Best Myalgic Encephalomyelitis (me Podcasts (2024)

1
ME/CFS Olympics 7:43

1d ago7:43

7:43

It says a lot about the unique and widely misunderstood challenges that ME/CFS and Long Covid patients face that there could not be an ME/CFS Olympics. Because if we tried to compete and push the physical limits of our bodies like that, all the winners would simply be dead… ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Resources 🙏 Donate t…

1
E24: Snippet - Beyond Knowledge: Unlocking Recovery Progress for ME/CFS, Fibromyalgia, POTS, MCS, PVFS or long-covid 13:31

24d ago13:31

13:31

In over a decade of helping people recover, I have found that whilst knowledge can be key, often other factors are more important. In this video, we delve into why knowledge alone isn't enough for recovery from chronic illness like ME/CFS, Fibromyalgia, POTS, MCS, PVFS (or long-covid). We uncover potential missing pieces in your journey. Discover w…

1
The Two Worlds Of Chronic Illness 3:10

20d ago3:10

3:10

No one ever sees the world of color that lives inside of me because the black void doesn’t let it out. I feel it, smell it, taste it. I exist there in every moment of my life. But the only thing anyone ever sees are the bits of dust of a broken down machine…When the world of color and light shines, this second world coughs and flounders and lays do…

1
Riding on Hope 0:23

30d ago0:23

0:23

Getting through bad days with ME/CFS, Long Covid, chronic illness, or disability. ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Resources 🙏 Donate to ME/CFS ResearchBy Whitney Dafoe

1
E23: Lynne's ME/CFS Recovery Story 1:24:25

30d ago1:24:25

1:24:25

Join us in this transformative episode as Lynne, an experienced nurse, bravely shares her journey to recovery from ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome). As a medical professional, she had been skeptical about the validity of ME/CFS diagnoses. However, Lynne's perspective shifted dramatically after facing years of debilitating…

1
Dear NHS, Don't Kill Karen Gordon 12:08

2M ago12:08

12:08

A Severe ME/CFS Patient in the UK named Karen Gordon went to the Conquest Hospital Hastings when her Jtube broke in hopes of getting a new one installed. Instead, the hospital has refused to give her a new Jtube or let her go home with Total Parenteral Nutrition (TPN), holding her hostage at the hospital for months. They have now given her an ultim…

1
Drops From The Well of Suffering: Honoring Maeve Boothby O’Neill 16:37

2M ago16:37

16:37

It is a travesty that Maeve did not receive nutrition like I received. I was just as sick as Maeve with very similar symptoms, including sensitivity to stimuli like light, sounds, voices and the company of other people in my room and like Maeve, I could not eat enough food to survive. If I was treated the way Maeve was treated, I would be dead just…

1
E22: Snippet - Is Looking For Treatments Stopping You Recovering From ME/CFS, PVFS(long-covid), Fibromyalgia & POTS 14:17

2M ago14:17

14:17

Looking for treatments to help you recover from ME/CFS, PVFS (long-covid), Fibromyalgia or POTS or related illnesses should surely be a good thing. It’s what most of us do whilst we are ill until we eventually give up or are told ‘there is not cure, so you can’t recover’. But whilst it can be key to your recovery breakthrough, it can also have sign…

1
E21: Dr Michael Lenz on treating Fibromyalgia, CFS, POTS - treating children & the connection with ADHD 1:08:59

3M ago1:08:59

1:08:59

In this episode, we sit down with Dr. Michael Lenz, a dedicated physician specializing in fibromyalgia, ME, CFS, POTS, and related illnesses. Dr. Lenz discusses his conservative approach to medications and emphasis on lifestyle medicine, particularly for children with these conditions. A notable part of the discussion delves into the common comorbi…

1
Um, hello! An update from Jess! 8:04

3M ago8:04

8:04

Um, hiiii! Firstly, I want to say a huge sorry for leaving you all in the lurch here on the That’s So Chronic podcast feed! Like I explain in this update episode, I really did not anticipate this big of a break between new episodes, hence why I didn’t let you know ahead of time! In this episode I try to explain where the heck I’ve been and how I’ve…

