A girl on a mission to impact lives through health, fitness and mindset improvements. A positive message, a lame joke, and/or a swift kick in the rump- you never know what the next episode of Life W/ Lyns will hold but I guarantee it will be worth it! 🤘 Support this podcast: https://podcasters.spotify.com/pod/show/ms-fit-nation/support
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Information, conversations, and stories from MS experts and people living with MS
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Wait How Do You Spell That? is a rare disease podcast produced by Patient Worthy. We talk about issues affecting people rare and underdiagnosed conditions and interview advocates from across the community. We‘re definitely not doctors, and we can‘t give you medical advice. We‘re just here to chat and learn about the diseases that even doctors can‘t seem to spell. Check out the latest in rare disease news at PatientWorthy.com.
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Editor Lisa Dixon, M.D., M.P.H., and Podcast Editor and Co-Host Josh Berezin, M.D., M.S., discuss key aspects of research recently published by Psychiatric Services (https://ps.psychiatryonline.org/), a journal of the American Psychiatric Association. Tune in to Psychiatric Services From Pages to Practice to learn about the latest mental health services research and why it is relevant. Topics include community-based treatment programs, collaborative care, evidence-based treatment and service ...
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A podcast for parents who balance the unique challenges of raising children while also serving our nation in uniform. We share our experiences as parents. We discuss everything from the latest regulations for pregnancy, breastfeeding, and the postpartum period, to topics such as health and wellness to military family services. Also a great resource for senior military leaders, spouses, and family members.
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Healing arts practitioners and clinicians (NPs, PAs, CNSs, CNMs, CRNAs) need and want to learn more about or how to incorporate a holistic, integrative care component into their lifestyle, their clinical practice or entrepreneurial health & wellness business. The information shared here can be useful for self-care as a professional and for professional education. Practitioners need to learn more than the service they provide but also the business of health and wellness and self-care These co ...
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The Reframed Brain Podcast highlights the importance of centering brain health and unseen injuries. Founder and host, Erica Savage delivers honest experience-driven commentary as a brain injury champion and mental health advocate after surviving being hit twice by a large truck while traveling for work in March 2021. Erica’s political and social work has been paused and re-routed as a result of active healing and ongoing recovery. Featured guests will range from medical practitioners to ther ...
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A podcast providing information, inspiration and motivation for living your best life with Multiple Sclerosis. Learn to speak to this disease as it deserves - tell it FUMS every day!
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Each narrative episode of TDU is a brief 15-minute Update on science-based/evidence-based health discoveries and insights - practical health information that Dr. Douglass shares with his own patients. The interview episodes with topic experts complement the narrative episodes. The TDU team mines and extracts what’s best from conventional, ‘western’/allopathic medicine, as well as from the more non-conventional therapeutic disciplines to fulfill the TDU goal of providing listeners with practi ...
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Welcome to PLANET SPOONIE, the podcast for lymies and spoonies healing themselves and the world. Together we'll explore what it means to be a lymie and spoonie, how the honeybee can guide us on our healing journey, and why all chronic illness is intimately linked to the climate crisis. We'll talk about the core foundations of holistic nutrition, herbal medicine, nature connection, and everything in between. These are the same core foundations that helped me find healing while living with chr ...
