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Join on us on our individual journeys living, coping, and laughing at our lives with Ehlers Danlos Syndrome or EDS. We intend to raise awareness about invisible Illnesses, commiserate with fellow chronic disease friends, and share our own coping strategies and advice we have accumulated on our respective journeys
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Sure, it’s good to be flexible in life, but all things have their limits! If you’ve ever lived with a connective tissue disorder, you know all too well how often joint conditions like Ehlers-Danlos Syndrome (EDS) can go unrecognized by doctors and result in life-altering symptoms from pain and fatigue to gastrointestinal issues and insomnia. Whether you’re living with a hypermobility condition, treating one, or know someone living with their own – the greatest secret weapon you can use to ma ...
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Hypermobility Happy Hour is the first podcast exclusively dedicated to discussing hypermobility conditions including hypermobile Ehlers-Danlos Syndrome. Guests on the Hypermobility Happy Hour have included world renowned physicians, patient advocates, researchers, and individuals living with hypermobility. Listen in as we examine a wide range of topics, including treatment options for hypermobility disorders and ways to improve the doctor-patient relationship. The information provided on thi ...
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The Chronically Courageous, where chronic illness warriors come to feel empowered and uplifted. Listen each week to be inspired by others who have found happiness and peace, despite the physical and emotional tolls of chronic illness. Together, we navigate this complex journey and move forward with courage, passion, and purpose! Hosted on Acast. See acast.com/privacy for more information.
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The award-winning Agony Autie is the utter ramblings of a 30 year old Autistic woman (with Ehlers Danlos).
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The Healthy Wealthy & Smart podcast with Dr. Karen Litzy is the perfect blend of clinical skills and business skills to help healthcare and fitness professionals uplevel their careers.
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The podcast network that speaks to people with chronic illness, invisible illness, disability, and chronic pain. "Explicitly Sick Podcast" with Monica Michelle + "[Human]care Podcast" with Eva Minkoff Be Kind. Be Gentle. Be A Bad Ass. Hosted on Acast. See acast.com/privacy for more information.
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Predestined Purpose is a podcast that delves into the intersection of faith, resilience, and life’s challenges. Join host Raegan Ann as she shares her journey navigating Ehlers-Danlos Syndrome (EDS) and how God’s hand has been evident in every twist and turn. Through candid conversations, personal anecdotes, and insights from guests, each episode explores the power of faith to overcome adversity and find purpose in life’s trials. Whether you’re facing health struggles, career changes, or per ...
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If you’re struggling with chronic illness or neurodivergence and finding traditional work difficult, this podcast is for you. Tonya, a registered nurse with ADHD, POTS, and various other conditions, and Carrie, who battles FND, CPTSD, Tourette’s, and more, share their real-world experiences. We’ll delve into the pros and cons of different money-making apps, offering honest insights from our perspective. Discover practical advice and find a supportive community where you won’t feel alone in y ...
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Welcome to the Pilates & Movement Journey, a show tailored for Pilates Professionals, movement educators, and enthusiasts. Immerse yourself in transformative content that connects mind, body, and spirit. Explore holistic wellness, gain expert insights, and foster a vibrant community. Ignite your passion for Pilates with engaging discussions, practical tips, and a focus on overall well-being. Join us on this journey to elevate your spirit and embrace a healthier, more mindful lifestyle. https ...
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Listen in as Kris Ferguson MD interviews Doctors, patients, and health care professionals about health related topics. It's in depth, informative, and often personal. It's everything you ever wanted to know about your physical, mental, psychological, and spiritual well being. www.gethealthy360.com facebook.com/GetHealthy360/
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An interactive podcast to help entrepreneurs grow their businesses by unleashing their natural resilience. Since I’ll be broadcasting these episodes live using the BLAB network. Viewers will be able to post questions during the show. This is a very exciting venture and I hope that you’ll join us. Brian R. King, LCSW is a 27 yr cancer survivor, adult with ADHD & Dyslexia as well as the father of three sons with Asperger's and ADHD. In addition, Brian suffers from Ehlers-Danlos Syndrome Type 3 ...
