals with useful, interesting and inspiring stories. Find out more at, sensooli.com
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Genetics isn’t always black and white. And the emotions and decisions surrounding genetic testing can be even more complex. Hosted by genetic counselor Eleanor Griffith, the show brings you the personal experiences of patients and genetic counselors.
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Me and little Bear talk about all different sorts of disabilities and the challenges that come with. Sometimes we have a random friend join our podcast and talk with us. After (almost) every intro we do Guess That Symptom which is a game you guys can play along with. To send us a voice message please use this link https://anchor.fm/rachel-runnalls/message to find my Facebook page go to https://www.facebook.com/atypicalperson.podcast/
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Welcome to the Rights Upfront Podcast, where every story finds a voice. Join us as we delve into the world of disability rights and inclusion, amplifying diverse voices and advocating for change. From personal experiences to expert insights, each episode explores the challenges, triumphs, and ongoing efforts to promote equality and accessibility for all. Whether you're passionate about disability rights or simply curious to learn more, tune in to be inspired, informed, and empowered. Join th ...
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Welcome to the Rx Physiotherapy Podcast – your ultimate destination for expert insights on physio, rehab, health, and wellness. Join hosts April Patterson and Brendan Casey, seasoned physiotherapists as they dive deep into captivating topics each week, covering everything from physiotherapy essentials to nutritional secrets. Dr. April Patterson, founder of RX Physiotherapy, holds a Doctor of Physiotherapy degree from Bond University. Her personal experiences with conditions like Ehlers-Danlo ...
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Living with a chronic illness can be an incredibly isolating experience. It can feel as though you're navigating life -- your illness itself, your experience with the medical system, communicating with your job and with loved ones -- completely by yourself. In this podcast, Katie, a coach who works with people living with chronic illness and who lives with a chronic illness herself, talks to people about their illnesses & conditions, their experiences, and their lives. The purpose is to shar ...
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A podcast that features interviews with inspirational guests who: - Have overcome adversity and turned their challenges into triumphs AND/OR - Are making a positive difference in the world Once a fortnight, you will hear the inspiring story of a guest who has experienced a challenging time in their life. As a result of these challenges, these guests have chosen to learn, grow and better themselves. Their stories showcase resilience, strength and the ability to thrive following adversity. Wit ...
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Dear Friends & Family is a show about living a full life with chronic illness with your hosts Patty & Lex. Patty lives with Fibromyalgia & Lex lives with Small Fiber Neuropathy. Together they explore the topics of life, love, and happiness with other people living a life involving illness. This show is to remind anyone dealing with illness in their day to day lives, whether they are the caretaker or the person with illness, that they are not alone. It's a serious topic with an upbeat feel. P ...
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Navigating the Complexities of Ehlers-Danlos Syndrome with Jen Bambrough
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What are the common misconceptions about Ehlers-Danlos Syndrome that lead to misdiagnosis? How can physical therapy be tailored to effectively manage Ehlers-Danlos Syndrome, considering its complexity? Welcome to the Uncaged Clinician Podcast! I'm your host David Bayliff is joined by Jen Bambrough, a physical therapist from Chattanooga, Tennessee, …
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Each week, join Dr. Linda Bluestein (AKA The Hypermobility MD) on her quest to demystify the wide world of symptomatic joint hypermobility. Get ready to better understand your own bendy body in our newest season – available now! Learn more about your ad choices. Visit megaphone.fm/adchoicesBy Dr. Linda Bluestein, MD
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Overcoming Pain in EDS: Building Stronger Bodies with Wealth Founders Katie & Andrew Dettelbach
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, chats with Katie and Andrew Dettelbach, founders of Whealth, a program dedicated to helping people with hypermobility and chronic pain. Both Katie and Andrew have hypermobile Ehlers-Danlos Syndrome (hEDS) and have turned their personal struggles into a platform …
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What if your next patient evaluation felt more like a first date than a clinical assessment? In this FANTAWESOME episode of the Uncaged Clinician Podcast, I’m your host David Bayliff, and today we’re exploring a game-changing approach to patient evaluations. Our guest, Santiago “Santi'' Villamil is a Physical Therapist, ANF Therapy Holistic Practit…
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This week we will discuss Sturge-Weber syndrome with a wonderful woman we had the pleasure of meeting previously in Season 8 E 20. Chelsey Peat was born with Sturge-Weber syndrome, a rare condition that led to multiple surgeries, including a life-saving brain surgery as an infant. Despite doctors predicting significant limitations, Chelsey has defi…
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Grief, Healing, and Mental Health Strategies for Chronic Illness with Natasha Trujillo, PhD
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In this insightful episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with Dr. Natasha Trujillo, a licensed sports psychologist specializing in grief, loss, and chronic illness. Dr. Trujillo and Dr. Bluestien both work with the Colorado Ballet. Dr. Trujillo discusses the complex emotional landscape of grieving when faced with chronic p…
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Paris Scobie is a Mental Health Speaker, Host of the top 1% globally ranked podcast, Live Well Bipolar, & Best-Selling Author of her memoir, Crooked Illness: Lessons From Inside & Outside Hospital Walls. Paris launched Live Well Bipolar to use her lived experience to help others overcome the shame, fear and isolation that can so often accompany liv…
