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IRON-MATTERS is a series of interviews by and for medical and health practitioners focusing on hereditary haemochromatosis. The series is intended to provide general practitioners with in-depth information about this genetic chronic condition. Topics include - diagnosis in general practice with GP Dr Robert Menz- the genetics of haemochromatosis with clinical geneticist Prof martin Delatycki- haemochromatosis and the liver with gastroenterologist Prof John Olynyk- haemochromatotic arthropath ...
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Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by thalassemia. Each episode strives to provide listeners with critical education, the latest scientific updates, and voices from the thalassemia community. Learn more about thalassemia by visiting RethinkThalassemia.com. Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagra ...
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Hey VIZZIONATORS, welcome back to another milestone of our journey to relax and entertain the world! π We will publish new content three times a week here, so that you can enjoy them without paying attention to the videos. β¨ (Publishing at: 9PM CEST) For all the people who are new to this channel, here: we are 2 guys doing relaxing videos (called ASMR). Our main channel is YouTube, feel free to check it out. Just look for: VIZZION ASMR. If you are interested in Paul's and Gusti's life, check ...
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On this episode of Thal Pals, hosts NinaMaria Badalamenti and Dr. Kevin Kuo delve into the second part of their discussion on lab tests. They explore the impact of factors like menstruation, nutrition, and illness on ferritin levels, and emphasize the importance of monitoring and managing iron levels through diet and medication. They also explain hβ¦
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Understanding Lab Tests: Hemoglobin and Ferritin Explained β Part 1
26:06
26:06
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On this episode hosts NinaMaria Badalamenti and Dr. Kevin Kuo discuss important lab tests for thalassemia treatment. They focus on hemoglobin, explaining its role in oxygen transportation, the significance of trends over specific numbers, and the differences for transfusion-dependent and non-transfusion-dependent patients. They also introduce ferriβ¦
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Live in Atlanta: Thriving with Thalassemia
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On this episode of Thal Pals weβre live in Atlanta, Georgia for the 2024 Cooleyβs Anemia Foundationβs 2024 Patient-Family Conference. We assembled a panel moderated by Dr. Kevin Kuo and guest host Shae Ghosh. The panel dove into inspiring stories and practical advice from individuals living with thalassemia. Brian Goff, CEO of Agios Pharmaceuticalsβ¦
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Iron Will β Management of Iron Overload
24:58
24:58
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On this episode of Thal Pals: The Alpha Beta Revolution, hosts NinaMaria Badalementi and Dr. Kevin Kuo dive into the topic of iron overload, a critical issue for patients with thalassemia. They discuss the body's mechanisms in handling iron, the dangers of iron overload due to blood transfusions, and the importance of chelation therapy. Dr. Kuo empβ¦
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On this episode of Thal Pals, your host NinaMaria Badalementi, along with special guests Yasmeen and Paris, takes listeners through a detailed discussion about Cooley's Care Walks. We start with Yasmeen and Paris sharing personal experiences with thalassemia, the significance of community, and encouraging participation in Cooley's Care Walks. The eβ¦
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On this episode, we reintroduce you to NinaMaria Badalamenti as our new co-host of Thal Pals. NinaMaria is a patient advocate who has previously appeared on the show. Alongside Dr. Kevin Kuo, the two discuss whatβs new in thalassemia. SHOW DESCRIPTION Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and β¦
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Replay: Cooleyβs Anemia Foundation Family Conference: A Teen Conversation
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On this episode weβre live in Los Angeles, California from the Cooleyβs Anemia Foundation family conference. Co-hosts Laurice Levine and Ralph Colasanti host a panel of teenagers in conversation about their unique experiences with thalassemia. To learn more about Cooleyβs Anemia Foundation, click this link. SHOW DESCRIPTION Thal Pals: The Alpha Betβ¦
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Replay: Dr. Nica Cappellini - Mother of Thalassemia
40:05
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Dr. Kevin Kuo and Laurice Levine talk to the βmother of Thalassemiaβ Dr. Nica Cappellini on todayβs show. SHOW DESCRIPTION Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by Thalassemia. Each episode, Thal Pals strives to provide listeners with criticβ¦
