Discover the extraordinary journey of living with an undiagnosed rare disease on Rare Matters Podcast. Join us as we empower, educate, and uplift each other.
…
continue reading
I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because ea ...
…
continue reading
Hypertrophic Cardiomyopathy (HCM) is the most common form of genetic heart disease and can affect people of any age yet is often undiagnosed. Learn more about HCM in this podcast series to discuss its impact with your patients.
…
continue reading
Hi! I'm Christine Pechstein, an undiagnosed Chronic Disease Life Management Engineer. I've been living with chronic disease for close to a decade now. I almost quit everything as my life changed mentally and physically. But as a former Author, Speaker, Life Management Educator -the list went on- I wondered . . . how do I survive and thrive with my new normal? My AHA moment: Undiagnosed disease and disability teach me to create a life built upon extreme prioritizing, minimizing tasks, finding ...
…
continue reading
Please join host, thyroid patient and expert, McCall McPherson to lightheartedly, yet thoroughly discuss thyroid disease with some of the most advanced, innovative physicians, educators, bloggers, thyroid thrivers and advocates available. We are on a mission to ensure that no one ever goes undiagnosed and/or under-treated and that all are aware of the intricacies that involve living life to the fullest with thyroid disease. United and informed, we will change the awareness, perception, diagn ...
…
continue reading
The official podcast of UAB Medicine, moving medicine forward.
…
continue reading
In the US alone, 100 million people suffer from chronic pain. Worldwide, 1.5 billion people are afflicted with it. According to the American Academy of Pain Medicine, it affects more Americans than diabetes, heart disease and cancer combined. Chronic pain forces people to change jobs, or stop working completely. It can cause depression and anxiety, and it can make daily life nearly impossible. I am a sufferer of chronic pain and this podcast grew out of my pursuit of a diagnosis. This is my ...
…
continue reading
At the Global Liver Institute, we believe it all starts with a patient. What happens when a liver patient, one of the ½ billion people living with conditions that often go undiagnosed, untreated, or misdiagnosed, mistreated, and stigmatized, brings the challenges of liver patients front and center? And what happens when a patient then leads a discussion with world experts in policy, research, clinical care, and wellness on ways to overcome these challenges? GLI LIVE started in March 2020, as ...
…
continue reading
Welcome to Fempower Health—where empowering women through every stage of life isn't just our mission; it's our passion. Fempower Health is a beacon for women navigating the complex world of healthcare, providing a supportive platform where your voice is heard and your concerns are addressed with the compassion and understanding you deserve. Our podcast, a central hub for empowering information, is dedicated to women who find themselves on an exhausting quest for answers to their health quest ...
…
continue reading
Minds on Mushrooms is a podcast dedicated to normalizing and de-stigmatizing psychedelic plant medicine for mental health and addiction. Our goal is to create a safe space for anyone curious about the benefits of psychedelic plant medicine for positive mental health transformation. You’ll hear first hand from those who have used plant medicine to combat: PTSD, addiction, depression, anxiety, and much more! Each week, host Maggie Kirkwood welcomes a new guest from the psychedelic universe. Gu ...
…
continue reading
…
continue reading
Autoimmune Community Voices podcast features conversations with the diverse autoimmune community. This is a podcast of the Autoimmune Community Institute - acicommunity.org
…
continue reading
Bone disorders such as osteoporosis are silent diseases that most often affect women. Basma Abdulhadi, M.D., explains the importance of screening women over 65 (as well as those with other risk factors) to identify bone density loss and take steps to prevent dangerous fractures. Learn more about the DEXA scan, which helps doctors establish a patien…
…
continue reading
1
Ovaries, the Brain, and Aging: A Longevity Connection | Dr. Jennifer Garrison
42:54
42:54
Play later
Play later
Lists
Like
Liked
42:54
Originally Released October 24, 2023 The ovaries play a key role in overall health, not just reproduction. More scientific findings are revealing that the ovaries even influence mood, behavior, and longevity. In this episode, Dr. Jennifer Garrison from the Buck Institute for Research on Aging explains the intricate relationship between the brain an…
…
continue reading
In this episode, Claire Parker, a pediatric nurse practitioner, discusses the results of a study that examined the prevalence of anxiety and depression among adolescents with pediatric pulmonary hypertension. The project aimed to incorporate mental health screening into the standard care for PH patients, similar to what is done for cystic fibrosis …
