show episodes
 
Donor Diaries is a podcast about the beauty and messiness of living organ donation. Get ready for some amazing stories about what happens when people decide to share their organs with other people, when people chose to share life. The sharing of kidneys and other organs is an incredibly fascinating topic that teaches a lot about kindness, love, and life! There are over 100,000 people on the kidney transplant waitlist today, and sadly about 13 people die each day waiting for a kidney that the ...
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Follow Neuro-Developmental Delay Therapist Emily Roper as she discusses common problems she encounters working with children with developmental delays. She takes a deep dive into things like primitive reflexes, anxiety, ADHD, Autism, brain development, pregnancy, birth and more. This podcast provides information to parents and providers alike to bring understanding and help to children with developmental delays.
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show series
 
Todays episode is all about attachment and its profound impact on human development. We are looking at how early relationships shape our understanding of the world and future relationships. We are covering some of the work of John Bowlby and Mary Ainsworth specifically their contributions to attachment theory. This theory posits that secure bonds f…
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Today episode is all about hyperactivity. This is a common complaint from the parents that walk through my doors. The term hyperactivity encompasses a variety of different symptoms and behaviors. This episode dives into some of those things and takes a look at the most common underlying physical and neurological systems that impact hyperactivity. I…
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Imagine stepping into a world where giving the gift of life is made more accessible to all. That's the transformative journey we embark on with Ruby Rorty and Rachel Watson in the latest episode of Donor Diaries, as they share the details of a program called Project Donor. Ruby, from Stephen Levitt’s Center for RISC, shares the program's genesis an…
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Today's episode is all about adoption. I work with a lot of adopted kids and they each come with their own considerations. Many social, emotional, behavioral and learning difficulties have their roots in early neurological development; the development that happens from conception through infancy. Neglect, trauma, and other adverse childhood experie…
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Imagine opening your heart to a complete stranger in one of the most profound ways possible. That's exactly what our guests, Josiah Wolfson and Kat Gordon, did when they each made the life-affirming decision to donate a kidney to someone they'd never met. Their compelling stories of self-discovery and transformation are sure to resonate deeply, as …
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Today's episode is all about my journey through NDD therapy as a teen. I'm not sure if I have mentioned it in previous episodes but before I became a therapist I went through this process myself. It is one of the things that solidified my desire to pursue this as a profession. If you are concerned about your child or teen visit my website: earlyroo…
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LJ Dong, also known as LJ the Medium, embodies resilience and determination in her journey with Nutcracker Syndrome. Despite facing significant health challenges, LJ's refusal to discard her kidney led her on a remarkable path toward organ donation advocacy. As the American Miss National Mrs. for 2024, LJ leverages her platform to raise awareness a…
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Today's episode is all about dyslexia! This episode covers a 2001 study that evaluated the physical development of children with dyslexia and found a significant problem with their physical maturity. This study indicates that dyslexia is less of a problem with the brain and more of a problem with the connection between the brain and the body. This …
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Today's episode takes a look at some of the most common retained primitive reflexes that I see. I discuss the Moro, ATNR, STNR, Spinal Galant and Palmer reflexes. Specifically what they are, what purpose they serve in infancy and how their improper development and inhibition impacts children as they age. If you have a child who struggles with emoti…
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Imagine a world where living kidney donors are compensated for their life-saving gift. A world where a severe shortage of kidneys doesn't result in the preventable deaths of over a million Americans. In this riveting dialogue, we're joined by four non-directed kidney donors - Ned Brooks, Elaine Perlman, Dr. Matt Harmody, and Cody Maynard who are th…
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Today’s episode is all about ADHD. Specifically the question of whether or not ADHD is being over diagnosed. This episode covers a brief history of the diagnosis, the different theories around the increase in ADHD diagnoses over the last few decades and a critique of our current system for helping children and adults with ADHD. In this episode I re…
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Today’s episode is all about genetics. When I talk about the connection between primitive reflexes, poor brain development and diagnoses like ADHD and Autism I often get the response: But I thought it was genetic? The quick answer is yes, there is a genetic connection between ADHD and Autism, but saying this can be very misleading. This episode exp…
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Diane Lee Reporting Live with 1 Less Kidney Diane Lee is an Emmy nominated anchor and two-time Emmy Award winning reporter with more than 20 years of broadcast news experience. Diane is currently the 7NEWS Consumer Anchor. Her exclusive reports focus on warning them about scams as well as highlighting money saving tips and investigating consumer is…
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Today’s episode is all about the history and current research on primitive reflexes. I also cover the three main organizations that offer training on primitive reflex integration and discuss specific research findings. My goal for this episode is to help parents understand what we know, suspect, and need more information on when it comes to primiti…