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Thalassaemia International Federation Guidelines
41:01
41:01
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On this episode, we speak with Dr. Androulla Eleftheriou, the Executive Director of the Thalassaemia International Federation as well as Dr. Khaled Musallam, Chief Research Officer at the Burjeel Hospital at Burjeel Medical City in Abu Dhabi, UAE. We discuss the Thalassaemia International Foundation guidelines on non-transfusion dependent thalassemβ¦
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Cooleyβs Anemia Foundation Family Conference: A Teen Conversation
45:35
45:35
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On this episode weβre live in Los Angeles, California from the Cooleyβs Anemia Foundation family conference. Co-hosts Laurice Levine and Ralph Colasanti host a panel of teenagers in conversation about their unique experiences with thalassemia. To learn more about Cooleyβs Anemia Foundation, click this link. SHOW DESCRIPTION Thal Pals: The Alpha Betβ¦
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Thalassemia: Perspectives from Thailand with Dr. Vip Viprakasit
36:33
36:33
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SHOW NOTES FOR PODCAST PLAYERS: On this episode, Dr. Kevin Kuo sits down with Suwit Sumponpan, a medical science liaison working with Agios Pharmaceuticals and professor Vip Viprakasit, M.D. to discuss treating thalassemia internationally. Note: a portion of this interview is conducted in Thai. For the English portion, please see the time in the shβ¦
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Managing Thalassemia While Working Full-Time
19:06
19:06
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On this episode, host Laurice Levine sits down with news producer and thalassemia patient NinaMaria Badalamenti to discuss working a full-time job while managing her disease. SHOW DESCRIPTION Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by Thalasseβ¦
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On this episode, host Laurice Levine speaks with patient advocates Ralph Colasanti, Rucha Shah and NinaMaria Badalamenti about how different generations of patients have dealt with managing their Thalassemia. SHOW DESCRIPTION Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of pβ¦
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On this episode, Dr. Kevin Kuo and Laurice Levine are recording in New Orleans where they take an existential dive into the concept of βdisease burdenβ in Thalassemia. SHOW DESCRIPTION Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by Thalassemia. Eaβ¦
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Dr. Nica Cappellini - Mother of Thalassemia
40:05
40:05
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40:05
Dr. Kevin Kuo and Laurice Levine talk to the βmother of Thalassemiaβ Dr. Nica Cappellini on todayβs show. SHOW DESCRIPTION Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by Thalassemia. Each episode, Thal Pals strives to provide listeners with criticβ¦
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LIVE in New Orleans: A Red Cell Revolution
48:59
48:59
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We're LIVE from New Orleans, Louisiana! Listen to our live podcast panel featuring members of the sickle cell, pyruvate kinase deficiency, and thalassemia communities and leading KOL's in each field. We are proud to introduce the Red Cell Revolution! The Red Cell Revolution is an Agios patient advocacy movement that is driven by a relentless desireβ¦
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Replay: Merula & Dina Steagall: Managing Thalassemia as a Family
49:07
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FLASHBACK ALERT! #Thalassemia is a family affair. Join us in revisiting one of our favorite #ThalPal episodes βMerula & Dina Steagall: Managing Thalassemia as a Familyβ Merula, Founder of Brazilian Blood Cancer Society (ABRALE) and Thalassemia major patient, is joined by her daughter Dina as they share their familyβs journey. Merula is the Founder β¦
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A chat with our hosts, Dr. Kuo and Laurice
24:07
24:07
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On this episode, hosts Dr. Kevin Kuo and Laurice Levine take a deeper dive into their respective journeys with Thalassemia. SHOW DESCRIPTION Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by Thalassemia. Each episode, Thal Pals strives to provide lisβ¦
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Shirin Taki, Thalassemia Patient Advocate
31:33
31:33
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On this episode, hosts Dr. Kevin Kuo and Laurice Levine welcome Thalassemia patient and advocate Shirin Taki to discuss her journey with the disease as well as her experience navigating the Canadian healthcare system. SHOW DESCRIPTION Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater commuβ¦
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1
Merula & Dina Steagall: Managing Thalassemia as a Family
49:07
49:07