…
continue reading
1
Redefining Motherhood: Perspectives from Women without Kids | Ruby Warrington
46:17
46:17
Play later
Play later
Lists
Like
Liked
46:17
Originally published March 28, 2023 In this honest and moving episode, author Ruby Warrington joins Fempower Health to discuss her new book, Women Without Kids. We cover all topics from childless couples who don’t want children to women who can’t have children even though it’s their deepest desire. Ruby shares her experiences writing such an import…
…
continue reading
Tina Proulx was diagnosed with pulmonary hypertension at the age of 19. She experienced difficulty breathing and chest pain, leading to a diagnosis of chronic thromboembolic pulmonary hypertension (CTEPH), a condition caused by blood clots in the lungs. Tina eventually underwent transplant and celebrated eight years post-transplant, surpassing the …
…
continue reading
1
Deep Dive into Psilocybin Therapy: An Interview with Dr. JJ Pursell
53:22
53:22
Play later
Play later
Lists
Like
Liked
53:22
Hello Friends! I had the pleasure of interviewing Dr. J.J. Purcell, a super-talented expert in the field of plant medicine research. Our conversation dives deep into the profound impact psilocybin has on therapeutic healing, exploring its biochemistry and theories behind it's effects on the brain. Dr. Purcell, has both extensive credentials and yea…
…
continue reading
1
LISTEN AGAIN: Could Your Undiagnosed Symptoms be a Thyroid Condition? | Denise Roguz
31:30
31:30
Play later
Play later
Lists
Like
Liked
31:30
Originally published January 25, 2021 Whether you know you have a thyroid condition or have symptoms you can't seem to find the right answers to resolve them, this episode is for you. Denise Roguz is the co-founder, owner, and operator of ThyroidChange. It is a collaborative network, health information website, and social media campaign. It unites …
…
continue reading
Marilyn Hanft, a CTEPH patient, shares her experience with the condition. In 2011, she initially mistook her symptoms for asthma but later discovered she had clots in her lungs. Despite her health challenges, she remains determined to live life to the fullest. Hanft discusses her love for sailing and her current plan for writing a book about her sa…
…
continue reading
1
Debunking PCOS Misconceptions | Dr. Jerilynn Prior
43:34
43:34
Play later
Play later
Lists
Like
Liked
43:34
Originally Released April 5, 2022 PCOS impacts 1 in 10 women yet it is still underdiagnosed and misdiagnosed. Dr. Jerilynn Prior, of the Centre for Menstrual Cycle and Ovulation Research (CeMCOR), is a Professor of Endocrinology and Metabolism at the University of British Columbia, with 40 years experience in women’s health. She brings an interesti…
…
continue reading
Scott Fleetwood, a former pulmonary hypertension patient from Buffalo, New York, shares his journey with rare diseases. He initially experienced shortness of breath while playing hockey and was later diagnosed with pulmonary hypertension and scleroderma. Scott received a double lung transplant in 2017. He discusses the initial fear he felt upon lea…
…
continue reading
1
Cracking the Code of Vaginal Health: An Expert's Take on the Microbiome | Dr. Caroline Mitchell
43:56
43:56
Play later
Play later
Lists
Like
Liked
43:56
Originally published March 12, 2024 Learn how your vaginal flora and gut microbiome contribute to your reproductive health. Dr. Caroline Mitchell shares her expertise and research on this important but overlooked topic. Episode Summary In this episode, we take an in-depth look at the delicate balance of the vaginal microbiome. Dr. Caroline Mitchell…
…
continue reading
In this episode, Dr. Robert Frantz, a cardiologist at the Mayo Clinic, discusses current and upcoming clinical research in pulmonary arterial hypertension (PAH). He emphasizes the low participation rate of PAH patients in clinical trials and encourages patients to consider participating, as it not only benefits themselves but also helps advance med…
…
continue reading
1
Hormonal Birth Control and Brain Health: A Discussion | Sarah E. Hill, PhD
59:13
59:13
Play later
Play later
Lists
Like
Liked
59:13
Originally published October 3, 2023 Dr. Sarah E. Hill, PhD is a research psychologist and expert in the effects of birth control on women’s lives. She is the author of the book, "This is Your Brain on Birth Control" and has dedicated her research to uncovering the science behind hormonal birth control and its potential impacts. In this episode, Dr…
…
continue reading
Maria Helena Lima, M.D., discusses the latest breast reconstruction options, including implants, autologous tissue flaps, and oncoplastic reconstruction. She also addresses patient safety concerns and the efficacy of silicone implants compared their saline counterparts.By UAB
…
continue reading
