show episodes
 
Living with ME/CFS and Long Covid and other Chronic Illness or Disability. Follow me while I explore the challenges, the suffering, the darkness and the light while living with a chronic illness or disability. Along the way I will share insights into how I survive, how I struggle, and how I STAY ALIVE. ❤️ ✏️ My ME/CFS Website & Blog: https://www.whitneydafoe.com/mecfs ❓What is ME/CFS? https://www.whitneydafoe.com/mecfs/whatismecfs 👤 My Story: https://www.whitneydafoe.com/mecfs/mystory 📄 ME/C ...
  continue reading
 
Artwork

1
Its Not All About ME

Its Not All About ME

Unsubscribe
Unsubscribe
Monthly
 
A guy with ME and a mic. Chat and frequent guests sharing experience of chronic illnesses such as Myalgic Encephalomyelitis and Chronic Fatigue Syndrome. @0allaboutme - get in touch to come on the show or just say hi.
  continue reading
 
This podcast is all about ME. Each week I’ll bring you short manageable episodes that cover things from living with ME, understanding it, explaining it to others and learning how to love your life with it. As somebody who lived with Myalgic Encephalomyelitis (ME) for almost 10 years, I’m passionate about offering hope and inspiration to others who are experiencing ME. I was bed-bound and wheelchair-bound with ME before finding my feet again and coming through the other side so believe me whe ...
  continue reading
 
Artwork

1
Discomfort Zone

Jason Herterich

Unsubscribe
Unsubscribe
Monthly
 
Discomfort Zone is a podcast about living with chronic illness and disability. Through interviews, conversations, and stories, each episode uncovers what it means to be chronically ill and disabled. Jason helps listeners understand that the best way to cope with the discomfort of illness is to turn towards it and laugh at it. Jason is an engineering graduate who reinvented himself as a podcaster and chronic illness/disability advocate after developing fibromyalgia, myalgic encephalomyelitis ...
  continue reading
 
If you're new to myalgic encephalomyelitis (ME), commonly referred to as chronic fatigue syndrome (CFS), we're here to tell you that you are not alone. There are millions of others like you. At #MEAction, our mission is to advocate for people with ME to raise awareness, educate, and fight for better access, better treatments, and ultimately a cure. Whether you’re new to this disease or you’ve been living with it for decades, there’s something here for you. We're your hosts, Steven Molony and ...
  continue reading
 
Sharing patient stories and discussions while having a laugh and keeping it real. A weekly podcast where performer, creator, and MS-er Jess Brien interviews people from around the world that are thriving - and sometimes only just surviving - with chronic illnesses, life changing injuries and potentially disastrous diagnoses. @thatssochronic | @jessssbrien | #ThatsSoChronic Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, ther ...
  continue reading
 
Loading …
show series
 
ME/CFS / Long Covid is an ever changing journey and we never know where it will take us. We can do the best we can and no more; After that, we must try to find as much life along the way as possible, knowing that it is fleeting like all else; It slips through our fingers the moment we try to hold onto it. But as it slips through our fingers we don’…
  continue reading
 
The weekly research round-up includes all recent publications about ME/CFS and Long Covid, which includes the key terms: Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, ME/CFS, Long Covid and Post Covid syndrome. The list is inclusive of all research published to keep our community informed, however, this does not necessarily mean we endorse t…
  continue reading
 
The weekly research round-up includes all recent publications about ME/CFS and Long Covid, which includes the key terms: Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, ME/CFS, Long Covid and Post Covid syndrome. The list is inclusive of all research published to keep our community informed, however, this does not necessarily mean we endorse t…
  continue reading
 
It’s the final Tuesday of the month which means it’s time for a That’s So episode! A chance to chat about a piece of content that’s in our That’s So Chronic world. Today, we’re chatting about the feature documentary Designer $hit directed by Saffron Cassaday. In Designer $hit, director Saffron Cassaday, who has suffered from ulcerative colitis for …
  continue reading
 
Happy Tuesday! When I was passing through London, UK in July I was able to sit down and chat with Miranda Allen about her diagnosis of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) In this episode, Miranda looks back with hindsight and explains where it’s possible her symptoms began, the years of not really knowing what was going on, …
  continue reading
 
Welcome back to That’s So Chronic! Today - in the middle of the Edinburgh Festival Fringe - I was able to sit down with comedian Markus Birdman, to chat about his experience of having two strokes, as well as living with a diagnosis of homonymous hemianopia. In this episode Markus explains how it it felt for him going through stroke number one and t…
  continue reading
 
