Best Postural Orthostatic Tachycardia Syndrome (pots Podcasts (2024)

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Guests Gary and Karen, discuss their personal journey and setting up a local Long Covid support group 39:09

1h ago39:09

39:09

Send us a Text Message. In this episode of the podcast I am grateful to speak with Gary and Karen, they talk with me openly about their acute and Long Covid journey as a married couple. We discuss how long covid impacts life and "the person we once was", Karen reads an impacting piece she wrote through a creative writing group titled "The goldfish …

1
E20: Snippet - How resilient can recoveries be after ME/CFS, Fibromyalgia, POTS, MCS, PVFS (or long-covid)? 21:12

4d ago21:12

21:12

It’s finally time to share some of my health struggles during the last 6 years. It seems like a good opportunity to speak about how resilient ME/CFS, Fibromyalgia, POTS, MCS PVFS (or long-covid) recoveries can be – after all, when we recover we often can’t help but ask ….”will it last?” SHOWNOTES: https://cfsunravelled.com/episode20…

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The pandemic, the government and the general election 39:04

14d ago39:04

39:04

Send us a Text Message. In this episode of the podcast, I have returning guest Rachel Hext. Rachel and I talk ahead of the UK general election, we discuss the floors, failings and ongoing issues around the pandemic, clean air and PPE. Rachel talks about her advocacy work including being part of media interviews and Panorama, and specifically Keywor…

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Four years later! 29:11

29d ago29:11

29:11

Send us a Text Message. In this episode of the podcast, I talk about reaching the 4 year mark of living with Long Covid. I don't like to acknowledge this as an anniversary but I wanted to acknowledge the time that has passed, and what I have learnt along the way. It is strange how 4 years is such a long time, and in one way it has felt like the lon…

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Season 4 Wrap: Reading Your Comments 5:58

1M ago5:58

5:58

Welcome back, every Bendy Body! In this special episode, I wrap up season four and share exciting plans for season five. Join me as I reflect on our journey, from focusing on high-risk populations like dancers and gymnasts to diving deep into medical topics. Listen in for gratitude-filled shoutouts from our wonderful listeners as I read their heart…

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101. Breaking the Vicious Cycle of Chronic Illness with Ashok Gupta 59:49

1M ago59:49

59:49

By Dr. Linda Bluestein

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Guest; A. K. Davidson - Poetry for life and other chronic conditions 37:58

1M ago37:58

37:58

Send us a Text Message. On this episode of the podcast I chat to freelance writer and editor A. K. Davidson. We talk about her book; Poetry for life and other chronic conditions, which is due out on the 6th June, the link to pre order the book can be found below. Anna talks about her journey and experiences with acute and Long Covid, and how she no…

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Milestones and Reflections: 100 Episodes of Bendy Bodies with Linda Bluestein, MD 1:18:42

2M ago1:18:42

1:18:42

By Dr. Linda Bluestein

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99. From News Anchor to Advocate: A POTS and EDS Journey with Summer Dashe 58:17

2M ago58:17

58:17

Summer Dashe, a former news anchor and advocate for the chronically ill, shares her POTS and EDS journey. She covers how she manages her symptoms in everyday life and the challenges of getting diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome) and EDS (Ehlers-Danlos Syndrome). #dysautonomia #ChronicIllness #POTSAwareness Takeaways Gett…

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Guests; Jess and Ally talk about the Turnto app for Cerebral Palsy and the upcoming app for - Long Covid and MECFS 37:54

2M ago37:54

37:54

Send us a Text Message. In this episode of the podcast I talk with Jess, the founder of the Turnto app, and Ally from Turnto Long Covid. Jess shares her inspiration for the Turnto app and her personal journey with her son who has a rare form of cerebral palsy, and the challenges navigating health care services and trying to find treatment and suppo…

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98. Environmental Triggers of Mast Cell Disease with Tania Dempsey, MD 1:15:15

2M ago1:15:15

1:15:15

By Dr. Linda Bluestein

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97. Learning to Spot the Signs of Ehlers-Danlos Syndromes with Guest Host, Kate Colbert 1:04:47

2M ago1:04:47

1:04:47

In this special “EDS Awareness Month” episode of the Bendy Bodies Podcast, founder Dr. Linda Bluestein and guest host Kate Colbert discuss how everyone can learn to spot the signs of Ehlers-Danlos Syndromes. Dr. Bluestein emphasizes the importance of EDS awareness, as many people are still not getting the evaluations and care they need. She also de…