Amy Gietzen, a patient diagnosed with systemic scleroderma, shares her journey and experiences living with the disease. She discusses her initial symptoms, the shock of the diagnosis, and the lack of information and resources available at the time. Despite facing numerous challenges, including pulmonary fibrosis and pulmonary arterial hypertension,…
…
continue reading
1
Alternate Paths to Recovery: Keelia Ryan on Sacred Healing with Plant Medicine
39:45
39:45
Play later
Play later
Lists
Like
Liked
39:45
This week on Minds on Mushrooms, I had the honor of hosting Keelia Ryan, the visionary founder of Plant-Allied Recovery. This unique program is dedicated to supporting individuals in recovery through the sacred and intentional use of entheogenic plant and fungi medicines. Keelia opens up about her own journey, sharing how a deeply traumatic past le…
…
continue reading
1
Metabolism Health and Menopause | Dr. Lara Briden
44:00
44:00
Play later
Play later
Lists
Like
Liked
44:00
How are metabolism, health, and menopause linked? Listen as Dr. Lara Briden shares insights from her new book, Metabolism Repair for Women. Episode Summary In this episode, we hear from Dr. Lara Briden, naturopathic doctor and celebrated author of “Period Repair Manual.” Dr. Briden joins Fempower Heath to discuss metabolic health in light of her ne…
…
continue reading
Alvin Rocha is a nurse care manager and pulmonary hypertension coordinator at Children's Hospital Los Angeles. He manages PH patients from birth to early adulthood. His main goal is to prepare these patients for the transition into the adult world. He is excited about the advancements in therapies and clinical trials and looks forward to attending …
…
continue reading
1
Validating Pain: Endometriosis, Periods, and Women’s Wellness | Dr Peta Wright
40:28
40:28
Play later
Play later
Lists
Like
Liked
40:28
Episode was first played on November 29, 2022 - In this episode, Fempower Health interviews Dr. Peta Wright about endometriosis and pelvic pain. Dr. Wright is a gynecologist, fertility specialist, and the founder of Vera Women’s Wellness: a whole woman's approach to endometriosis healing and recovery. Together, they discuss endometriosis surgery, t…
…
continue reading
In this episode, Dr. Dunbar Ivy, a pediatric cardiologist at the University of Colorado, discusses the upcoming World Symposium on Pulmonary Hypertension, where experts from around the world will gather to discuss the progress made and future directions. Dr. Ivy highlights the work of the pediatric pulmonary hypertension task force, which aims to d…
…
continue reading
1
Multidisciplinary Consensus in Diagnosis and Treatment Options of Spontaneous Intracranial Hypotension
Severe orthostatic headaches could indicate a serious condition called spontaneous intracranial hypotension (SIH). Neurologist Will Meador, M.D., and interventional neuroradiologist Jesse Jones, M.D., discuss how they interpret a combination of symptoms and imaging to make diagnoses and the common first-line treatments for cases that do not resolve…
…
continue reading
1
Autoimmune Awakening: Kris Kufner's Healing Journey with Psychedelics
50:53
50:53
Play later
Play later
Lists
Like
Liked
50:53
In this episode of Minds on Mushrooms, we explore the remarkable healing journey of Kris Kufner, who endured years of debilitating symptoms from an autoimmune condition without understanding its true cause. As her health deteriorated, Kris had to step away from her career to make her well-being a full-time priority. This challenging path led her to…
…
continue reading
1
Women’s Mental Health: Tackling Menopause and Perimenopause | Dr. Allie Sharma
38:43
38:43
Play later
Play later
Lists
Like
Liked
38:43
Learn about menopause and mental health from clinical psychologist Dr. Allie Sharma on the Fempower Health Podcast. Episode Summary While menopause is assumed to come with hot flashes and menstrual changes, there are also mental effects of menopause that are less commonly discussed. In this episode, Dr. Allie Sharma—a clinical psychiatrist speciali…
…
continue reading
Nola Martin shares her experience with pulmonary arterial hypertension (PAH). Nola describes the physical and mental challenges she faced, including fatigue, weight gain, and the need to ask for help. Nola emphasizes the importance of self-advocacy and fighting for one's own health. She recounts a situation where she had to push her doctor to liste…
…
continue reading
Learn why robotic-assisted CABG is a groundbreaking technique for many with coronary artery disease. Sasha Still, M.D., a cardiothoracic surgeon, describes the advantages of performing robotic-assisted coronary artery bypass — a minimally invasive version of the traditional CABG procedure that can further be performed on a beating heart. She discus…
…
continue reading
1
AHA HCM Clinical Update: 2024 Guideline for Management of Hypertrophic Cardiomyopathy
1:05:24
1:05:24
Play later
Play later
Lists
Like
Liked
1:05:24
In this On Demand video, Dr. Steve Ommen and Dr. Carolyn Ho discuss recent updates to the 2024 Guideline for the Management of Hypertrophic Cardiomyopathy (HCM). Watch now to enhance your knowledge on the importance of shared decision-making, the use of cardiac myosin inhibitors to treat symptomatic obstructive HCM, and risk stratification for atri…