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Send us a text Have you ever felt trapped in a body that seemed to betray you, leaving you in constant pain and emotional turmoil? Join me, CK, as I share people's battle with herniated disc and other injuries that turned their world upside down. Discover how they navigated through the maze of fear, depression, PTSD, and the daunting decision of wh…
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Group Rehabilitation for POTS with Emily Rich, OT
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down with Emily Rich, an occupational therapist specializing in POTS (Postural orthostatic tachycardia syndrome), Ehlers-Danlos syndromes, and other chronic conditions. Emily, who is also a patient with hypermobile EDS and POTS, shares her insights on how o…
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The Art of Slowing Down | Making Informed Decisions
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Have you ever felt rushed into a decision only to regret it later? In this FANTAWESOME episode of the Uncaged Clinician Podcast, I’m your host David Bayliff with co-host Kevin DeGroot. Today, we're tackling key success factors: patience, making informed choices, and mastering communication skills. In this episode, Kevin and I discuss the importance…
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Today, we have the honor of speaking once again with Sheila Ames, a registered nurse in Northern California who has been diagnosed with a rare type of a primary immunodeficiency known as common variable immunodeficiency or CVID for short. How did she fare during the recent Pandemic? Tune in now to find out! At the time of her diagnosis she was work…
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Understanding the Brain's Role in Chronic Pain with Kaitlin Touza, PhD
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, engages in an enlightening conversation with Dr. Kaitlin Touza, a renowned pain psychologist. Dr. Touza delves into the complexities of chronic pain, explaining how the nervous system, brain processes, and psychological factors contribute to pain experiences. Sh…
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The Four Ps of Starting Your Own Business
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Are you ready to learn how to build a thriving healthcare practice? Curious about the often-overlooked steps that can make or break your business? In this FANTAWESOME episode of the Uncaged Clinician Podcast, I’m your host David Bayliff today we're focusing on the crucial first steps for launching your own business. This episode is ideal for anyone…
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Ticks & Lyme Disease is the topic of the week! Our guest is Dr. Myriah Hinchey, a Naturopathic physician and Fellow of the Medical Academy of Pediatric Special Needs (MAPS), is a recognized expert in the field of Lyme disease and other complex chronic inflammatory conditions, with over 17 years of specialized experience. As a physician and the Medi…
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This week we discuss Limits (things that Chronic/invisible illnesses prevent us from doing) and Restraint (things that we restrain and limit in some ways to do things). How limits and restraint works with chronic conditions and the adjustment that we have had to make in our lives to manage our conditions to live instead of simply function. What are…
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Connective Tissue Disorders and Lipedema with Karen Herbst, MD
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1:16:38
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, hosts an enlightening discussion with Dr. Karen Herbst, a leading expert on lipedema and other adipose connective tissue diseases. Dr. Herbst shares her extensive knowledge on the complexities of lipedema, Dercum's disease, and their connection to connective tis…
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Growth Over Comfort | Leadership Secrets with Jordan Floyd
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How can balancing positive and negative interactions impact your leadership effectiveness? Are you making enough positive deposits in your team's "relationship bank account"? Welcome to the Uncaged Clinician Podcast! I'm your host, Josh Payne, and today, we're joined by Dr. Jordan Floyd from Limitless Therapy and Wellness. We're discussing how to b…
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Ehlers Danlos Syndrome in the age of COVID
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Squeeze a world of passion, goal driven problem solver and an adventurous triathlete into 5 feet of fun and you get Faith Louise Cooper. Faith Louise grew up in a family of 5 with 2 younger sisters. At the 12 she was diagnosed with Juvenile Rheumatoid Arthritis, now known as Juvenile Idiopathic Arthritis. In 2017 she was diagnosed with hypermobilit…
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79 - Too Flexible to Feel Good Co-Author Celest Pereira on Hypermobility, Chronic Pain & More
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This episode features Celest Pereira who is a trained dancer, martial artist, co-author and physiotherapist. She earned her Bachelor of Science degree in Physiotherapy in 2009. Celest loves learning about and discussing anatomy, neuroscience and biomechanics and runs regular education-based workshops where she breaks down scientific research studie…
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The Weekly Recap (check-up) evolved into a chaotic, mania-driven venting session. Honestly days to just meet up and complain, vent out those frustrations, are helpful little 'resets'. It's also a flashback of how the early years of the podcast ebbed and flowed conversation-wise. Thanks again, Abilify! What are your thoughts on this subject? Feel fr…
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Linking Mast Cell Activation, Autoimmunity, and EDS with Kara Wada, MD
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In this episode, Dr. Linda Bluestein, the Hypermobility MD, delves into the intricate connections between the immune system and hypermobility disorders with Dr. Kara Wada. A quadruple board-certified physician and Sjogren's patient, Dr. Wada shares her expertise on mast cell activation syndrome, autoimmunity, and the role of inflammation. Discover …
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Overcoming Limitations and Finding Clarity