1
E20: Snippet - How resilient can recoveries be after ME/CFS, Fibromyalgia, POTS, MCS, PVFS (or long-covid)? 21:12

3M ago21:12

21:12

It’s finally time to share some of my health struggles during the last 6 years. It seems like a good opportunity to speak about how resilient ME/CFS, Fibromyalgia, POTS, MCS PVFS (or long-covid) recoveries can be – after all, when we recover we often can’t help but ask ….”will it last?” SHOWNOTES: https://cfsunravelled.com/episode20 **MEDICAL DISCL…

1
Homelessness Is Not a Crime! 10:52

3M ago10:52

10:52

Not having a home is not a crime! Yet after the Supreme court ruled that it was constitutional to make it illegal to sleep in public spaces, countless towns and cities are sure to follow suit in the United States and make it illegal to sleep in public spaces. (Illegal to sleep!). Sleep is a basic necessity and if you don’t have a home, you have no …

1
I Still Feel Free 3:04

5M ago3:04

3:04

I haven’t felt the wind on my back in 11 years. But I still feel free…We are not our circumstances. This physical world does not define us nor can it confine us. We are infinite beings…This year on ME/CFS awareness day, let’s acknowledge what ME/CFS has taken from us, But let’s also look around at the life we still have… ✏️ My ME/CFS Blog ❓What is …

1
ME/CFS Anthem 0:47

5M ago0:47

0:47

An anthem for ME/CFS and Long Covid patients leading up to ME/CFS Awareness Day. YOU ARE NOT ALONE. This song is a beautiful testament to our connectedness no matter our physical isolation. -> Listen to the song here

1
When Does Self Care Become Harmful? 7:25

6M ago7:25

7:25

I’m desperate to feel better. I would do anything to feel better and I spend an enormous amount of energy following routines and taking medications and supplements to try to get better. This desperation to get better is something we all face. We’re willing to try anything that we know doesn’t harm us like GET to get better. But at what point does t…

1
We Are Not Defined by their Prejudice 7:06

7M ago7:06

7:06

Laziness is not the opposite of being sick. How have we come to this place where if we show any lack of productivity we are terrified of being labelled "lazy" and therefore not legitimately sick? …how do we start to re-frame the prejudice against us? ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Resources 🙏 Donate to ME/CFS Research…

1
ME/CFS / Long Covid is an Ever Changing Journey 2:53

7M ago2:53

2:53

ME/CFS / Long Covid is an ever changing journey and we never know where it will take us. We can do the best we can and no more; After that, we must try to find as much life along the way as possible, knowing that it is fleeting like all else; It slips through our fingers the moment we try to hold onto it. But as it slips through our fingers we don’…

1
ME/CFS Research Published 13 – 19 February 2024 5:02

8M ago5:02

5:02

The weekly research round-up includes all recent publications about ME/CFS and Long Covid, which includes the key terms: Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, ME/CFS, Long Covid and Post Covid syndrome. The list is inclusive of all research published to keep our community informed, however, this does not necessarily mean we endorse t…

1
ME/CFS Research Published 6 – 12 February 2024 5:22

8M ago5:22

5:22

The weekly research round-up includes all recent publications about ME/CFS and Long Covid, which includes the key terms: Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, ME/CFS, Long Covid and Post Covid syndrome. The list is inclusive of all research published to keep our community informed, however, this does not necessarily mean we endorse t…

1
ME/CFS Research Published 30 January – 5 February 2024 5:28

8M ago5:28

5:28

The weekly research round-up includes recent publications about ME/CFS and Long Covid. We highlight studies that have particularly caught our attention.By ME Association

1
ME/CFS Research Published 23 – 29 January 2024 5:17

9M ago5:17

5:17

The weekly research round-up includes recent publications about ME/CFS and Long Covid. We highlight studies that have particularly caught our attention.By ME Association

1
ME/CFS Research Published 16 – 22 January 2024 4:01

9M ago4:01

4:01

The weekly research round-up includes recent publications about ME/CFS and Long Covid. We highlight studies that have particularly caught our attention.By ME Association

1
ME/CFS Research Published 9 – 15 January 2024 5:41

9M ago5:41

5:41

The weekly research round-up includes recent publications about ME/CFS and Long Covid. We highlight studies that have particularly caught our attention.By ME Association