…
continue reading
1
Beyond Reproduction: The Broader Health Impacts of Estrogen and Progesterone | Dr. Jerilynn Prior
32:16
32:16
Play later
Play later
Lists
Like
Liked
32:16
Originally Published October 25, 2021. Inspired by an upcoming episode with Dr Prior about perimenopause, specifically, I thought it important to revisit the need to understand the important roles of BOTH estrogen AND progesterone. We’ve all been told about the powerful effects of estrogen on a woman’s reproductive cycle. But more people are now le…
…
continue reading
In this episode, Dr. Eric Austin, a pediatric pulmonologist and pulmonary hypertension doctor, discusses the upcoming World Symposium on Pulmonary Hypertension, which will focus on various aspects of pulmonary hypertension research and clinical care. Dr. Austin is part of the task force on genetics and genomics, which aims to explore the genetic la…
…
continue reading
1
Pain Relief for Endometriosis | Dr. Allyson Shrikhande
30:53
30:53
Play later
Play later
Lists
Like
Liked
30:53
Are there ways to find pain relief for endometriosis? Listen as Dr. Allyson Shrikhande shares her expert insights on a whole-person approach to pain management. Episode Summary In this episode of Fempower Health, Georgie Kovacs hosts Dr. Allyson Shrikhande, a specialist in pelvic rehabilitation medicine. They explore the important topic of managing…
…
continue reading
Victoria McKinnon shares her personal experience with pulmonary hypertension, specifically her son Owen’s eight week battle with the condition. Owen was diagnosed with alveolar capillary dysplasia (ACD), a genetic disease that causes pulmonary hypertension. Despite initial improvements, they ran out of treatment options and ultimately had to make t…
…
continue reading
Two devices for preventing blood clots are allowing many patients to stop taking blood thinners completely. The Amulet and the Watchman are both devices that allow doctors to perform left atrial appendage occlusion more safely than ever before. Tom McElderry, M.D., co-director of the Heart & Vascular Center, explains what has made these devices eas…
…
continue reading
1
Demystifying Mushrooms: A Journey with Troop Mushroom Gummies Co-Founders, Steph and Jake
35:29
35:29
Play later
Play later
Lists
Like
Liked
35:29
In this week’s Minds on Mushrooms episode, we dive deep into the world of fungi with cousins, best friends and the co-founders of Troop Mushroom Gummies, Jake and Steph. In their mission to demystify mushrooms and make them more approachable, they reveal personal stories and insights that shed light on the profound benefits these magical organisms …
…
continue reading
1
Pelvic Floor After Hysterectomy: Preparation, Treatment, and Management | Dr. Jocelyn Wallace
39:06
39:06
Play later
Play later
Lists
Like
Liked
39:06
Learn about the pelvic floor after hysterectomy as Dr. Jocelyn Wallace, Doctor of Physical Therapy and pelvic floor specialist, shares her insights. Episode Summary In this episode, Dr. Jocelyn Wallace, a Doctor of Physical Therapy and pelvic floor specialist, discusses the importance of the pelvic floor in women's health. She sheds light on the pe…
…
continue reading
Haley (aka @Wolf Haley), who was diagnosed with pulmonary hypertension (PH) at 18 years old, shares her journey with the disease and how she has found healing and purpose through art and advocacy. Haley discovered her passion for art as a form of therapy, using watercolor to express her thoughts and emotions about living with PH. Haley also works a…
…
continue reading
1
Finding Comfort within the Unknown: Hope, Boundaries, and Beyond
1:12:15
1:12:15
Play later
Play later
Lists
Like
Liked
1:12:15
Welcome back to the Rare Matters Podcast! I'm your host, Mikey Stone, and in this episode, we embark on a journey through the intricate landscape of life as a disabled individual. Join me as I candidly share my personal experiences, insights, and hard-won wisdom, offering a glimpse into the challenges and triumphs that shape my everyday existence. …
…
continue reading
1
Life Before and After Hysterectomy | Dr. Zoe Rodriguez
38:04
38:04
Play later
Play later
Lists
Like
Liked
38:04
Listen as Dr. Zoe Rodriguez shares her medical and patient-advocating expertise about life before and after hysterectomy. Episode Summary Join Fempower Health as we discuss hysterectomies with Dr. Zoe Rodriguez, the Assistant Professor of Obstetrics, Gynecology, and Reproductive Science at the Icahn School of Medicine at Mount Sinai. In this episod…
…
continue reading
Dr. Jason Weatherald, a pulmonologist at the University of Alberta, discusses a study on the socioeconomic burden of pulmonary arterial hypertension (PAH) in Canada. The study, conducted through PHA Canada, surveyed PAH patients and their caregivers to understand how the disease affects their ability to work and perform daily activities. The result…
…
continue reading