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All About Koolen de-Vries Syndrome, feat. Patient Advocate Ashley Point
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In this episode of the podcast we speak to Ashley Point, a patient advocate advocate whose son Davis was diagnosed with Koolen de-Vries Syndrome (KdVS) in 2016. She also serves as the president for both the Koolen de-Vries Syndrome Foundation and My Kool Brother, two non-profits that help to support families living with KdVS through advocacy, resea…
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Occupational Therapy: Redesigning Your Life With MS
33:03
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Occupational Therapy: Redesigning Your Life With MS– Episode 175 – Transcript In this episode, host Stephanie Buxhoeveden sits down with occupational therapist Rebecca Cunningham to explore the impact of MS on the various aspects of our lives including work, school, and parenting with MS. Together, they will delve into how MS affects daily routines…
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70: Gender-Affirming Psychotherapy (GAP): Core Principles and Skills to Reduce the Mental Health Care “GAP” for Transgender Youths
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Maggi A. Price, Ph.D., M.A. (School of Social Work, Boston College) joins Dr. Dixon and Dr. Berezin to discuss gender-affirming psychotherapy (GAP), a comprehensive, evidence-informed, and human-centered set of practices focusing on the treatment of transgender youth developed by Dr. Price and colleagues. The training discussed in the podcast is av…
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PKD and the Gift of Life, feat. Patient Advocate Valen Keefer
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In this episode of the podcast we speak to Valen Keefer, a professional speaker and patient advocate who was diagnosed with polycystic kidney disease (PKD) at age 10. Valen has faced a number of challenges in her journey, including a double organ transplant, and now inspires other PKD and chronic illness patients by sharing her story. Connect with …
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Current Research Updates on Rehabilitation in MS
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27:39
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Current Research Updates on Rehabilitation in MS – Episode 174 – Transcript In this episode, host Stephanie Buxhoeveden sits down with Dr. Kathy Zackowski, who brings two decades of patient care experience and a strong background in MS research. They’ll explore the latest developments in MS rehabilitation, discussing how it can impact various aspec…
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Intermittent Fasting and MS – Episode 170 – Transcript In this episode we host guest Dr. Samantha Roman who is not only a neurologist but also lives with MS. Hear more about the exciting topic of Intermittent Fasting. What is intermittent fasting? Is intermittent fasting safe for people with MS? What do we know about gut health and MS? Listen in to…
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The Power of Resiliency, Feat. Multiple Myeloma Patient Advocate Keisha Hickson
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In this episode of the podcast, we speak to professional speaker and community advocate Keisha Hickson, who was diagnosed with multiple myeloma in 2016. That’s a rare form of cancer that develops in a type of white blood cell called a plasma cell. We discuss navigating a rare cancer diagnosis, adjusting to a new normal and the importance of resilie…
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69: Investing in School Mental Health: Strategies to Wisely Spend Federal and State Funding
37:17
37:17
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Dr. Sharon Hoover (University of Maryland School of Medicine, Baltimore) joins Dr. Dixon and Dr. Berezin to discuss the provision of mental health services in schools: why it matters, who it touches, how it’s funded, and how it’s doing. 01:15 Background 02:46 Provision of school mental health 09:56 How mental health services differ between ages and…
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WORKING WITH BOTANICALS + PHARMACEUTICALS with JENNIFER CANN | Weaving Modern + Ancient Medicines Together for Effective Healthcare
1:22:36
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Do you find yourself confused about the safety and effectiveness of herbal medicine when so many providers warn you against them? Are you curious about the differences between herbs and pharmaceuticals? Join Kelsey Conger and Jennifer Cann on PLANET SPOONIE, the podcast for lymies and spoonies healing themselves and the world. On this week's episod…
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The National MS Brain Bank: Advancing Research
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The National MS Brain Bank: Advancing Research – Episode 173 – Transcript In this episode, host Stephanie Buxhoeveden talks in detail with Dr. Claire Riley about the crucial role of the National MS Brain Bank in unraveling the complexities of Multiple Sclerosis through detailed Central Nervous System tissue research. It highlights the importance of…
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Epilepsy and Unmet Need, feat. The LGS Foundation and Ovid Therapeutics