1
ME/CFS Research Published 2 – 8 January 2024 5:01

9M ago5:01

5:01

The weekly research round-up includes recent publications about ME/CFS and Long Covid. We highlight studies that have particularly caught our attention.By ME Association

1
ME/CFS Research Published 26 December 2023 – 1 January 2024 6:01

10M ago6:01

6:01

The weekly research round-up includes recent publications about ME/CFS and Long Covid. We highlight studies that have particularly caught our attention.By ME Association

1
ME/CFS Research Published 12 – 18 December 2023 7:23

10M ago7:23

7:23

The weekly research round-up includes recent publications about ME/CFS and Long Covid. We highlight studies that have particularly caught our attention.By ME Association

1
ME/CFS and Long Covid Research: 5 – 11 December 2023 4:46

10M ago4:46

4:46

The weekly research round-up includes recent publications about ME/CFS and Long Covid. We highlight the studies that have particularly caught our interest and follow these with the full list of publications together with their abstracts (summaries).By ME Association

1
ME/CFS Research Published 27 November – 4 December 2023 6:56

11M ago6:56

6:56

The weekly research round-up includes recent publications about ME/CFS and Long Covid. We highlight the studies that have particularly caught our interest and follow these with the full list of publications together with their abstracts (summaries).By ME Association

1
ME/CFS Research Published 21 – 27 November 2023 5:24

11M ago5:24

5:24

The weekly research round-up includes recent publications about ME/CFS and Long Covid. We highlight the studies that have particularly caught our interest and follow these with the full list of publications together with their abstracts (summaries).By ME Association

1
ME/CFS Research Published 16 – 20 November 2023 4:08

11M ago4:08

4:08

The weekly research round-up includes recent publications about ME/CFS and Long Covid. We highlight the studies that have particularly caught our interest and follow these with the full list of publications together with their abstracts (summaries).By ME Association

1
ME/CFS Research Published 6 – 15 November 2023 5:24

11M ago5:24

5:24

The weekly research round-up includes recent publications about ME/CFS and Long Covid. We highlight the studies that have particularly caught our interest and follow these with the full list of publications together with their abstracts (summaries).By ME Association

1
ME/CFS Research Published 31 October – 6 November 2023 4:29

11M ago4:29

4:29

The weekly research round-up includes recent publications about ME/CFS and Long Covid. We highlight the studies that have particularly caught our interest and follow these with the full list of publications together with their abstracts (summaries).By ME Association

1
ME/CFS Research Published 24 – 30 October 2023 5:36

12M ago5:36

5:36

The weekly research round-up includes recent publications about ME/CFS and Long Covid. We highlight the studies that have particularly caught our interest and follow these with the full list of publications together with their abstracts (summaries).By ME Association

1
That's So: Designer $hit documentary (an interview with director Saffron Cassaday) 25:14

12M ago25:14

25:14

It’s the final Tuesday of the month which means it’s time for a That’s So episode! A chance to chat about a piece of content that’s in our That’s So Chronic world. Today, we’re chatting about the feature documentary Designer $hit directed by Saffron Cassaday. In Designer $hit, director Saffron Cassaday, who has suffered from ulcerative colitis for …

1
ME/CFS Research Published 17 – 23 October 2023 4:40

12M ago4:40

4:40

The weekly research round-up includes recent publications about ME/CFS and Long Covid. We highlight the studies that have particularly caught our interest and follow these with the full list of publications together with their abstracts (summaries).By ME Association

1
ME/CFS Research Published 10 – 16 October 2023 5:43

12M ago5:43

5:43

The weekly research round-up includes recent publications about ME/CFS and Long Covid. We highlight the studies that have particularly caught our interest and follow these with the full list of publications together with their abstracts (summaries).By ME Association

1
ME/CFS Research Published 3 – 9 October 2023 5:01

1y ago5:01

5:01

The weekly research round-up includes recent publications about ME/CFS and Long Covid. We highlight the studies that have particularly caught our interest and follow these with the full list of publications together with their abstracts (summaries).By ME Association

1
Miranda Allen & Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) 1:03:02

1y ago1:03:02

1:03:02

Happy Tuesday! When I was passing through London, UK in July I was able to sit down and chat with Miranda Allen about her diagnosis of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) In this episode, Miranda looks back with hindsight and explains where it’s possible her symptoms began, the years of not really knowing what was going on, …

