Best Postural Orthostatic Tachycardia Syndrome (pots Podcasts (2024)

1
Group Rehabilitation for POTS with Emily Rich, OT 55:21

1h ago55:21

55:21

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down with Emily Rich, an occupational therapist specializing in POTS (Postural orthostatic tachycardia syndrome), Ehlers-Danlos syndromes, and other chronic conditions. Emily, who is also a patient with hypermobile EDS and POTS, shares her insights on how o…

1
Understanding the Brain's Role in Chronic Pain with Kaitlin Touza, PhD 1:05:41

8d ago1:05:41

1:05:41

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, engages in an enlightening conversation with Dr. Kaitlin Touza, a renowned pain psychologist. Dr. Touza delves into the complexities of chronic pain, explaining how the nervous system, brain processes, and psychological factors contribute to pain experiences. Sh…

1
E22: Snippet - Is Looking For Treatments Stopping You Recovering From ME/CFS, PVFS(long-covid), Fibromyalgia & POTS 14:17

7d ago14:17

14:17

Looking for treatments to help you recover from ME/CFS, PVFS (long-covid), Fibromyalgia or POTS or related illnesses should surely be a good thing. It’s what most of us do whilst we are ill until we eventually give up or are told ‘there is not cure, so you can’t recover’. But whilst it can be key to your recovery breakthrough, it can also have sign…

1
Connective Tissue Disorders and Lipedema with Karen Herbst, MD 1:15:38

15d ago1:15:38

1:15:38

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, hosts an enlightening discussion with Dr. Karen Herbst, a leading expert on lipedema and other adipose connective tissue diseases. Dr. Herbst shares her extensive knowledge on the complexities of lipedema, Dercum's disease, and their connection to connective tis…

1
E21: Dr Michael Lenz on treating Fibromyalgia, CFS, POTS - treating children & the connection with ADHD 1:08:59

13d ago1:08:59

1:08:59

In this episode, we sit down with Dr. Michael Lenz, a dedicated physician specializing in fibromyalgia, ME, CFS, POTS, and related illnesses. Dr. Lenz discusses his conservative approach to medications and emphasis on lifestyle medicine, particularly for children with these conditions. A notable part of the discussion delves into the common comorbi…

1
Returning guest Rachel Jessey - lets talk about the gut! 39:55

17d ago39:55

39:55

Send us a Text Message. In this episode of the podcast I talk with a fantastic returning guest Rachel Jessey. We talk about all things gut related and the microbiome, Rachel explains how these can be effected by the Circadian rhythm and also how and what we can do to help support a "healthy gut". Listen to Rachel talk about a study that supports th…

1
Linking Mast Cell Activation, Autoimmunity, and EDS with Kara Wada, MD 1:00:02

19d ago1:00:02

1:00:02

In this episode, Dr. Linda Bluestein, the Hypermobility MD, delves into the intricate connections between the immune system and hypermobility disorders with Dr. Kara Wada. A quadruple board-certified physician and Sjogren's patient, Dr. Wada shares her expertise on mast cell activation syndrome, autoimmunity, and the role of inflammation. Discover …

1
Examining The Future of EDS Diagnosis and Care with EDS Society CEO Lara Bloom 1:04:27

26d ago1:04:27

1:04:27

In this episode, Dr. Linda Bluestein, the Hypermobility MD, hosts a captivating conversation with Lara Bloom, President and CEO of the Ehlers-Danlos Society. Lara shares her journey in advocating for rare diseases, the progress made in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), and the upcoming updates in diagnostic c…

1
Guests Gary and Karen, discuss their personal journey and setting up a local Long Covid support group 39:09

1M ago39:09

39:09

Send us a Text Message. In this episode of the podcast I am grateful to speak with Gary and Karen, they talk with me openly about their acute and Long Covid journey as a married couple. We discuss how long covid impacts life and "the person we once was", Karen reads an impacting piece she wrote through a creative writing group titled "The goldfish …

1
E20: Snippet - How resilient can recoveries be after ME/CFS, Fibromyalgia, POTS, MCS, PVFS (or long-covid)? 21:12

1M ago21:12

21:12

It’s finally time to share some of my health struggles during the last 6 years. It seems like a good opportunity to speak about how resilient ME/CFS, Fibromyalgia, POTS, MCS PVFS (or long-covid) recoveries can be – after all, when we recover we often can’t help but ask ….”will it last?” SHOWNOTES: https://cfsunravelled.com/episode20 **MEDICAL DISCL…

1
The pandemic, the government and the general election 39:04

2M ago39:04

39:04

Send us a Text Message. In this episode of the podcast, I have returning guest Rachel Hext. Rachel and I talk ahead of the UK general election, we discuss the floors, failings and ongoing issues around the pandemic, clean air and PPE. Rachel talks about her advocacy work including being part of media interviews and Panorama, and specifically Keywor…