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The Spoonie Struggle is about the raw, honest look at living life with chronic illnesses and chronic pain conditions. Spoonies of all types are welcome to join us, but we will have a heavier focus on the lesser common, lesser understood, and difficult to diagnose conditions, such as Ehlers Danlos, Marfan’s, Ankylosing spondylitis, Sjogren’s syndrome, lupus, multiple sclerosis, sickle cell anemia, and endometriosis. In this show, we will discuss our own experiences of each aspect of life with ...
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Welcome to Finding Your Range, the Podcast which uncovers the truth behind living with hypermobility, Ehlers-Danlos Syndrome and chronic pain. Your host is Jeannie Di Bon, a movement therapist who specialises in working with clients with these conditions. She is also the author of two books - Pilates Without Tears and Hypermobility Without Tears. She is an educator of teachers and therapists in the field of movement for hypermobile patients and speaks regularly for The EDS Society and the HM ...
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Sharing positive stories of recovery after a herniated disc or other spinal cord injury. Join herniated disc champion CK as she has informative and encouraging conversations with other back injury survivors. From people who elected to have back surgery (microdiscectomy, laminectomy, fusion, etc) to those who used more conservative methods, plus all things in between, join our podcast, and let's talk about how life can move beyond the bed after injury. If you are dealing with the isolation an ...
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Welcome to the Rights Upfront Podcast, where every story finds a voice. Join us as we delve into the world of disability rights and inclusion, amplifying diverse voices and advocating for change. From personal experiences to expert insights, each episode explores the challenges, triumphs, and ongoing efforts to promote equality and accessibility for all. Whether you're passionate about disability rights or simply curious to learn more, tune in to be inspired, informed, and empowered. Join th ...
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Genetics isn’t always black and white. And the emotions and decisions surrounding genetic testing can be even more complex. Hosted by genetic counselor Eleanor Griffith, the show brings you the personal experiences of patients and genetic counselors.
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Welcome to the Rx Physiotherapy Podcast – your ultimate destination for expert insights on physio, rehab, health, and wellness. Join hosts April Patterson and Brendan Casey, seasoned physiotherapists as they dive deep into captivating topics each week, covering everything from physiotherapy essentials to nutritional secrets. Dr. April Patterson, founder of RX Physiotherapy, holds a Doctor of Physiotherapy degree from Bond University. Her personal experiences with conditions like Ehlers-Danlo ...
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Join Zarrin as she speaks to invited guests, experts and filmmakers about their health journeys.
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Sensory Matters is a weekly podcast featuring expert interviews from the world of Sensory Seeking, Stimming & Autism. Supporting the World‘s Number 1 community of Sensory Seekers at sensooli.com this show is all about helping sensory seekers, avoiders carers and professionals with useful, interesting and inspiring stories. Find out more at, sensooli.com
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Me and little Bear talk about all different sorts of disabilities and the challenges that come with. Sometimes we have a random friend join our podcast and talk with us. After (almost) every intro we do Guess That Symptom which is a game you guys can play along with. To send us a voice message please use this link https://anchor.fm/rachel-runnalls/message to find my Facebook page go to https://www.facebook.com/atypicalperson.podcast/
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Living with a chronic illness can be an incredibly isolating experience. It can feel as though you're navigating life -- your illness itself, your experience with the medical system, communicating with your job and with loved ones -- completely by yourself. In this podcast, Katie, a coach who works with people living with chronic illness and who lives with a chronic illness herself, talks to people about their illnesses & conditions, their experiences, and their lives. The purpose is to shar ...
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A podcast that features interviews with inspirational guests who: - Have overcome adversity and turned their challenges into triumphs AND/OR - Are making a positive difference in the world Once a fortnight, you will hear the inspiring story of a guest who has experienced a challenging time in their life. As a result of these challenges, these guests have chosen to learn, grow and better themselves. Their stories showcase resilience, strength and the ability to thrive following adversity. Wit ...