1
ME/CFS Research Published 26 September – 2 October 2023 4:16

1y ago4:16

4:16

The weekly research round-up includes recent publications about ME/CFS and Long Covid. We highlight the studies that have particularly caught our interest and follow these with the full list of publications together with their abstracts (summaries).By ME Association

1
Markus Birdman & 2 Strokes and Homonymous Hemianopia 44:29

1y ago44:29

44:29

Welcome back to That’s So Chronic! Today - in the middle of the Edinburgh Festival Fringe - I was able to sit down with comedian Markus Birdman, to chat about his experience of having two strokes, as well as living with a diagnosis of homonymous hemianopia. In this episode Markus explains how it it felt for him going through stroke number one and t…

1
ME/CFS Research Published 19 - 25 September 2023 3:59

1y ago3:59

3:59

The weekly research round-up includes recent publications about ME/CFS and Long Covid. We highlight the studies that have particularly caught our interest and follow these with the full list of publications together with their abstracts (summaries).By ME Association

1
That's So: The Surgeons' Hall Museums (and the Blood & Guts Walking Tour) 17:30

1y ago17:30

17:30

Welcome back to That’s So Chronic! It’s the final Tuesday of the month which means it’s time for a That’s So episode, where we chat about something that’s in our That’s So Chronic world. Today, we’re chatting about The Surgeons’ Hall Museums and the Blood & Guts: The Twists and Turns of Edinburgh’s Medical History Walking Tour that I was able to ch…

1
ME/CFS Research Published 12 - 18 September 2023 3:47

1y ago3:47

3:47

The weekly research round-up includes recent publications about ME/CFS and Long Covid. We highlight the studies that have particularly caught our interest and follow these with the full list of publications together with their abstracts (summaries).By ME Association

1
ME/CFS Research Published 5 - 11 September 2023 5:25

1y ago5:25

5:25

The weekly research round-up includes recent publications about ME/CFS and Long Covid. We highlight the studies that have particularly caught our interest and follow these with the full list of publications together with their abstracts (summaries).By ME Association

1
Jo Prendergast & Breast Cancer 1:19:29

1y ago1:19:29

1:19:29

Welcome to That’s So Chronic!. Today I am chatting to psychiatrist, comedian, and author Dr Jo Prendergast about her diagnosis of breast cancer, as well as her latest book When Life Sucks. In this episode, Jo talks us through her breast cancer diagnosis and what happened next. We chat about the amount of decisions you have to make after a diagnosis…

1
Dr Saimun Singla & Rheumatoid Arthritis 42:32

1y ago42:32

42:32

Welcome back to That's So Chronic! Today I am joined by Dr Saimun Singla and we are discussing her diagnosis of rheumatoid arthritis as well as her work as a paediatric rheumatologist and integrative medicine physician. In this episode, Dr Saimun shares her story of working for years in rheumatology and then going through her own rheumatoid arthrit…

1
ME/CFS Research Published 22 – 28 August 2023 6:24

1y ago6:24

6:24

The weekly research round-up includes recent publications about ME/CFS and Long Covid. We highlight the studies that have particularly caught our interest and follow these with the full list of publications together with their abstracts (summaries).By ME Association

1
That's So: The D*List (with editor Olivia Shivas) 15:20

1y ago15:20

15:20

Welcome to That's So Chronic. It’s the final Tuesday of the month, which means it’s time for another That’s So episode. Today I am chatting to Olivia Shivas, the editor of The D*List - the home of disability culture in Aotearoa. The D*List is an online culture magazine that creates space for disabled people to tell their own stories through feature…

1
ME/CFS Research Published 15 – 21 August 2023 5:16

1y ago5:16

5:16

The weekly research round-up includes recent publications about ME/CFS and Long Covid. We highlight the studies that have particularly caught our interest and follow these with the full list of publications together with their abstracts (summaries).By ME Association

1
Nick Allen & Functional Neurological Disorder (FND) and Fibromyalgia 42:18

1y ago42:18

42:18

Today I am chatting to Nick Allen who is living with a diagnosis of functional neurological disorder (FND) and fibromyalgia. However, this was not always the case… In this episode Nick talks us through the long process of initially being diagnosed with primary progressive multiple sclerosis, and the lifestyle changes that he implemented to manage h…

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