1
Four years later! 29:11

2M ago29:11

29:11

Send us a Text Message. In this episode of the podcast, I talk about reaching the 4 year mark of living with Long Covid. I don't like to acknowledge this as an anniversary but I wanted to acknowledge the time that has passed, and what I have learnt along the way. It is strange how 4 years is such a long time, and in one way it has felt like the lon…

1
Season 4 Wrap: Reading Your Comments 6:58

2M ago6:58

6:58

Welcome back, every Bendy Body! In this special episode, I wrap up season four and share exciting plans for season five. Join me as I reflect on our journey, from focusing on high-risk populations like dancers and gymnasts to diving deep into medical topics. Listen in for gratitude-filled shoutouts from our wonderful listeners as I read their heart…

1
101. Breaking the Vicious Cycle of Chronic Illness with Ashok Gupta 1:03:49

2M ago1:03:49

1:03:49

In this conversation, Dr. Linda Bluestein interviews Ashok Gupta about his experience breaking the vicious cycle of chronic illness when he had ME-CFS. They discuss the impact of chronic conditions, the brain's priority of survival, and the vicious cycle of symptoms. Ashok explains the Gupta Program, which aims to make patients aware of subtle dang…

1
Guest; A. K. Davidson - Poetry for life and other chronic conditions 37:58

2M ago37:58

37:58

Send us a Text Message. On this episode of the podcast I chat to freelance writer and editor A. K. Davidson. We talk about her book; Poetry for life and other chronic conditions, which is due out on the 6th June, the link to pre order the book can be found below. Anna talks about her journey and experiences with acute and Long Covid, and how she no…

1
Milestones and Reflections: 100 Episodes of Bendy Bodies with Linda Bluestein, MD 1:20:42

3M ago1:20:42

1:20:42

Dr. Linda Bluestein celebrates 100 episodes of Bendy Bodies discussing the most rewarding part of hosting the podcast and the challenges of podcasting. She emphasizes the importance of balancing the complexity of EDS and the need for healthcare professionals to understand and empathize with the struggles of patients with hypermobility conditions. D…

1
99. From News Anchor to Advocate: A POTS and EDS Journey with Summer Dashe 1:02:17

3M ago1:02:17

1:02:17

Summer Dashe, a former news anchor and advocate for the chronically ill, shares her POTS and EDS journey. She covers how she manages her symptoms in everyday life and the challenges of getting diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome) and EDS (Ehlers-Danlos Syndrome). #dysautonomia #ChronicIllness #POTSAwareness Takeaways Gett…

1
Guests; Jess and Ally talk about the Turnto app for Cerebral Palsy and the upcoming app for - Long Covid and MECFS 37:54

3M ago37:54

37:54

Send us a Text Message. In this episode of the podcast I talk with Jess, the founder of the Turnto app, and Ally from Turnto Long Covid. Jess shares her inspiration for the Turnto app and her personal journey with her son who has a rare form of cerebral palsy, and the challenges navigating health care services and trying to find treatment and suppo…

1
98. Environmental Triggers of Mast Cell Disease with Tania Dempsey, MD 1:19:15

3M ago1:19:15

1:19:15

Summary Dr. Tania Dempsey discusses mast cell activation syndrome (MCAS) with a focus on environmental triggers of mast cell disease. Takeaways Infections can trigger mast cell reactions and people with MCAS may react differently than those without. Identifying and addressing environmental triggers, such as mold and plastics, is important in managi…

1
97. Learning to Spot the Signs of Ehlers-Danlos Syndromes with Guest Host, Kate Colbert 1:08:47

3M ago1:08:47

1:08:47

In this special “EDS Awareness Month” episode of the Bendy Bodies Podcast, founder Dr. Linda Bluestein and guest host Kate Colbert discuss how everyone can learn to spot the signs of Ehlers-Danlos Syndromes. Dr. Bluestein emphasizes the importance of EDS awareness, as many people are still not getting the evaluations and care they need. She also de…

1
Alexander Taylor - Creating a safe space 43:03

4M ago43:03

43:03

Send us a Text Message. In today's episode of the podcast I talk with my son Alexander. Alexander and I were talking some time ago, and he explained to me this concept of "safe space" which he had been thinking about. He explained he was developing and applying this to everyday life, but specifically to the salon he works in. He currently works at …

1
96. Coping with Dance Injuries and Career Transitions with Chelsea Pierotti, PhD and Guest Cohost, Jennifer Milner 46:19