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Dear Friends & Family is a show about living a full life with chronic illness with your hosts Patty & Lex. Patty lives with Fibromyalgia & Lex lives with Small Fiber Neuropathy. Together they explore the topics of life, love, and happiness with other people living a life involving illness. This show is to remind anyone dealing with illness in their day to day lives, whether they are the caretaker or the person with illness, that they are not alone. It's a serious topic with an upbeat feel. P ...
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Quantum Resilience: Journey from Herniated Disc with Ehlers-Danlos syndrome to Hope
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Send us a Text Message. S02#11 What if battling excruciating pain far from home could spark a story of incredible resilience and hope? Meet Adithi Udupa, a postdoctoral researcher from India now in Sweden, who faced the daunting challenge of a herniated disc while pursuing groundbreaking work in quantum computing. From emergency room visits to main…
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78 - Allysa Seely: USA Paralympian Gold Medalist on Medical Gaslighting and Advocacy Work
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Today our guest is paralympic Gold Medalist Allysa Seely. Allysa is a paratriathlon athlete with Ehlers-Danlos Syndrome and related conditions like Chiari II. Beyond her gold medal award, Allysa is also a three-time world paratriathlon champion and a 17-time ITU World Paratriathlon Event medalist with 12 golds, 3 silvers, and 2 bronzes. In 2016 at …
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22 - Life and Dr Update, EDS and Dysautonomia News updates
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Going over Carrie's Dr. visit this week, Tonya is traveling in Wisconsin on a visiting family vacation. We discuss News Articles about EDS and Dysautonomia advances in science and medicine.By adultingonhardmode
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EP 147 - The Latest on Spinal Cord Stimulators - Tim Deer MD
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What is Spinal Cord Stimulation and how does it work? What are the risks and how are those risks mitigated by medical professionals? Dr. Deer is at the forefront of spinal cord stimulation research and in this episode he discusses the various aspects of Spinal Cord Stimulators that patients and doctors need to be aware of. Dr. Deer may be reached t…
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77 - Movement Approaches, Nervous System Regulation & More (with Andy Hsieh, CPT-ACE)
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On this episode, our guest is Andy Hsieh of Movement Reborn located in San Diego, CA. Andy is a certified personal trainer through the American Council of Exercise, as well as a specialist in neurokinetic training. Andy runs Movement Reborn, an in-person personal training practice that also has some helpful YouTube videos for those who are not in t…
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Examining The Future of EDS Diagnosis and Care with EDS Society CEO Lara Bloom
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In this episode, Dr. Linda Bluestein, the Hypermobility MD, hosts a captivating conversation with Lara Bloom, President and CEO of the Ehlers-Danlos Society. Lara shares her journey in advocating for rare diseases, the progress made in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), and the upcoming updates in diagnostic c…
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Drs. Kory Zimney & Jennifer Stevens-Lapsley: APTA Physical Therapy Research Agenda
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On this episode of the Healthy, Wealthy, and Smart podcast, Dr. Jennifer Stevens-Lapsley and Dr. Kory Zimney, underscored the crucial role clinicians play in influencing the APTA research agenda. They emphasized that clinicians should be invested in the research agenda as it directly impacts their practice and the well-being of their patients. Here…
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Ultra Marathoner’s Triumph: Loretta's Journey from Debilitating Back Pain to Recovery
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Send us a Text Message. What happens when a passionate marathon runner is suddenly sidelined by a herniated disc? Join us as we explore the incredible journey of Loretta, a dedicated mother and ultra marathoner, whose life took a drastic turn due to a severe back injury. Discover how Loretta navigated the tumultuous path from intense physical activ…
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Osteoporosis and Bone health with Lisa Jackson
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In this episode of the Pilates Lounge podcast, Katie Crane talks with Lisa Jackson, Lisa is a Principal Trainer under the Pilates Alliance Australasia and a Continuing Education Teacher and mentor. She is also the Faculty teacher for the internationally recognised Buff BonesBadge Registered outline Osteoporosis program for Australia and has been th…
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21 - Life updates, Vacations, EDS linked News updates.