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This episode's guests include Dr. Tracy Dixon-Salazar, Executive Director for the Lennox-Gastaut Syndrome (LGS) Foundation, as well as Meg Alexander, Chief Strategy Officer of Ovid Therapeutics. We discuss the treatment landscape for seizure disorders such as LGS and why further research and investment is crucial. Connect with the LGS Foundation: W…
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Ewing Sarcoma and the New Normal, feat. Patient Advocate Brandi Benson
19:48
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In this episode of the podcast we sit down with Brandi Benson, a U.S. army veteran, author and patient advocate who was diagnosed with Ewing sarcoma in 2008. That’s one of rare family of cancers that develop in bones and the surrounding soft tissues. Brandi shares her story of resilience and survivorship, hoping to inspire others to share their can…
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TRB EPI 27: 4 Simple Ways to Activate Your Wellness Within
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Today's Reframed Brain episode highlights understanding and exercising your wellness within featuring Holistic Health and Wellness Curator, Dr. Kathryn Tapper, MD. Please subscribe and like @The Reframed Brain Podcast YouTube channel and preorder your copy of The Fight To Fly at TheReframedBrain.com today! Dr. Kathryn Tapper aka Dr. KTap is a Mayo …
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UNPACKING DETOX | The #1 Practice for Chronic Lyme Recovery
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53:40
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Do you wonder what the hype is about detox and all those fancy protocols and products you see in your social feed? Are you struggling to find an effective approach for chronic lyme and coinfections? Dealing with herx after herx and desperate for a better way? Join your friendly neighborhood herbalist, nutritionist, and lymie, Kelsey Conger, on PLAN…
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50 Years of Supporting the TSC Community, feat. TSC Alliance President and CEO Kari Rosbeck
33:03
33:03
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In this episode of the podcast we sit down with Kari Rosbeck, the president and CEO of the TSC Alliance. That’s a nonprofit dedicated to supporting people living with tuberous sclerosis complex and also driving research into promising treatment, among many other things. The TSC Alliance is also celebrating its 50th anniversary this year! Connect wi…
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Health Insurance and MS: Breaking Down Benefits
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26:58
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Health Insurance and MS: Breaking Down Benefits – Episode 172 – Transcript Join host Stephanie Buxhoeveden alongside nurse and certified case manager Judy Gulley as they explore the complexities of health insurance. From different insurance types to managing costs and benefits, it can all be confusing. Nurse Judy breaks it all down and provides ins…
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THE TRUTH ABOUT RAW DAIRY | Understanding the Pros + Cons of Local Raw Milk
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26:19
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Have you ever wondered about the raw dairy hype and what the controversy is all about? Are you wondering what the difference between raw and pasteurized dairy is, or if it really matters? Join your host Kelsey Conger, a Clinical Herbalist + Holistic Nutritionist on PLANET SPOONIE, the podcast for lymies and spoonies healing themselves and the world…
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Helping Rare Parents Help Themselves, feat. Ronda Thorington, LPC
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In this episode of the podcast we sit down with Ronda Thorington, the mother of child living with mixed connective tissue disease. Ronda is also a licensed professional counselor who specializes in empowering parents of children who are living with a rare or chronic diagnosis. Connect with Ronda: Website - Facebook - Instagram Editor's Note: Chroni…
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THE PLANTS ARE OUR ELDERS with CAMILLE EDWARDS | Fostering Relationships + Imagining a Better World with Our Plant Kin
51:21
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Do you feel caught up in the endless cycle of hustle culture, but crave a deeper connection to nature and the earth? Are you curious about herbal medicine, but feel clueless about where to start? Do you want to learn more about powerful plant medicines like cacao? Join Kelsey Conger and Camille Edwards on PLANET SPOONIE, the podcast for lymies and …
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AN HERBALISTS APPROACH TO FERTILITY with VERONICA RICKSEN, RH | Cycle Tracking for Greater Autonomy, Body Literacy, + Empowerment
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53:06
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Have you ever considered freezing your eggs? Are you curious about cycle tracking, but feel clueless about how to start? Do you want to optimize your hormone health, regardless of where you're at in life? Join herbalists Kelsey Conger, MS and Veronica Ricksen, RH on PLANET SPOONIE, the podcast for lymies and spoonies healing themselves and the worl…