4M ago46:19

46:19

In this episode, Dr. Chelsea Pierotti discusses coping with dance injuries and transitions, both from a physical and psychological perspective. She explains that the way dancers appraise their injuries and their emotional response to them can greatly impact their coping mechanisms. Dr. Pierotti emphasizes the importance of shifting the mindset from…

1
As requested....My experience on using a fitted Vagus nerve stimulator! 27:40

4M ago27:40

27:40

Send us a Text Message. As requested by those of you who follow me on social media, in this episode of the podcast I am sharing my experience so far, of using a fitted vagus nerve stimulator (VNS). I have aimed to answer all of the questions you guys asked me. I have given some information on the VNS, how it is fitted, what it does and how I am fin…

1
95. Pain Care Redefined: Non-Drug Therapies for Pain Relief with Heather Tick, MD 1:44:10

4M ago1:44:10

1:44:10

Dr. Heather Tick, a renowned pain expert, discusses non-drug therapies for pain relief; applying the principles of integrative medicine for comprehensive pain care. She emphasizes the need for education and understanding of pain neuroscience to empower patients. Dr. Tick also highlights the significance of nutrition in reducing chronic pain and inf…

1
94. Support and Bracing for Hypermobile Joints with Susan Chalela, MPT, and Guest Cohost, Scott Borjeson 1:08:27

4M ago1:08:27

1:08:27

In this Bendy Bodies with the Hypermobility MD podcast, Susan Chalela, MPT discusses support and bracing for hypermobile joints. She shares how her personal and professional experience with joint hypermobility led her to develop the Finding Functional Foundations approach which is being taught as part of The Ehlers-Danlos Society EDS ECHO program. …

1
NHS court hearing update with Kevin Digby and Rachel Hext 40:05

5M ago40:05

40:05

Send us a Text Message. In this episode of the podcast I talk with Kevin Digby and Rachel Hext following the High court hearing on the 6th March 2024. Kevin is a partner at GA Solicitors and is representing nearly 70 healthcare workers with Long Covid taking the NHS and other employers to court. Many healthcare workers are living with the disabling…

1
93. Unveiling Taming the Zebra: A Discussion with Physical Therapists Patricia Stott and Heather Purdin 1:00:22

5M ago1:00:22

1:00:22

This episode centers around unveiling 'Taming the Zebra', a book co-authored by physical therapists, Dr. Patty Stott and Heather Purdin. The book aims to fill a void in understanding and provide therapists with the knowledge to effectively work with patients with hypermobility spectrum disorders (HSD) and Ehlers-Danlos Syndromes (EDS). It covers th…

1
92. Empowering Zebra Warriors: THE Guide to Effective Physical Therapy for EDS and HSD with Lilian Holm, DPT 1:07:33

6M ago1:07:33

1:07:33

In this Bendy Bodies podcast episode, Dr. Lillian Holm discusses effective physical therapy for EDS and HSD and the importance of correcting function to achieve pain relief and tolerance for exercise. She explains why physical therapy may not always lead to the expected outcome, emphasizing the need for specialized therapists and individualized tre…

1
Professor Louise Cummings and Kerry Davies; research, speech, language and cognitive communication disorders in Long Covid 38:42

6M ago38:42

38:42

Send us a Text Message. In this episode of the podcast, I am grateful to have two fantastic guests join me, Professor Louise Cummings is a professor at the Hong Kong polytechnic university, she conducts research on language and communication disorders and is the author and editor of over 20 books in this area. Kerry Davies is a returning guest, a f…

1
91. Hand Problems in EDS with Corinne McLees, OT and Hand Coach 1:24:30

6M ago1:24:30

1:24:30

In this episode, Dr. Linda Bluestein and Corinne McLees discuss hand problems in EDS including pain, weakness, and injuries. This conversation covers various topics related to hand problems, including ring splints, hand exercises, avoiding strain and hyperextension, tips for traveling, challenges of the medical system for chronic pain, hand pain wi…

1
90. Decoding Brain Fog: Expert Insights with Ilene Ruhoy, MD, PhD 49:38

6M ago49:38

49:38

In this episode, Dr. Linda Bluestein interviews Dr. Ilene Ruhoy about causes of brain fog, as well as its relationship to various conditions such as mast cell activation syndrome, craniocervical instability, dysautonomia, and CSF leaks. She explains how these conditions contribute to cognitive dysfunction and the importance of identifying underlyin…

1
Q&A with Kevin Digby GA Solicitors 35:12

6M ago35:12

35:12

Send us a Text Message. Over the last couple of weeks you may have seen in the news, Dr Fearnley and the group she co-founded Long Covid Doctors for action; If not, these are a group of doctors who have come together to take action against the NHS negligent work place exposure. They are being represented by Bond Turner. Today, I am fortunate to be …

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Postural Orthostatic Tachycardia Syndrome (pots Podcasts

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