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In this episode wee talk about our life updates the past couple weeks. Tonya is going to take a vacation to Wisconsin. We discuss news in the EDS community about the new K-15 genes they found and how it's linked to EDS, Small fiber neuropathy vs fibromyalgia, and a new sleep med that is helping to treat addiction,.…
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This episode we break into the vast topic of fear -- in a chronic, invisible, or even general medical worlds there's a lot of this. It can range from the fear of not knowing, fear of the future, fear of your symptoms, how your condition might impact your loved ones... What are your thoughts on this subject? Feel free to chat with us below! Our Webs…
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Dane Johnson, CHN: Reversing Crohn’s/Colitis Holistically
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On this episode of the Healthy, Wealthy, and Smart podcast, Dane Johnson joins the host to discuss holistically reversing Crohn's and colitis. As someone who reversed his own battle with Crohn's colitis using natural medicine, Dane shares his journey and insights as a holistic nutritionist helping others with IBD. Listeners will gain valuable infor…
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6. TMJ Pain and Neck Connections Explained
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Today, join us as we dive into TMJ pain and neck connections. Discover the intricacies of temporomandibular joint (TMJ) dysfunction, how it connects with neck issues and practical insights into managing jaw pain effectively. We explore TMJ anatomy, the impact of clenching, and crucial connections between jaw health and neck stability. Learn how pos…
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76 - Nervous System Regulation, Pelvic Health & More (Dr. Rita White DPT)
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On this episode, we are joined by Dr. Rita White, Doctor of Physical Therapy. Rita is a pelvic health physical therapist with over 10 years of experience helping people reconnect to their body so they can overcome pain. Her areas of expertise include pelvic health and pain conditions, especially hypermobile Ehlers-Danlos Syndrome (hEDS)/ Hypermobil…
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The Evolution of Movement with Madeline Black
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In this episode of the Pilates Lounge, Katie Crane interviews Madeleine Black, a distinguished movement expert with over 35 years of experience, who delves into the significance of creativity in Pilates instruction. They explore avenues for instructors to expand their knowledge and skills, stressing the value of engaging in physical practice, exper…
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20 - Changes to Podcast Structure plans!! - Mental health, physical health
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In this Episode we discuss what is going on in our lives the past 2 Weeks! We skipped a recording day just due to our emotional wellbeing but we had it planned in there. Learn what we have been going through and what we plan to do as we make adjustments going forward!By adultingonhardmode
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Record keeping! With things like digital TOS, acceptance screens, medical treatment forms allowing you to be treated by the doctor... there's a lot of blind faith put into these forms and records in general. But sometimes the single situation can be seen in drastically different ways, which is why we find it important to talk about! Thank you Ruth …
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Yogi Aaron's Path from Pain to Healing: Avoiding Spinal Fusion
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Send us a Text Message. Ever wondered how a seasoned yoga teacher overcame chronic back pain without surgery, and developed a groundbreaking technique in the process? In this episode, Yogi Aaron shares his incredible journey from debilitating back pain to becoming a pain-free yoga specialist. We discuss how his active youth and initial stiffness le…
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5. How to Relieve Lower Back Pain with Physio Tips and Tricks
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Today, we’re diving into lower back pain—a condition that nearly every physio sees on a daily basis. I remember no one at uni prepared us for just how many people would come in with back pain; it's almost a joke among physios. It can make up a huge part of our week. In this episode, we’re kicking off a series on back pain, starting with common issu…
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75 - Whealth - Hypermobile Couple Katie Goss and Andrew Dettelbach
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On this episode, hypermobile couple Katie Goss and Andrew Dettelbach discuss their experiences living with hypermobility as well as their insights from working with hypermobile people through their practice and the organization they founded: Whealth.Links:https://spreadwhealth.com/overcome-painhttps://www.instagram.com/whealthhttps://www.facebook.c…
