80. A Multidimensional Approach to EDS and HSD Care with Dacre Knight, MD

Bendy Bodies with Dr. Linda Bluestein

In this episode, YOUR guest is Dacre Knight, MD. Dr. Knight established a specialty clinic for treating patients with hypermobility syndromes including hypermobile Ehlers-Danlos Syndrome (hEDS) and hypermobility syndrome disorder (HSD) at Mayo Clinic Jacksonville, Florida in 2019.

YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

Explored in this episode:

· What specialty evaluations are most important for patients with hypermobility syndromes

· What tests he feels are most helpful for patients with Ehlers-Danlos Syndromes (EDS) and HSD

· How they determine when to perform genetic testing and the findings in this group of patients

· How his approach has evolved since the clinic’s inception in 2019

· The research that he has conducted and relevant findings

· The role of autoimmunity in EDS and HSD

· Findings in patients with orthostatic intolerance vs Postural Orthostatic Tachycardia Syndrome (POTS)

· The role of the immune system in symptomatic joint hypermobility

· The relationship with fibromyalgia

· What percentage of patients are diagnosed with hEDS vs HSD

· What he says to people who assume that HSD is a less serious condition

This important conversation about Dr. Knight’s approach to the evaluation and treatment of hEDS and HSD will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the evaluation process.

Connect with YOUR Bendy Specialist, Linda Bluestein, MD!

Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

YOUR bendy body is our highest priority!

Products, organizations, and services mentioned in this episode:

Ehlers-Danlos Syndrome Newsfeed | Mayo Clinic Connect

Ehlers-Danlos Syndrome Clinic in Florida - Overview - Mayo Clinic

https://www.mayoclinic.org/biographies/knight-dacre-m-d/bio-20477206

https://x.com/knidac?s=21

https://www.frontiersin.org/articles/10.3389/fmed.2023.1096180/full

https://link.springer.com/content/pdf/10.1007/s42399-022-01218-w.pdf

https://pubmed.ncbi.nlm.nih.gov/35687402/

https://www.ehlers-danlos.com/

https://www.ehlers-danlos.com/healthcare-professionals-directory/

#BendyBuddy #HypermobilityMD #POTSawareness #HolisticHealth #MayoClinicJax

#SpecialtyClinic #HealthInnovation #WholeBodyTreatment #MedicalCollaboration

#InvisibleIllness #PatientAdvocacy #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility

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