Welcome back to That’s So Chronic! It’s the final Tuesday of the month which means it’s time for a That’s So episode, where we chat about something that’s in our That’s So Chronic world. Today, we’re chatting about The Surgeons’ Hall Museums and the Blood & Guts: The Twists and Turns of Edinburgh’s Medical History Walking Tour that I was able to ch…
  continue reading
 
Welcome to That’s So Chronic!. Today I am chatting to psychiatrist, comedian, and author Dr Jo Prendergast about her diagnosis of breast cancer, as well as her latest book When Life Sucks. In this episode, Jo talks us through her breast cancer diagnosis and what happened next. We chat about the amount of decisions you have to make after a diagnosis…
  continue reading
 
Welcome back to That's So Chronic! Today I am joined by Dr Saimun Singla and we are discussing her diagnosis of rheumatoid arthritis as well as her work as a paediatric rheumatologist and integrative medicine physician. In this episode, Dr Saimun shares her story of working for years in rheumatology and then going through her own rheumatoid arthrit…
  continue reading
 
Welcome to That's So Chronic. It’s the final Tuesday of the month, which means it’s time for another That’s So episode. Today I am chatting to Olivia Shivas, the editor of The D*List - the home of disability culture in Aotearoa. The D*List is an online culture magazine that creates space for disabled people to tell their own stories through feature…
  continue reading
 
Today I am chatting to Nick Allen who is living with a diagnosis of functional neurological disorder (FND) and fibromyalgia. However, this was not always the case… In this episode Nick talks us through the long process of initially being diagnosed with primary progressive multiple sclerosis, and the lifestyle changes that he implemented to manage h…
  continue reading
 
It’s my favourite day of the week again! Welcome back to That’s So Chronic! Today’s episode is with Audrey Zannese and we are discussing her diagnosis of multiple sclerosis (MS). In this episode Audrey opens up about how in denial she was when she first heard that her symptoms might be MS, and then the journey it took for her to make the decision t…
  continue reading
 
Welcome to That’s So Chronic! Today I am chatting to Sophie Ricketts, and she talks us through a hymenectomy surgery that she had while she was at drama school. In this episode Sophie explains the process of discovering that she had a thick hymen, which involves several people telling her “she wasn’t ready” for sex, a gut feeling that wasn’t initia…
  continue reading
 
Welcome back to That’s So Chronic! Today’s episode is with Dr Kara Wada, MD, and we are discussing her diagnosis of Sjogren’s syndrome and her work as an allergist, immunologist, and lifestyle medicine physician. In this episode Dr Kara shares her diagnosis story, as well as the symptoms that - with hindsight - are also pieces of the Sjogren's puzz…
  continue reading
 
Welcome back to That’s So Chronic. It's the final Tuesday of the month, so we take a break from regular interviews. For today’s Spotlight On episode, I’m chatting to pain researcher and sole Survivor, Dr Hayley Leake. In this episode Hayley chats about the pain research work that she is working on, her PhD, what excites her about the future of pain…
  continue reading
 
Welcome back to That’s So Chronic! Today’s episode is with Elizabeth, and we are chatting about her diagnosis of multiple sclerosis (MS). In this episode Elizabeth shares the diagnosis process that eventuated after a bout of optic neuritis, how she felt when her symptoms had a name, her management plan including diet and Natalizumab/Tysabri infusio…
  continue reading
 
Yay! It’s Tuesday! Which means a brand new episode of That’s So Chronic! Today’s episode is with Ruby Quinn, and we are chatting about her diagnosis of ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome), endometriosis, and ADHD (attention deficit hyperactivity disorder). In this episode, Ruby starts by sharing her story of her ME/CFS diagn…
  continue reading
 
Ahhhh!!!! WE’RE BACK! BRAND NEW EPISODES! Sorry for shouting but I’m SO EXCITED! Welcome back! Today’s episode is with Allie Sharples, and we are chatting about her diagnosis of chronic inflammatory demyelinating polyneuropathy (CIDP), as well as being born with a cleft lip and palate. In this episode, Allie takes us all the way back to the beginni…
  continue reading
 
Welcome to That's So Chronic (or if you're a long time listener, welcome back!) a weekly podcast where Jess Brien (@jessssbrien) interviews people from around the world who are thriving - and sometimes only just surviving - with chronic illnesses, life changing injuries, and potentially disastrous diagnoses... all while having a laugh along the way…
  continue reading
 
Loading …

Quick Reference Guide