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The History of Pilates with Sean Gallagher and Elaine Ewing
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In this episode, Katie Crane, Elaine Ewing, and Sean Gallagher, Pilates history buffs, discuss the importance of preserving the history of Pilates and the original equipment used by Joseph Pilates. They emphasise the significance of understanding the history of Pilates to have a deep knowledge of the method and to impart that knowledge to students.…
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19- life update and dreams, MCAS education, Books, Amazon, Getty, Pixabay
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In this episode we give our weekly update on how we have been feelings and our dreaming situation. We discuss MCAS (Mast Cell Activation Syndrome) and some of the symptoms as it is a co-morbidity for EDS that we are being tested for currently. We discuss books Haunting Adeline, and My Deal with the Elf King.…
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Dr. Jacob Kendall: Demystifying Health(care) Through 4-Dimensional Thinking
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On this episode of the Healthy, Wealthy, and Smart Podcast, host Dr. Karen Litzy chats with Dr. Jacob Kendall, a survivor of two open heart surgeries, a public health gerontologist, and a four-dimensional poly thinker. They discuss demystifying healthcare to empower patients and caregivers. Dr. Kendall shares his personal journey through the health…
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Spinal Fusion Success Story: Spondylolisthesis Treatment
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Send us a Text Message. Robert Carmichael thought his back pain was just a pulled muscle until it left him immobile during a beach trip in 2020. His journey from confusion to diagnosis sheds light on the complexities of living with spondylolisthesis, a condition where a vertebra slips out of place. Through chiropractic care and orthopedic consultat…
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In this episode of the Pilates Lounge, Katie Crane delves into the concept of progression in Pilates, underlining the unique journey each individual embarks on. She stresses the significance of consistency and time, alongside the essence of simplicity and familiarity in teaching. Understanding clients' goals and expectations is key. Katie also shed…
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In this episode we discuss our life updates with doctors visits. We go over POTs and what it is and how we have experienced it as well as testing. Discussion on Getty images and Pixabay.By adultingonhardmode
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74 - Dr. Brian Cunningham, DPT (The Swim Doc) on Swimming & Hypermobility
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In this episode, Dr. Brian Cunningham (The Swim Doc) talks about coaching and working with swimmers of all ages, strengths, and abilities (including hypermobile swimmers). Dr. Cunningham is an experienced physical therapist and swimmer who teaches swimmers about the specific muscles they need to engage as well as the habits and strategies of elite …
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Labels... they're about as common to find as clouds in the sky are. However the labels and expectations that cling to us as time passes should be examined regularly and updated as needed. Maybe a change in labeling can help someone with their plans for the future. Maybe the labels they were using have become more of a crutch or a detriment, or even…
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Dr. Jackleen Samuel-Kloes: Reimagining the Delivery of Care
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I had the pleasure of speaking with Dr. Jackleen Samuel, CEO of Resilient Healthcare, on the latest episode of the Healthy, Wealthy, and Smart podcast. Dr. Samuel shared insights on the evolution of care delivery and the innovative solutions Resilient Healthcare is implementing to bridge gaps in healthcare. From acute care at home programs to exten…
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Reclaiming Life from Pain: Insights from Julie Donnelly
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Send us a Text Message. Transform your understanding of chronic pain management with our special guest, Julie Donnelly, a seasoned massage therapist and pain relief expert with 35 years of experience. Listen as Julie shares her remarkable journey from standard massage therapy on a cruise ship to pioneering her unique muscular therapy practice. Disc…
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In this episode, Katie Crane shares her journey of overcoming chronic pain and how our thoughts shape our experiences. She stresses the significance of being mindful of our surroundings and establishing daily routines that foster conscious experiences to embed in our subconscious. Katie delves into the impact of mindset on healing and the ability t…
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17 - Life, EDS Doctor visit, Tourette's Syndrome, Side hustles, Pixabay and Getty images