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Alexander Taylor - Creating a safe space 43:03

3M ago43:03

43:03

Send us a Text Message. In today's episode of the podcast I talk with my son Alexander. Alexander and I were talking some time ago, and he explained to me this concept of "safe space" which he had been thinking about. He explained he was developing and applying this to everyday life, but specifically to the salon he works in. He currently works at …

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96. Coping with Dance Injuries and Career Transitions with Chelsea Pierotti, PhD and Guest Cohost, Jennifer Milner 42:19

3M ago42:19

42:19

In this episode, Dr. Chelsea Pierotti discusses coping with dance injuries and transitions, both from a physical and psychological perspective. She explains that the way dancers appraise their injuries and their emotional response to them can greatly impact their coping mechanisms. Dr. Pierotti emphasizes the importance of shifting the mindset from…

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As requested....My experience on using a fitted Vagus nerve stimulator! 27:40

3M ago27:40

27:40

Send us a Text Message. As requested by those of you who follow me on social media, in this episode of the podcast I am sharing my experience so far, of using a fitted vagus nerve stimulator (VNS). I have aimed to answer all of the questions you guys asked me. I have given some information on the VNS, how it is fitted, what it does and how I am fin…

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95. Pain Care Redefined: Non-Drug Therapies for Pain Relief with Heather Tick, MD 1:40:10

3M ago1:40:10

1:40:10

Dr. Heather Tick, a renowned pain expert, discusses non-drug therapies for pain relief; applying the principles of integrative medicine for comprehensive pain care. She emphasizes the need for education and understanding of pain neuroscience to empower patients. Dr. Tick also highlights the significance of nutrition in reducing chronic pain and inf…

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94. Support and Bracing for Hypermobile Joints with Susan Chalela, MPT, and Guest Cohost, Scott Borjeson 1:05:27

3M ago1:05:27

1:05:27

In this Bendy Bodies with the Hypermobility MD podcast, Susan Chalela, MPT discusses support and bracing for hypermobile joints. She shares how her personal and professional experience with joint hypermobility led her to develop the Finding Functional Foundations approach which is being taught as part of The Ehlers-Danlos Society EDS ECHO program. …

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NHS court hearing update with Kevin Digby and Rachel Hext 40:05

4M ago40:05

40:05

Send us a Text Message. In this episode of the podcast I talk with Kevin Digby and Rachel Hext following the High court hearing on the 6th March 2024. Kevin is a partner at GA Solicitors and is representing nearly 70 healthcare workers with Long Covid taking the NHS and other employers to court. Many healthcare workers are living with the disabling…

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93. Unveiling Taming the Zebra: A Discussion with Physical Therapists Patricia Stott and Heather Purdin 59:22

4M ago59:22

59:22

This episode centers around unveiling 'Taming the Zebra', a book co-authored by physical therapists, Dr. Patty Stott and Heather Purdin. The book aims to fill a void in understanding and provide therapists with the knowledge to effectively work with patients with hypermobility spectrum disorders (HSD) and Ehlers-Danlos Syndromes (EDS). It covers th…

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92. Empowering Zebra Warriors: THE Guide to Effective Physical Therapy for EDS and HSD with Lilian Holm, DPT 1:06:33

5M ago1:06:33

1:06:33

In this Bendy Bodies podcast episode, Dr. Lillian Holm discusses effective physical therapy for EDS and HSD and the importance of correcting function to achieve pain relief and tolerance for exercise. She explains why physical therapy may not always lead to the expected outcome, emphasizing the need for specialized therapists and individualized tre…

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Professor Louise Cummings and Kerry Davies; research, speech, language and cognitive communication disorders in Long Covid 38:42

5M ago38:42

38:42

Send us a Text Message. In this episode of the podcast, I am grateful to have two fantastic guests join me, Professor Louise Cummings is a professor at the Hong Kong polytechnic university, she conducts research on language and communication disorders and is the author and editor of over 20 books in this area. Kerry Davies is a returning guest, a f…

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91. Hand Problems in EDS with Corinne McLees, OT and Hand Coach 1:23:30

5M ago1:23:30

1:23:30

In this episode, Dr. Linda Bluestein and Corinne McLees discuss hand problems in EDS including pain, weakness, and injuries. This conversation covers various topics related to hand problems, including ring splints, hand exercises, avoiding strain and hyperextension, tips for traveling, challenges of the medical system for chronic pain, hand pain wi…

