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Manage episode 391755156 series 1225582
This show was prerecorded on December 19th and had a wonderful group of people show up and share their insights and resources regarding dementia. We had the following people contribute to the show.
Marilyn Raichle - with Maude's Awards but who also shared some insights on dementia care. https://maudesawards.org/
Craig Hanke - Lives with dementia and shared insights
Tracy Perkins - Author of Dementia Home Care which is available on Amazon https://www.amazon.com/dp/1941887120
Truthful Loving Kindness - Lives with dementia and shared some insights.
Laurette Klier - Founder of Nana's Book Series - https://nanasbookseries.com/
Deborah Snyder - Cares for her husband with dementia and shared 3 tips when caring.
Michael Ellenbogen - Lives with dementia shared a research study on the meaning of voluntary assisted dying to Australians living with dementia.
The study is being conducted by Adrienne Matthys from the School of Social Work and Arts at Charles Sturt University. Here is a link to that survey for those living in Australia https://www.research.net/r/VAD_CSU
Here is also a link to an article about the Australian study. https://news.csu.edu.au/latest-news/voluntary-assisted-dying-study-seeks-to-hear-from-those-living-with-dementia
Dr Stan Terman founder and his assistant Barbara of Caring Advocated which specializes in Strategic Advanced Care Planning. https://caringadvocates.org/
We also discussed the importance of brain autopsies for research and below are some resources:
Boston University Brain Bank - https://www.bu.edu/cte/brain-donation-registry/
Family members of deceased athletes may donate their loved one’s brain and spinal cord after their death to the UNITE Brain Bank to be examined neuropathologically for evidence of CTE or other disorders of the central nervous system. FREE
National Institute on Aging https://neurobiobank.nih.gov/
https://neurobiobank.nih.gov/static/NIMH%20Donate_accessible_REVISED.c734bf270044.pdf
The Brain Donor Project
https://braindonorproject.org/contact-us/
P.O. Box 111002
Naples, FL 34108-1929
513-393-7878
Watch the Youtube Video https://youtu.be/WTK1jbt_-dY
Apple Podcast
Spotify Podcast
Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/
Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.
Alzheimer's Speaks is part of the Senior Resource Podcast Network.
Contact Information 4 Alzheimer’s Speaks & Dementia Map
Website – https://www.alzheimersspeaks.com/
Website – https://www.dementiamap.com/
Radio Show - https://www.blogtalkradio.com/alzheimersspeaks
Contact Lori La Bey with questions or branding needs through www.AlzheimersSpeaks.com
Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.
Support this Show: https://alzheimersspeaks.com/donate-now/
See omnystudio.com/listener for privacy information.
1129 episodes
Manage episode 391755156 series 1225582
This show was prerecorded on December 19th and had a wonderful group of people show up and share their insights and resources regarding dementia. We had the following people contribute to the show.
Marilyn Raichle - with Maude's Awards but who also shared some insights on dementia care. https://maudesawards.org/
Craig Hanke - Lives with dementia and shared insights
Tracy Perkins - Author of Dementia Home Care which is available on Amazon https://www.amazon.com/dp/1941887120
Truthful Loving Kindness - Lives with dementia and shared some insights.
Laurette Klier - Founder of Nana's Book Series - https://nanasbookseries.com/
Deborah Snyder - Cares for her husband with dementia and shared 3 tips when caring.
Michael Ellenbogen - Lives with dementia shared a research study on the meaning of voluntary assisted dying to Australians living with dementia.
The study is being conducted by Adrienne Matthys from the School of Social Work and Arts at Charles Sturt University. Here is a link to that survey for those living in Australia https://www.research.net/r/VAD_CSU
Here is also a link to an article about the Australian study. https://news.csu.edu.au/latest-news/voluntary-assisted-dying-study-seeks-to-hear-from-those-living-with-dementia
Dr Stan Terman founder and his assistant Barbara of Caring Advocated which specializes in Strategic Advanced Care Planning. https://caringadvocates.org/
We also discussed the importance of brain autopsies for research and below are some resources:
Boston University Brain Bank - https://www.bu.edu/cte/brain-donation-registry/
Family members of deceased athletes may donate their loved one’s brain and spinal cord after their death to the UNITE Brain Bank to be examined neuropathologically for evidence of CTE or other disorders of the central nervous system. FREE
National Institute on Aging https://neurobiobank.nih.gov/
https://neurobiobank.nih.gov/static/NIMH%20Donate_accessible_REVISED.c734bf270044.pdf
The Brain Donor Project
https://braindonorproject.org/contact-us/
P.O. Box 111002
Naples, FL 34108-1929
513-393-7878
Watch the Youtube Video https://youtu.be/WTK1jbt_-dY
Apple Podcast
Spotify Podcast
Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/
Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.
Alzheimer's Speaks is part of the Senior Resource Podcast Network.
Contact Information 4 Alzheimer’s Speaks & Dementia Map
Website – https://www.alzheimersspeaks.com/
Website – https://www.dementiamap.com/
Radio Show - https://www.blogtalkradio.com/alzheimersspeaks
Contact Lori La Bey with questions or branding needs through www.AlzheimersSpeaks.com
Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.
Support this Show: https://alzheimersspeaks.com/donate-now/
See omnystudio.com/listener for privacy information.
1129 episodes
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