S2Ep1- Allow Me to Introduce (Sofia)

Waiting is the Hardest (W.I.T.H Podcast 🎙)

Sofia is the spotlight of season two! Born with Sickle Cell Anemia, an inherited blood disorder that affects red blood cells, Sofia underwent a Bone Marrow transplant that cured her of this disease that causes pain, fatigue, and additional complications.
This season will feature Sofia's journey of healing. We will interview Sofia's donor, her brother Tevis and medical team. This season of Waiting is the Hardest will also highlight another sickle cell survivor, Kennedy and her donor, her mother Tamika. Kennedy will share her unique journey, lessons learned along the way, and encouragement for anyone who is going through a difficult health situation.
Kennedy's story airs March 17 2023.
You will be inspired and enlightened by both young ladies' perseverance and commitment to overcoming the odds.
Set your reminders now!
Bonus episodes air March 24 and March 31.

Chapters

1. Tribute to Granddad (00:00:00)

2. Setting up the season. Waiting is the Hardest meaning (00:03:15)

3. What's in store for season 2 (00:03:55)

4. Meet our guest: Sofia! (00:08:30)

5. Sofia's earliest memories with sickle cell disease (00:10:00)

6. Am I different? (00:11:53)

7. Building a sickle cell community (00:12:48)

8. What is hemoglobin? How does it affect pain with patients with sickle cell disease? (00:15:21)

9. Managing sickle cell pain (00:16:30)

10. Sickle cell disease, blood transfusions, and iron overload (00:17:04)

11. Support for sickle cell (00:18:04)

12. Advocating for yourself and your healthcare needs (00:19:03)

13. Sofia's sickle cell gets tough (00:20:35)

14. Sharing vs sheltering bone marrow transplant information (00:22:08)

15. Raising a child with sickle cell disease---the power of positive thinking (00:24:36)

16. Sofia's advice to young people fighting sickle cell and other treatments (00:27:01)