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Connective tissue disorders, like Ehlers-Danlos Syndromes (EDS), have far-reaching consequences. Multi-systemic symptoms affect quality of life -- with pain, frequent injury, joints “giving way," fatigue, headache, gastrointestinal problems, and insomnia being common. Welcome to Bendy Bodies with the Hypermobility MD, with your host and founder, Linda Bluestein, MD. Learn from specialists with diverse areas of medical and scientific expertise. Conversations cover topics relevant to everyone ...
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This podcast aims to raise awareness of long covid, provide a platform of support, education and the lived experience.My name is Julie, I am a registered nurse in the UK. I became unwell with Covid in May 2020 while working on the front line, during the first wave of the pandemic. Subsequently I live with long covid and POTS ( postural orthostatic tachycardia syndrome). I would like to share my journey and lived experience, the symptoms and how each impacts daily life. I aim to not only cons ...
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Discomfort Zone

Jason Herterich

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Discomfort Zone is a podcast about living with chronic illness and disability. Through interviews, conversations, and stories, each episode uncovers what it means to be chronically ill and disabled. Jason helps listeners understand that the best way to cope with the discomfort of illness is to turn towards it and laugh at it. Jason is an engineering graduate who reinvented himself as a podcaster and chronic illness/disability advocate after developing fibromyalgia, myalgic encephalomyelitis ...
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LAUNCHING SPRING 2024 --------------- Welcome to the dys-FUNCTIONAL podcast, where we discuss ways to function with Dysautonomia! Dysautonomia is an umbrella term for a bunch of different conditions that all cause your automatic body functions such as breathing, heart rate, blood pressure, digestion and so on to not work correctly. Here, we bring doctors, practitioners, caregivers, autonomic experts, and Dysautonomia warriors to the mic to discuss tips, strategies, the latest research, treat ...
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As requested by those of you who follow me on social media, in this episode of the podcast I am sharing my experience so far, of using a fitted vagus nerve stimulator (VNS). I have aimed to answer all of the questions you guys asked me. I have given some information on the VNS, how it is fitted, what it does and how I am finding it at this point, i…
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Dr. Heather Tick, a renowned pain expert, discusses non-drug therapies for pain relief; applying the principles of integrative medicine for comprehensive pain care. She emphasizes the need for education and understanding of pain neuroscience to empower patients. Dr. Tick also highlights the significance of nutrition in reducing chronic pain and inf…
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In this Bendy Bodies with the Hypermobility MD podcast, Susan Chalela, MPT discusses support and bracing for hypermobile joints. She shares how her personal and professional experience with joint hypermobility led her to develop the Finding Functional Foundations approach which is being taught as part of The Ehlers-Danlos Society EDS ECHO program. …
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In this episode of the podcast I talk with Kevin Digby and Rachel Hext following the High court hearing on the 6th March 2024. Kevin is a partner at GA Solicitors and is representing nearly 70 healthcare workers with Long Covid taking the NHS and other employers to court. Many healthcare workers are living with the disabling consequences of Long Co…
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This episode centers around unveiling 'Taming the Zebra', a book co-authored by physical therapists, Dr. Patty Stott and Heather Purdin. The book aims to fill a void in understanding and provide therapists with the knowledge to effectively work with patients with hypermobility spectrum disorders (HSD) and Ehlers-Danlos Syndromes (EDS). It covers th…
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In this Bendy Bodies podcast episode, Dr. Lillian Holm discusses effective physical therapy for EDS and HSD and the importance of correcting function to achieve pain relief and tolerance for exercise. She explains why physical therapy may not always lead to the expected outcome, emphasizing the need for specialized therapists and individualized tre…
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In this episode of the podcast, I am grateful to have two fantastic guests join me, Professor Louise Cummings is a professor at the Hong Kong polytechnic university, she conducts research on language and communication disorders and is the author and editor of over 20 books in this area. Kerry Davies is a returning guest, a fellow advocate and nurse…
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In this episode, Dr. Linda Bluestein and Corinne McLees discuss hand problems in EDS including pain, weakness, and injuries. This conversation covers various topics related to hand problems, including ring splints, hand exercises, avoiding strain and hyperextension, tips for traveling, challenges of the medical system for chronic pain, hand pain wi…
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In this episode, Dr. Linda Bluestein interviews Dr. Ilene Ruhoy about causes of brain fog, as well as its relationship to various conditions such as mast cell activation syndrome, craniocervical instability, dysautonomia, and CSF leaks. She explains how these conditions contribute to cognitive dysfunction and the importance of identifying underlyin…
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Over the last couple of weeks you may have seen in the news, Dr Fearnley and the group she co-founded Long Covid Doctors for action; If not, these are a group of doctors who have come together to take action against the NHS negligent work place exposure. They are being represented by Bond Turner. Today, I am fortunate to be able to talk with Kevin …
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In this episode, Dr. Linda Bluestein interviews Dr. Roger Seheult about the importance of sleep for people with chronic illness, chronic pain, and joint hypermobility. Dr Seheult, a quadruple board-certified physician with expertise in sleep medicine, discusses various topics related to sleep, including the circadian rhythm, the impact of light on …
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In this episode, Professor Tiffany Lee is interviewed about service dogs and disability rights and accommodations. They discuss the Americans with Disabilities Act, the definition of disability, and disability benefits. They also explore reasonable accommodations in the workplace and education settings, as well as the challenges and advocacy involv…
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On this episode of the podcast I discuss invisible disability, and how a Ted talk I recently had sent to my inbox, had such an impact on me. I watched the Ted talk and could relate to Dr Amrita Sen Mutherjee experience of living with her own invisible disability. I resonated with her experience of having her condition diagnosed, and the subsequent …