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IPF and the Importance of Clinical Trials, feat. Patient Advocate Murray Walz
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In this episode of the podcast we sit down with Murray Walz, a patient advocate who was diagnosed with the progressive lung diseases idiopathic pulmonary fibrosis (IPF) in 2019. Murray discusses the importance of support, clinical trials and why the family factor is crucial for IPF patients. Connect with the Canadian Pulmonary Fibrosis Foundation: …
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THE EARTH IS YOUR ALLY with ALAYNA BELLQUIST | Navigating Lyme Recovery with Nature as Your Guide
1:11:39
1:11:39
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Since being diagnosed with lyme or watching a loved one struggle with this difficult disease, have you developed a fear of going outside? Do ticks scare you into staying indoors when you'd rather be soaking up some sunshine? Join herbalist Kelsey Conger and marine scientist Alayna Bellquist on PLANET SPOONIE, the podcast for lymies and spoonies hea…
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68: Designing Community Services for People With Borderline Personality Disorder to Reduce Hospitalizations
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Simon Graham, M.B.Ch.B., M.R.C.Psych., and Kathy Curtis (Spring House Psychotherapy and Personality Disorder Service) join Dr. Dixon and Dr. Berezin to discuss the use of a local case management team and a combined day treatment and crisis service for patients with borderline personality disorder in Liverpool, United Kingdom. Transcript Subscribe t…
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Mental Health and MS: Understanding Resilience
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Mental Health and MS: Understanding Resilience – Episode 171 – Transcript In this episode we hear from Psychologist, Roz Kalb and host Stephanie Buxhoeveden about Resilience, just in time for Mental Health Month. We talk about the meaning of resilience and being emotionally agile. Also, learning to be flexible with your thoughts and feelings. We wi…
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TRB EPI 26: May The Reframed Be With YOU!!
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Today's Reframed Brain episode highlights the intersection of food and wellness while lifting forward two critical awareness campaigns: Maternal Mental Health and Mental Health Month. We also share resoures for help and important numbers to share! Please leave a 5-star review, subscribe and like @The Reframed Brain Podcast YouTube channel and conne…
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The MS Poltergeist, feat. Patient Advocate Jennifer Angus
43:48
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In this episode of the podcast we talk with Jennifer Angus, a patient advocate and para dressage competitor who was diagnosed with multiple sclerosis in 2014. Jennifer has long been involved with athletics having a history as a skiing instructor and is a big advocate of horseback riding as a way to heal the body and mind. Connect with Jennifer Rega…
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67: Addressing Mental Health Disability in Unsheltered Homelessness: Outpatient Conservatorship in Los Angeles
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Elizabeth Bromley, M.D., Ph.D. (University of California, Los Angeles) joins Dr. Dixon and Dr. Berezin to discuss the use of outpatient conservatorship in the effort to address mental health disability among unsheltered homeless persons in Los Angeles County, California. 00:00 Introduction 03:04 Homelessness in Los Angeles County, California 09:04 …
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The Bespoke Gene Therapy Consortium's New Regulatory Playbook, feat. The Foundation for the National Institutes of Health and Taylor's Tale
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In this episode of the podcast we talk with Drs. Julie Gerberding and Courtney Silverthorn from the Foundation for the National Institutes of Health (FNIH). They're bringing us updates on the Bespoke Gene Therapy Consortium's new regulatory playbook that is designed to help get certain types of genetic therapies for rare diseases approved and avail…
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Hemophilia and Axel's Story, feat. Patient Advocate Kristina Robinson
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In this episode of the podcast we talk with Kristina Robinson, a patient advocate and mother whose son, Axel, was diagnosed with hemophilia A when he was 10 months old. That’s a rare bleeding disorder, sometimes called “classic hemophilia,” that is characterized by excessive bleeding from cuts, unexplained bruising, joint swelling and more. Since h…
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Navigating a New MS Diagnosis – Episode 169 – In this episode of the podcast, we welcome Megan Hall who is young, newly diagnosed, a new parent, and a small business owner. Megan and Stephanie talk candidly about what it is like navigating the complexities of a new MS diagnosis. They discuss the importance of finding the right doctor to determine a…
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The Road to Resilience and Self-Advocacy, feat. Patient Advocate Kecia J.