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Merula Steagall is a manager, mother, thalassemia major patient, creator of important social projects and, especially, an innovator. She is joined by her daughter Dina Steagall as they share their familyβs journey with thalassemia. Merula is the Founder of Brazilian Blood Cancer Society (ABRALE). https://www.abrale.org.br SHOW DESCRIPTION Thal Palsβ¦
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On this episode your host, Dr. Kevin Kuo welcomes guest host Laurice Levine as they speak with Ralph Colasanti who is the executive president of the Cooley's Anemia Foundation. For patient resources you can visit Cooleyβs Anemia website: https://www.thalassemia.org/ SHOW DESCRIPTION Thal Pals: The Alpha Beta Revolution Podcast is intended for patieβ¦
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1
Introducing Thal Pals: The Alpha Beta Revolution
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23:05
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Introducing Thal Pals: The Alpha Beta Revolution Podcast. On this episode we meet your host, Dr. Kevin Kuo. His guests are Laurice Levine and Keely Gilroy. Laurice is a patient advocate living with Thalassemia and Keely is a Thalassemia medical director from Agios Pharmaceuticals. SHOW DESCRIPTION Thal Pals: The Alpha Beta Revolution Podcast is intβ¦
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Get in touch with me via the Messenger! Just click the link and press "Get Started": http://attentionberlin.live/vizzion-chat "THE ASMR PODCAST by VIZZIONASMR provides you with high-quality ASMR (ΠΠ‘ΠΠ , ι³γγ§γ) audio content for deep relaxation. It relaxes you, helps to fall asleep faster and provides you with a better sleep! Tingles guaranteed! ASMR β¦
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Get in touch with me via the Messenger! Just click the link and press "Get Started": http://attentionberlin.live/vizzion-chat "THE ASMR PODCAST by VIZZIONASMR provides you with high-quality ASMR (ΠΠ‘ΠΠ , ι³γγ§γ) audio content for deep relaxation. It relaxes you, helps to fall asleep faster and provides you with a better sleep! Tingles guaranteed! ASMR β¦
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#287 Powerful Relaxing and Soothing Words
44:03
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Get in touch with me via the Messenger! Just click the link and press "Get Started": http://attentionberlin.live/vizzion-chat "THE ASMR PODCAST by VIZZIONASMR provides you with high-quality ASMR (ΠΠ‘ΠΠ , ι³γγ§γ) audio content for deep relaxation. It relaxes you, helps to fall asleep faster and provides you with a better sleep! Tingles guaranteed! ASMR β¦
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Get in touch with me via the Messenger! Just click the link and press "Get Started": http://attentionberlin.live/vizzion-chat "THE ASMR PODCAST by VIZZIONASMR provides you with high-quality ASMR (ΠΠ‘ΠΠ , ι³γγ§γ) audio content for deep relaxation. It relaxes you, helps to fall asleep faster and provides you with a better sleep! Tingles guaranteed! ASMR β¦
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Ep10: Iron Overload in the Heart - Part 2
15:26
15:26
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This is the final episode in this series of IRON MATTERS, our series of educational podcasts for GPs, allied health professionals and patients by some of the leading clinicians and medical researchers in the field in Australia exploring issues associated with iron overload and hereditary haemochromatosis. Here Professor David Playford, clinical carβ¦
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Get in touch with me via the Messenger! Just click the link and press "Get Started": http://attentionberlin.live/vizzion-chat "THE ASMR PODCAST by VIZZIONASMR provides you with high-quality ASMR (ΠΠ‘ΠΠ , ι³γγ§γ) audio content for deep relaxation. It relaxes you, helps to fall asleep faster and provides you with a better sleep! Tingles guaranteed! ASMR β¦
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Get in touch with me via the Messenger! Just click the link and press "Get Started": http://attentionberlin.live/vizzion-chat "THE ASMR PODCAST by VIZZIONASMR provides you with high-quality ASMR (ΠΠ‘ΠΠ , ι³γγ§γ) audio content for deep relaxation. It relaxes you, helps to fall asleep faster and provides you with a better sleep! Tingles guaranteed! ASMR β¦
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Get in touch with me via the Messenger! Just click the link and press "Get Started": http://attentionberlin.live/vizzion-chat "THE ASMR PODCAST by VIZZIONASMR provides you with high-quality ASMR (ΠΠ‘ΠΠ , ι³γγ§γ) audio content for deep relaxation. It relaxes you, helps to fall asleep faster and provides you with a better sleep! Tingles guaranteed! ASMR β¦
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Get in touch with me via the Messenger! Just click the link and press "Get Started": http://attentionberlin.live/vizzion-chat "THE ASMR PODCAST by VIZZIONASMR provides you with high-quality ASMR (ΠΠ‘ΠΠ , ι³γγ§γ) audio content for deep relaxation. It relaxes you, helps to fall asleep faster and provides you with a better sleep! Tingles guaranteed! ASMR β¦
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Ep 9: Iron Overload in the Heart - Part 1.