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Today’s episode is going to cover one of my most frequently asked question which is: Can you help my child? This episode is going to go over the history of neuro-developmental delay more recently called neuro-motor immaturity and the research on primitive reflexes and the connection between physical and mental development. I’m also going to talk ab…
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Today’s episode is the final part of our mini series on early development. This episode looks at the immediate postpartum period, the few hours after birth, and how this time period impacts our long-term neurological development. We are talking about things like delayed cord clamping, primitive reflex function and development, attachment, resuscita…
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There’s a wide range of reasons why kidney transplant is available to some, but not all. Imagine the lives that could be saved worldwide if we organized a globally inclusive kidney exchange. What could be possible if we could break down borders and share kidneys with other countries? Meet Dr. Satish Nadig, Chief of Transplant, and the Director of t…
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This is the second episode in our special series on early brain development. Today we are looking at labor and birth and how this process affects our brain long-term. Many people understand the importance of pregnancy on brain development but often skip over labor and birth and jump right into infancy. Even though labor and birth are relatively sho…
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This is the first episode in a special series on early development. This series is looking at the neurological development that is happening during pregnancy, birth and the early infancy period and how things that happen during these stages can impact the brain years down the road. This first episode is looking at conception and pregnancy. We are g…
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This episode is a crash course in brain development. We dive into how the brain develops and how early experiences change the trajectory of brain function. This is important to know if you are working with children with developmental delays like ADHD, dyslexia, sensory processing problems and Autism. Understanding brain development enables us to ad…
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Exchanging kidneys is a complicated process that involves multiple collaborations between kidney patients, living donors, transplant centers, insurance companies, airlines and more. It’s truly remarkable if you stop to think about the number of people and organizations that need to come together to make 1 paired exchange possible. We only started e…
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Today's episode is all about sensory processing problems! We are diving into the normal 5 senses: light, sound, touch, taste and smell. We are also looking at other lesser known senses such as the vestibular, propriocetive and interoceptive systems. Many children with developmental dealys struggle with one or more of these sensory systems. This epi…
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Meet Phillip Hanks, a walking miracle! Philip had his first liver transplant in 2007 and lived an active life. Then in 2019, extreme pain sent him back to the hospital where he received horrifying news. Not only did he need a new liver, but he needed a new stomach, intestines, pancreas, and kidney. Two different transplant centers turned him away b…
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This episode is all about treating primitive reflexes. I am very excited that awareness about primitive reflexes has exploded over the last few years. More and more parents and professionals are becoming aware of how they impact development and they are starting look at diagnoses like ADHD and dyslexia through this developmental lens. While this aw…
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This episode is all about Obsessive Compulsive Disorder (OCD) and the umbrella of anxiety related disorders. I work with a lot of kids who have OCD type symptoms. This episode talks about the underlying neurological systems at play and why these symptoms exist. Visit my website here to learn more.By Emily Roper
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This episode is all about preventing retained reflexes and developmental dealys. It builds on a previous episode about complications and risk factors and gives practical steps parents can take to prevent developmental delays in their future children. Resources for treating parental anxiety and other mental health problems: Follow Dr. Psych Mom's bl…
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This episode is all about the relationship between tough dads and sensitive kids. I work with a lot of highly sensitive and emotionally immature children. Parenting these kids can be particularly difficult for dads with more traditional, masculine personalities. This relationship can also be tough for moms who feel caught in the middle of the dad/c…
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This episode is an ADHD special! We take an in-depth look at what it is, how the ADHD brain works and the different neurological and physiological systems at play. We also look at some of the current theories about the cause of ADHD and I lay out an argument that most causes of ADHD are the direct result of negative early experiences and delays in …
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This episode is all about visual development and how kids learn how to control their eyes. Pretty much all of the kids I work with who struggle in school have some problems with the way they move thier eyes. Eye development happens early in the first year after birth and when this system doesn't work properly it can tank our ability to learn in sch…
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Do you ever stop to think about the effectiveness of the time and attention you put towards making a difference? We all have the power to make the world a better place, but what could be possible if we all put more thought into maximizing our personal and financial resources? Welcome to the world of Effective Altruism (EA) with non-directed kidney …
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This episode is all about the vestibular system which is arguably our body's most important sensory system. Vestibular dysfunction is very common in children with developmental delays and it impacts lots of different areas that you might not expect. Listen in to learn how the vestibular system contributes to anxiety, social problems and academic un…