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In this episode, psychologist Josh Spell discusses disordered eating in dance. Josh shares insights into the coping mechanisms behind eating disorders and offers advice for directors, teachers, and friends who suspect someone may be struggling with an eating disorder. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. YOUR guest co…
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In this episode, psychologist Dr. Amanda Cassil discusses the unfair EDS journey (Ehlers-Danlos Syndromes) and provides strategies for effectively communicating with healthcare providers. Dr. Cassil provides valuable insights and tools for navigating the healthcare system and improving the quality of life for individuals with chronic illnesses. In …
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Happy new year to everyone, this is the first podcast of 2024 and I will be honest it has no structure at all, but then that was the point! I wanted to talk today about how not everything is or can be structured, how the general consensus is "new year new me", but that is not always realistic and just becomes an added pressure and expectation. I ex…
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In this Bendy Bodies with the Hypermobility MD podcast episode, making a MCAS documentary is discussed. Distinguished participants in this collaborative effort include Dr. Leonard Weinstock, Dr. Larry Afrin, Dr. Tania Dempsey, Dr. Laurence Kinsella, and Dr. Linda Bluestein, alongside dedicated patient advocate Jill Brook. YOUR host, as always, is D…
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In this episode, join thoracic surgeon and chest wall reconstruction expert Adam Hansen, MD, to learn about slipping rib surgery in EDS. Well known for his innovative surgeries for slipping rib syndrome (SRS), Dr Hansen has treated close to 1000 SRS patients. Many of his patients are challenged with Ehlers-Danlos Syndrome and other skeletal hypermo…
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It is Christmas Eve 2023 and on this episode of the podcast I talk about creating healthy boundaries. What are healthy boundaries? how can we set and manage healthy boundaries in our lives? I discuss how important healthy boundaries are to support our health and wellbeing. How setting boundaries support open, honest and healthy relationships. I app…
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In this episode, YOUR guest is Jill Miller, author of the book 'Body by Breath: The Science and Practice of Physical and Emotional Resilience.' Jill has 30 years of corrective movement expertise that forges links between the worlds of yoga, massage, athletics, and pain management. Her signature self-care fitness programs, Yoga Tune Up® and The Roll…
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In this episode, YOUR guest is Colin Halverson, PhD. He received his Ph.D. in linguistic and medical anthropology from the University of Chicago, where he studied communication issues in medical genetics, based on fieldwork at Mayo Clinic. At Chicago, he also completed a fellowship in clinical ethics, and then a postdoctoral fellowship in medical e…
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On this episode of the podcast I chat with Jo Bellingham, charity manager for POTS UK. Jo and I discuss the POTS UK charity and Jo explains what the charity does and how it supports people who are living with POTS. We discuss the treatment options for POTS which includes medications and lifestyle changes. POTS UK have a website which is full of evi…
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In this episode, YOUR guest is Lisa Ralston, a physical therapist with over 30 years of experience in orthopedics, joint hypermobility, foot pain, and sports medicine. Since 2009, she has traveled internationally treating Team USA Olympians and World level figure skaters. Lisa was the physical therapist for Team USA figure skating for the 2022 Wint…
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In this episode, YOUR guest is Dacre Knight, MD. Dr. Knight established a specialty clinic for treating patients with hypermobility syndromes including hypermobile Ehlers-Danlos Syndrome (hEDS) and hypermobility syndrome disorder (HSD) at Mayo Clinic Jacksonville, Florida in 2019. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. …
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On this podcast I talk about anxiety and depression, the gaslighting, mental health and the autonomic nervous system. In this episode I discuss the importance of feeling able to talk about anxiety and depression and how this has an effect on our lives. I discuss how important mental health is, how it should not be made taboo or minimised. I talk ab…
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In this episode, YOUR guest is gastroenterologist Leonard Weinstock, MD, author of over 150 peer-reviewed journal articles. His extensive research on MCAS (Mast Cell Activation Syndrome) and diseases of the esophagus, stomach, small intestine, and colon has been presented at national and international conferences. He is actively researching the con…
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On this episode of the podcast I am talking with Jo Thomas personalised coach. Jo and I talk about holistic health and wellbeing, the importance of the medical model interlinked with emotional and mental health support along with therapies to achieve personal equilibrium. Jo explains how the autonomic nervous system is effected and how this impacts…
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In this episode, YOUR guest is Brianna Cardenas, DMSC, PA-C, ATC and the founder of Healed and Empowered. Brianna courageously shares her own personal journey with Ehlers-Danlos Syndrome (EDS), cervical instability, spinal CSF leak, and dysautonomia, shedding light on the mistreatments she endured - both as a patient and a healthcare professional. …
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In this episode, YOUR guest is neurosurgeon, Paolo Bolognese, MD, founder of the Chiari Neurosurgical Center in New York. Dr. Bolognese is also on the Board of Directors of the American Syringomyelia & Chiari Alliance Project, Inc. (ASAP), on the Scientific Education and Advisory Board of the Chiari Syringomyelia Foundation (CSF), and is a member o…
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This is episode 80! I am so pleased to have my fellow LCNMUK (Long Covid nurses and midwives UK) colleague and friend Kerry join me in this special episode. I am sorry the break I took turned into a longer one then I had intended, but as I am sure you understand that is the reality of living with Long Covid or any long term condition and elements o…
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Welcome to the dys-FUNCTIONAL podcast, where we discuss how to function with Dysautonomia! Dysautonomia is an umbrella term for a bunch of different conditions that all cause your automatic body functions such as breathing, heart rate, blood pressure, blood sugar, digestion and so on to not work correctly. Each week, we bring doctors, practitioners…
  continue reading
 
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