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This episode features Kecia Johnson, an author, music industry veteran and motivational speaker who was diagnosed with HIV/AIDS in her early 20s, and also with a rare form of stage-3 colorectal cancer at age 35. Kecia has been an outspoken patient advocate who has appeared in OutSmart Magazine, Shoutout Atlanta, many different podcasts and also a W…
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SURVIVING HERX REACTIONS | The Essential Toolkit for Lyme + Co
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Are you familiar with the deeply uncomfortable experience of having a herx reaction when treating lyme? Are you herxing right now? Desperate for tools you can try at home to relieve the pain and other unpleasant symptoms? Join your host Kelsey Conger, a clinical herbalist, holistic nutritionist, and lymie, on PLANET SPOONIE, the podcast for lymies …
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Rare Cancer, Finances and Families, feat. Tony Laudadio of the Tony Foundation
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In this episode of the podcast, we speak with Tony Laudadio, an oncology patient advocate who was diagnosed with renal cell carcinoma and oligodendroglioma, a type of rare brain cancer. In the years after his remission, Tony also started the Tony Foundation, a non-profit that helps to support families impacted by all types of cancers with crucial f…
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WORKING WITH A CLINICAL HERBALIST | The Step-by-Step Process of Becoming a Client + Booking an Herbal Consultation Series
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Are you curious what it's like working with me or another clinical herbalist?? Do you feel confused about what herbal medicine is and what it's like to be a client? Today's episode is a basic breakdown of what the process is like becoming my client, going through an herbal consultation, and receiving personalized, holistic care! Join your host Kels…
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66: Predicting Outcomes of Antidepressant Treatment in Community Practice Settings
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Gregory E. Simon, M.D., M.P.H. (Kaiser Permanente Washington Health Research Institute, Seattle) join Dr. Dixon and Dr. Berezin to discuss the use of machine learning models to analyze electronic health records to predict antidepressant treatment response. 00:00 Introduction 02:31 Focus on practical research 04:55 Population studied 05:57 Predictin…
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Diversity in MS Research and Clinical Trials
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Diversity in MS Research and Clinical Trials – Episode 168 – Transcript – In this episode we hear from Neurologist Jacqueline Rosenthal and host Stephanie Buxhoeveden about the need for diversity in MS research and clinical trials. We talk about why diversity is important and what is being done to fill the gaps in care and MS research. And most imp…
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The Unmet Need in Rare Disease, feat. Dr. Emil Kakkis of Ultragenyx
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In this episode, we speak with Dr. Emil Kakkis, a physician and scientist who has spent more than 30 years helping to advance research, treatment and policy for rare disease patients. He is also the founder of both the EveryLife Foundation for Rare Diseases and Ultragenyx, a life sciences company dedicated to developing innovative treatments for ra…
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ALL ABOUT HYPERMOBILITY with TAYLOR GOLDBERG | Living Your Best Life with an Extra Bendy Body
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Have you ever been told you're double-jointed or entertained friends with your crazy flexibility? Do you live with hypermobility and struggle to understand how to engage in the activities you love without triggering pain or flare-ups?? According to the latest research and estimates, as much as half of the population lives with some level of hypermo…
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TRB BONUS: Celebrating 2 years of The Reframed Brain
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In today's episode, Erica celebrates TRB's two year anniversary through re-sharing the launch announcement!By ericasavagewilson
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THE MODERN VILLAGE with CALLIE LONGENECKER | Cultivating Community, Nourishment, Rest, + Play as Women
1:05:18
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Do you ever find yourself feeling overwhelmed about trying to do everything right, whether as a mama or a chronic illness warrior? Do you want to feel more empowered to follow your intuition, to relax and begin incorporating more ease + play, and to cultivate a community of women who have your back?? Join herbalists Kelsey Conger and Callie Longene…