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In this episode we take a look at the Asymmetrical Tonic Neck Reflex and its contribution to academic delays. This reflex is very common in children with Dyslexia and ADHD and integrating it is hugely helpful for fixing academic problems specifically reading and writing. Visit the Early Roots website to learn more. Find the link for the ATNR Schild…
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In this episode we are looking at the risk factors that contribute to retained primitive reflexes and developmental delays. We are going to dive deep into the brain development that happens during pregnancy and the early infancy stages and how these stages set the foundation for long-term brain development. If you have a child you're concerned abou…
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Have you ever wondered why some people have a powerful drive to donate a kidney or liver to a stranger, while others would never consider such a thing? Professor Abigail Marsh has spent over a decade answering this question through studies on topics such as altruism, empathy, and the depths of human nature. She answers complex questions such as: Ho…
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In 2018 Martha donated a kidney to a woman she read about in the newspaper. She co-authored a book, Kidney to Share, published by Cornell University Press, about that experience and has given presentations at more than 35 transplant clinics, medical schools, and bioethics centers on her experience as a living kidney donor. In today’s episode, we di…
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According to United Network of Organ Sharing, only 133 living donors in the entire U.S. have donated both a kidney and a portion of their liver to two different recipients. A few years back, this was very uncommon, but more recently, we have been seeing it in the news more and more. Many transplant centers won’t even entertain the idea of letting s…
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Welcome to Season 2 of Donor Diaries! To kick of season 2, we are going to jump into some basics about kidney donation- some helpful Q&A for anyone out there who may identify as donor-curious. You’ll also get a peak onto Season 2, and hear about some of our upcoming guests! Kelly Schmitt, Patty Graham and Emily Wise are not only living kidney donor…
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Welcome to Donor Diaries’ Season 1 closer! In Season 1 of Donor Diaries, we covered a range of topics. We covered how to ask somebody for a kidney, the pains and history of dialysis, how to manifest a kidney, kidney chains, living donor protections, the racial disparity that exists in our current transplant system, the economic value of a kidney, k…
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Meet donor extraordinaire Jeramy Davies. He’s not only a bone marrow expert, but he is a two-time donor, having donated both bone marrow and a kidney to the same person. This in itself is unique to have donated twice, but so is his story. Jeramy and his recipient Kelly have not only crushed her Hodgkin's Lymphoma together, but they have created a l…
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Meet Bobby McLaughlin, Tracey Hulick, Steve Wilson and Patty Graham from the Kidney Donor Athletes (KDA) who are in Tanzania right now getting ready to climb Mt Kilimanjaro with 18 other living kidney donors. The coolest part? They summit on March 10 which is World Kidney Day! KDA is a community of kidney donors who have a commitment to moving thei…
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It’s illegal to buy or sell a kidney in all countries, except Iran. But imagine if there was a waitlist of people waiting to donate a kidney, versus a waitlist of people waiting to receive a lifesaving transplant. Could this be possible if the government financially compensated kidney donors? What if we not only removed the disincentives to donate,…
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A transplant isn’t an event that happens exclusively to the organ recipient. It also has a major impact on the family of a recipient or organ donor and often results in complex situations and relationship dynamics. Carol Offen and Betsy Crais are co-authors of "The Insider's Guide to Living Kidney Donation: Everything You Need to Know If You Give (…
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Race Matters with Dr. Dinee Simpson Plainly stated, white people are four times more likely to receive a kidney transplant than an African-American people. And, Asian-Americans and Native Americans, have more than double the likelihood of receiving a kidney transplant than African-Americans. This is the case despite African-Americans having higher …
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Episode 6 features Laurie Lee’s family transplant story. Meet Laurie’s dad, Dan Dickinson, who is not only a liver transplant recipient, but Laurie’s partner in a decade’s worth of transplant initiatives. This dynamic duo will interview each other to bring you a touching transplant story that started over 20 years ago when Dan passed out on a plane…
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Episode 5 comes to you from a giant porch swing on Martha’s Vineyard, where host Laurie Lee is spending the weekend with over a dozen living kidney donors and living kidney donor advocates from the National Kidney Donation Organization. Meet Cody Maynard, Steve Wilson, and Terri Thede, all non-directed kidney donors from different parts of the coun…
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Join Laurie Lee and Ned Brooks as they discuss kidney chains, lightning strikes, Freakonomics, and kidney vouchers! Ned Brooks is a retired businessman who donated his kidney as a non-directed donor in 2015, at the age of 65, for the purpose of starting a kidney chain of three transplants. His kidney went to a young mother in Colorado. Ned was so t…
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In most cases, when someone steps forward as a living donor, nobody actually asks them to donate a kidney. Usually, the donor hears the story of someone needing a kidney and makes the decision to donate without being asked. The Living Kidney Donors Network (LKDN) is a non-profit 501(c)3 organization established in 2007 by Harvey Mysel whose primary…
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Who shall live? Meet senior transplant coordinator Doug Penrod. Each of our podcasts feature either a living donor, or a transplant expert. Doug is both an expert and a living donor which makes him the first Donor Diaries Double Dipper! Join Doug and Laurie as they discuss the controversial aspects of dialysis in America and what is being done to e…
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