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In this episode we talk about how we have been feeling this past week and how the weather changes effect us. Carrie talks about her most recent EDS appointment. We discuss Tourette's syndrome and how it works and Carrie's thoughts and experiences with it. We discuss some income ideas as well as how Getty images and Pixabay are going.…
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We continue our Context discussions while ringing in the first episode of SEASON 8!!! What are your thoughts on this subject? Feel free to chat with us below! Our Website -- https://www.fantasticpains.com/ Our PAIN-treon! -- https://www.patreon.com/FantasticPainsandHowWeHideThem Join our budding community on our discord: -- https://discord.gg/Zp7jx…
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From TikToks to Therapy: Navigating Grief, OCD, and Self-Care on Social Media
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Join me on an emotional and insightful journey as we explore the transition from creating humorous TikTok videos to becoming an advocate for mental health. In this episode, Rachel shares their personal story of coping with the loss of their mum seven years ago and the recent diagnosis of OCD. Discover how social media became a platform for serious …
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Welcome back, every Bendy Body! In this special episode, I wrap up season four and share exciting plans for season five. Join me as I reflect on our journey, from focusing on high-risk populations like dancers and gymnasts to diving deep into medical topics. Listen in for gratitude-filled shoutouts from our wonderful listeners as I read their heart…
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Andrew Sendejo: NFL Safety Now Tackling Brain Health
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On this episode of the Healthy, Wealthy, and Smart podcast, Dr. Karen Litzy discusses concussions from a first-person perspective with Andrew Sendejo, a retired 12-year NFL veteran. Andrew shares his personal experience with concussions from playing football, including several complete knockouts and moments of being "out of it." Tune in to gain ins…
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Emotional Recovery After Injury: Surviving to Thriving
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Send us a Text Message. Facing chronic pain or a severe injury can feel like navigating an endless maze of frustration and despair. Today's episode of Bed Back and Beyond brings a beacon of hope and actionable advice from Dr. Alan Weisser, a clinical psychologist and author of "New Possibilities: Unraveling the Mystery and Mastering Chronic Pain." …
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4. Hypermobility EDS and Its Comorbidities You Should Know About
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In this episode, April Patterson and Brendan Casey dive deep into the common comorbidities of Hypermobility EDS. They discuss the various health challenges associated with hypermobility. From gastrointestinal issues to autonomic dysfunction and fibromyalgia, they shed light on the often-overlooked aspects of this condition. Learn about the importan…
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In this episode, Katie Crane delves into the essence of effective communication and cueing in Pilates. Katie Crane underscores the importance of comprehending the brain-body synergy for precise cueing. She elaborates on the homunculus concept, illustrating how the brain processes sensory and motor inputs. Fascial lines play a pivotal role in cueing…
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16 - Health, Life, Swagbucks, Mistplay, Solitaire Clash, Etsy shop, KDP, and Podcast Creation
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We talk about our health week update, and monthly income from Swagbucks, mist paly, Kale app, Etsy shop, Solitaire Clash, and KDP. Announce next months app hustle.By adultingonhardmode
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101. Breaking the Vicious Cycle of Chronic Illness with Ashok Gupta
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In this conversation, Dr. Linda Bluestein interviews Ashok Gupta about his experience breaking the vicious cycle of chronic illness when he had ME-CFS. They discuss the impact of chronic conditions, the brain's priority of survival, and the vicious cycle of symptoms. Ashok explains the Gupta Program, which aims to make patients aware of subtle dang…
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Dr. Evangelos Pappas & Andrew Gamble: Enhancing Patient Decision Making in ACL Injury
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In this episode of the Healthy, Wealthy, and Smart podcast, host Dr. Karen Litzy, PT, DPT, talks with Dr. Evangelos Pappas, PT, PhD, and Andrew Gamble about the importance of utilizing a decision aid for ACL ruptures in children and adolescents as a valuable tool to offer evidence-based information for guiding treatment decisions. The decision aid …
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