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Episode 9 βDetecting heart problems associated with haemochromatosisβ features Professor David Playford, clinical cardiologist and Professor & Chair of Cardiology at the University of Notre Dame, Fremantle. This is the first of two episodes with David. In the next episode he will further explore iron overload in the heart. Support the showβ¦
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Ep 8: Haemochromatosis and Other Iron Disorders with Haematologist Prof Sant-Reyn Pasricha
12:27
12:27
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Prof Pasricha is a haematologist at Royal Melbourne Hospital and scientist at the Walter & Eliza Hall Institute of Medical Research. In this he speaks about the role of hepcidin in iron regulation, iron deficiency and anaemia, iron overload and haemochromatosis, and thalassaemia. Support the showBy Haemochromatosis Australia
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Ep7: Treating haemochromatosis by venesection
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14:27
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Clinical Nurse Specialist Cindy Bryant talks about treating haemochromatosis by venesection. Support the showBy Haemochromatosis Australia
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Ep6: Haemochromatosis and the effects of iron overload on body organs
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Gastroenterologist and iron researcher Prof John Olynyk presents his second podcast in the Iron Matters series. This episode discusses the effects of iron overload on the organs of the body on the liver and pancreas. Support the showBy Haemochromatosis Australia
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#281 ASMR DOUBLE 2 CRAZY BOYS PLAYING MUSIC WITH CHIPS
40:35
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Get in touch with me via the Messenger! Just click the link and press "Get Started": http://attentionberlin.live/vizzion-chat "THE ASMR PODCAST by VIZZIONASMR provides you with high-quality ASMR (ΠΠ‘ΠΠ , ι³γγ§γ) audio content for deep relaxation. It relaxes you, helps to fall asleep faster and provides you with a better sleep! Tingles guaranteed! ASMR β¦
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Get in touch with me via the Messenger! Just click the link and press "Get Started": http://attentionberlin.live/vizzion-chat "THE ASMR PODCAST by VIZZIONASMR provides you with high-quality ASMR (ΠΠ‘ΠΠ , ι³γγ§γ) audio content for deep relaxation. It relaxes you, helps to fall asleep faster and provides you with a better sleep! Tingles guaranteed! ASMR β¦
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#279 DOUBLE MOUTH SOUNDS w/ Cassandra π€€
35:53
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#278 VIZZION EPISODE: Sunset on the Snow with Nick, Maxito
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#277 FAST TAPPING π | EARGASM for better sleep β¨
42:45
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#276 MOUTH SOUNDS DELUXE π€€ | FOR FAST SLEEP!
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Ep 5: Haemochromatosis and iron in the body with Prof John Olynyk
17:39
17:39
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Gastroenterologist and researcher Prof John Olynyk speaks about haemochromatosis, diagnosis, and new developments in research into iron in the body and health. βHaemochromatosis β¦ the grandfather of all the knowledge that relates to iron because itβs the disease that made people need to study itβ. Prof John Olynyk is Head of Gastroenterology, Fionaβ¦
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Ep4: Haemochromatosis and Arthritis with Prof Graeme Carroll
18:55
18:55
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Assoc Prof Graeme Carroll is a Consultant Physician in Rheumatology at Fremantle Hospital. WA and Associate Professor of Medicine University of Notre Dame Australia and University of Western Australia. In this podcast Graeme talks about the arthropathy associated with haemochromatosis, our current understanding of the prevalence, cause, treatment aβ¦
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Ep 3: Lifeblood's therapeutic donor program with Dr Peter Bentley
16:38
16:38
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Dr Peter Bentley, a Senior Medical Officer with Australian Red Cross Lifeblood based in Perth. His manages the therapeutic donor program for Lifeblood. He talks about the benefits of the program for people with haemochromatosis requiring venesections, the benefits for the community and how treating GPs and specialists can easily refer patients for β¦
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Ep2: Genetic screening for haemochromatosis with Professor Martin Delatycki
11:13
11:13
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Clinical geneticist Professor Martin Delatycki discusses hereditary haemochromatosis genetics and screening. He explains the current screening protocols and why haemochromatosis is an ideal candidate for wider populations screening. Prof Delatycki is the Medical Director of Victorian Clinical Genetics Services and Co-director of the Bruce Lefroy Ceβ¦
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Ep1: Diagnosing haemochromatosis in general practice with Dr Robert Menz
17:47
17:47
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Dr Robert Menz discusses diagnosis of hereditary haemochromatosis in general practice. Dr Menz is an Australian General Practitioner based in Adelaide, South Australia. He has a particular interest in Chronic Disease Management. He is the Royal Australian College of General Practitioners (RACGP) Medical Advisor for the RACGP exam, a member of the Sβ¦
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#275 π« Unwrapping and Eating Magnum Chocolate π
39:47
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#274 ASMR HEALTHY π₯¦π₯π₯π½ SNACKS & FOOD π
39:11
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#273 πππΌ ASMR Captivating Mouth Sounds Delight for Provocative ear StimulationππΌ
42:13
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#272 ASMR π€ Inaudible Robot Role Play Madness π Unintelligible Passion
33:33
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