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90. Decoding Brain Fog: Expert Insights with Ilene Ruhoy, MD, PhD 48:38

5M ago48:38

48:38

In this episode, Dr. Linda Bluestein interviews Dr. Ilene Ruhoy about causes of brain fog, as well as its relationship to various conditions such as mast cell activation syndrome, craniocervical instability, dysautonomia, and CSF leaks. She explains how these conditions contribute to cognitive dysfunction and the importance of identifying underlyin…

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Q&A with Kevin Digby GA Solicitors 35:12

5M ago35:12

35:12

Send us a Text Message. Over the last couple of weeks you may have seen in the news, Dr Fearnley and the group she co-founded Long Covid Doctors for action; If not, these are a group of doctors who have come together to take action against the NHS negligent work place exposure. They are being represented by Bond Turner. Today, I am fortunate to be …

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89. Conquering the Sleep Struggle with Roger Seheult, MD 1:30:57

5M ago1:30:57

1:30:57

In this episode, Dr. Linda Bluestein interviews Dr. Roger Seheult about the importance of sleep for people with chronic illness, chronic pain, and joint hypermobility. Dr Seheult, a quadruple board-certified physician with expertise in sleep medicine, discusses various topics related to sleep, including the circadian rhythm, the impact of light on …

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88. Service Dogs and Disability Rights with Tiffany Lee, JD 1:08:57

6M ago1:08:57

1:08:57

In this episode, Professor Tiffany Lee is interviewed about service dogs and disability rights and accommodations. They discuss the Americans with Disabilities Act, the definition of disability, and disability benefits. They also explore reasonable accommodations in the workplace and education settings, as well as the challenges and advocacy involv…

1
Invisible? but you can see and hear me! 21:49

6M ago21:49

21:49

Send us a Text Message. On this episode of the podcast I discuss invisible disability, and how a Ted talk I recently had sent to my inbox, had such an impact on me. I watched the Ted talk and could relate to Dr Amrita Sen Mutherjee experience of living with her own invisible disability. I resonated with her experience of having her condition diagno…

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87. Disordered Eating in Dance with Josh Spell, LICSW, and Guest Co-Host Jennifer Milner 48:05

6M ago48:05

48:05

In this episode, psychologist Josh Spell discusses disordered eating in dance. Josh shares insights into the coping mechanisms behind eating disorders and offers advice for directors, teachers, and friends who suspect someone may be struggling with an eating disorder. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. YOUR guest co…

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86. The Unfair EDS Journey with Amanda Cassil, PhD 1:07:09

6M ago1:07:09

1:07:09

In this episode, psychologist Dr. Amanda Cassil discusses the unfair EDS journey (Ehlers-Danlos Syndromes) and provides strategies for effectively communicating with healthcare providers. Dr. Cassil provides valuable insights and tools for navigating the healthcare system and improving the quality of life for individuals with chronic illnesses. In …

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Starting a new year 2024; not everything is perfect or planned 29:39

6M ago29:39

29:39

Send us a Text Message. Happy new year to everyone, this is the first podcast of 2024 and I will be honest it has no structure at all, but then that was the point! I wanted to talk today about how not everything is or can be structured, how the general consensus is "new year new me", but that is not always realistic and just becomes an added pressu…

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85. Making a MCAS Documentary with Drs. Weinstock, Dempsey, Bluestein, Afrin, Kinsella & Jill Brook, MA 57:38

6M ago57:38

57:38

In this Bendy Bodies with the Hypermobility MD podcast episode, making a MCAS documentary is discussed. Distinguished participants in this collaborative effort include Dr. Leonard Weinstock, Dr. Larry Afrin, Dr. Tania Dempsey, Dr. Laurence Kinsella, and Dr. Linda Bluestein, alongside dedicated patient advocate Jill Brook. YOUR host, as always, is D…

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84. Slipping Rib Surgery in EDS with Adam Hansen, MD 1:26:15

6M ago1:26:15

1:26:15

In this episode, join thoracic surgeon and chest wall reconstruction expert Adam Hansen, MD, to learn about slipping rib surgery in EDS. Well known for his innovative surgeries for slipping rib syndrome (SRS), Dr Hansen has treated close to 1000 SRS patients. Many of his patients are challenged with Ehlers-Danlos Syndrome and other skeletal hypermo…

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Postural Orthostatic Tachycardia Syndrome (pots Podcasts

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