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How can you balance running a successful business while being a dedicated parent? Are you curious about the secrets to overcoming your limitations and finding clarity in your professional journey? In this FANTAWESOME episode of the Uncaged Clinician Podcast, I’m your host David Bayliff, and today we’re joined by Adam Robin, a physical therapist who…
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78 - Allysa Seely: USA Paralympian Gold Medalist on Medical Gaslighting and Advocacy Work
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Today our guest is paralympic Gold Medalist Allysa Seely. Allysa is a paratriathlon athlete with Ehlers-Danlos Syndrome and related conditions like Chiari II. Beyond her gold medal award, Allysa is also a three-time world paratriathlon champion and a 17-time ITU World Paratriathlon Event medalist with 12 golds, 3 silvers, and 2 bronzes. In 2016 at …
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This week we are discussing bullying amongst young children. CDC defines bullying as any unwanted aggressive behavior(s) by another youth or group of youths, who are not siblings, that involves an observed or perceived power imbalance, and is repeated multiple times or is highly likely to be repeated. Bullying may inflict harm or distress on the ta…
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77 - Movement Approaches, Nervous System Regulation & More (with Andy Hsieh, CPT-ACE)
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On this episode, our guest is Andy Hsieh of Movement Reborn located in San Diego, CA. Andy is a certified personal trainer through the American Council of Exercise, as well as a specialist in neurokinetic training. Andy runs Movement Reborn, an in-person personal training practice that also has some helpful YouTube videos for those who are not in t…
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Examining The Future of EDS Diagnosis and Care with EDS Society CEO Lara Bloom
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In this episode, Dr. Linda Bluestein, the Hypermobility MD, hosts a captivating conversation with Lara Bloom, President and CEO of the Ehlers-Danlos Society. Lara shares her journey in advocating for rare diseases, the progress made in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), and the upcoming updates in diagnostic c…
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Ultra Marathoner’s Triumph: Loretta's Journey from Debilitating Back Pain to Recovery
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Send us a Text Message. What happens when a passionate marathon runner is suddenly sidelined by a herniated disc? Join us as we explore the incredible journey of Loretta, a dedicated mother and ultra marathoner, whose life took a drastic turn due to a severe back injury. Discover how Loretta navigated the tumultuous path from intense physical activ…
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From Student to Boss Lady | A PT's Evolution
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37:29
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How did failing the PT boards twice lead to unexpected opportunities and personal growth for Gabby Mace? What makes a mobile physical therapy clinic different, and how has it shaped Gabby's approach to her niche in pelvic health and outdoor sports? In this FANTAWESOME episode of the Uncaged Clinician Podcast, I’m your host David Bayliff as I dive i…
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Heavy metal poisoning (toxicity) is the result of exposure to heavy metals like lead, mercury and arsenic. Heavy metals bind to parts of your cells that prevent your organs from doing their job. Symptoms of heavy metal poisoning can be life threatening and they can cause irreversible damage. Heavy metal poisoning occurs when microscopic molecules …
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This episode we break into the vast topic of fear -- in a chronic, invisible, or even general medical worlds there's a lot of this. It can range from the fear of not knowing, fear of the future, fear of your symptoms, how your condition might impact your loved ones... What are your thoughts on this subject? Feel free to chat with us below! Our Webs…
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6. TMJ Pain and Neck Connections Explained
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Today, join us as we dive into TMJ pain and neck connections. Discover the intricacies of temporomandibular joint (TMJ) dysfunction, how it connects with neck issues and practical insights into managing jaw pain effectively. We explore TMJ anatomy, the impact of clenching, and crucial connections between jaw health and neck stability. Learn how pos…
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Quantum Resilience: Journey from Herniated Disc with Ehlers-Danlos syndrome to Hope
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Send us a Text Message. S02#11 What if battling excruciating pain far from home could spark a story of incredible resilience and hope? Meet Adithi Udupa, a postdoctoral researcher from India now in Sweden, who faced the daunting challenge of a herniated disc while pursuing groundbreaking work in quantum computing. From emergency room visits to main…
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76 - Nervous System Regulation, Pelvic Health & More (Dr. Rita White DPT)
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On this episode, we are joined by Dr. Rita White, Doctor of Physical Therapy. Rita is a pelvic health physical therapist with over 10 years of experience helping people reconnect to their body so they can overcome pain. Her areas of expertise include pelvic health and pain conditions, especially hypermobile Ehlers-Danlos Syndrome (hEDS)/ Hypermobil…
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How Chelsea Smith Enhances Healthcare through Collaboration with local gyms
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Are you curious about how collaboration between physical therapists and trainers can elevate client care? Want to discover the secrets behind building strong partnerships with local gym owners and trainers? In this FANTAWESOME episode of the Uncaged Clinician Podcast, I’m your host David Bayliff and today, we're joined by Dr. Chelsea Smith, the inn…
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Your immune system is your body's main defense against germs and illnesses. When you have lupus, you're more prone to infections because your immune system works differently than most people's. It becomes overactive and attacks your body itself. Our guest on today's show is another repeat guest, Amber Blackburn. Amber is a Registered Nurse turned…
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