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Progressive MS Research Update – Episode 167 – Transcript – This episode of the Can Do MS Podcast welcomes guest Dr. Bruce Bebo who is the Executive Vice President of Research at the National MS Society. Bruce and host, Stephanie talk about what’s on the forefront of Progressive MS Research. Learn about the projects, trials, and collaborations that…
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The Intersection of Motherhood and Chronic Illness, Feat. aHUS Patient Advocate Taylor Coffman
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On this episode of the podcast, we discuss atypical hemolytic-uremic syndrome, also known as aHUS -- a rare disorder characterized by low levels of blood platelets and blood clotting in the small blood vessels of the body. We're joined by Taylor Coffman, whose diagnosis with aHUS during pregnancy inspired her to work as a patient advocate helping t…
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65: Remodeling Broken Systems: Addressing the National Emergency in Child and Adolescent Mental Health
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Misty C. Richards, M.D., M.S. (University of California, Los Angeles), and Nicole Kozloff, M.D. (University of Toronto), join Dr. Dixon and Dr. Berezin to discuss the need to remodel our systems and provision of mental health services for children and adolescents. 00:00 Introduction 01:18 Impetus 05:45 What constitutes a mental health crisis? 11:14…
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TEN BOOKS TO READ IN 2024 | Life Changing Books to Feel Inspired This Year
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Are you eager to learn more about holistic and natural medicine, but have no idea where to start?? Let's start the new year with a list of beginner-friendly books that will empower you with knowledge that will change your life! These books explore holistic nutrition, food preparation, starting with herbal medicine, indigenous traditions, the healin…
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THE SOLSTICE STORY | Aligning with Seasonal Rhythms for Greater Balance
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Do you ever wonder about the origins of the winter solstice and why we celebrate certain holidays throughout the year? Do you want to learn to live in alignment with the seasons and cycles of nature? Join your host Kelsey Conger, an herbalist, nutritionist, and lymie on PLANET SPOONIE - the podcast for lymies and spoonies healing themselves and the…
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2023 Mindful Moments: Week 52 – Episode 166– Transcript – I spend time with my soul. Tap into the power of this mantra with Megan Weigel, Nurse Practitioner and MS-Certified Nurse, and discover a mindful moment for yourself.By Can Do Multiple Sclerosis
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2023 Mindful Moments: Week 51 – Episode 165– Transcript –I feel relieved. Tap into the power of this mantra with Megan Weigel, Nurse Practitioner and MS-Certified Nurse, and discover a mindful moment for yourself.By Can Do Multiple Sclerosis
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FOOD AS SELF-LOVE | Navigate the Holiday Season with Confidence and Never Diet Again
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Are you sick of the negative self-talk, guilt, shame, and endless cycles of restriction and bingeing? Does the idea of "healthy eating" feel overwhelming, controversial, and like you'll never get it right? Rise above all the negative storylines and radicalize (get rooted in) the way you think about food and nutrition! Join your host Kelsey Conger, …
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2023 Mindful Moments: Week 50 – Episode 164– Transcript –I notice where emotions go in my body. Tap into the power of this mantra with Megan Weigel, Nurse Practitioner and MS-Certified Nurse, and discover a mindful moment for yourself.By Can Do Multiple Sclerosis
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64: Acceptance of Insurance by Psychiatrists and Other Physicians, 2007–2016
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Andrew D. Carlo, M.D., M.P.H. (Northwestern University Feinberg School of Medicine, Chicago) joins Dr. Dixon and Dr. Berezin to discuss the insurance acceptance rates of psychiatric practitioners compared with other medical disciplines. 00:00 Introduction 01:04 Background and Motivation 02:46 Data Set and Methodology 05:12 Restricted Data Set and P…
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