Best Mecfs Podcasts (2024)

1
The Case Against Reality by Donald R Hoffman Book Review | How Our Senses Deceive Us! 13:14

14h ago13:14

13:14

In this book review I consider the idea that what we perceive as reality is in fact an interface much like seeing icons on your desktop. This is the astounding idea of scientist and philosopher Donald R Hoffman.. In this review find out what I thought of the book and its astonishing hypothesis of 'Fitness Beats Truth' (FBT) theorem and how it's the…

1
The Trauma and Genius of Lee Miller - how Kate Winslet's new film shows a unique perspective 15:56

19h ago15:56

15:56

The new film about photographer and war correspondent Lee Miller does not shirk the hard stuff. From covering the liberation of Europe (and especially the concentration camps) to her experience as woman excluded and violated in childhood. 00:00 Intro to Lee Miller: model, photographer and war correspondent. 02:56 War breaks out and how she got to b…

1
The Secret to Healing | Interview with hypnotherapist Jenny Lynn on how to break free of suffering 39:49

19h ago39:49

39:49

00:00 How Jenny started working with clients with CFS/ME 03:00 How the patterns became so clear led to explore solutions and begin teaching 05:06 High sensitivity and trauma combine with emotional responsibility 06:40 Jenny's approach interwoven with who she is and holding others in safety - no 'off the peg' solution. But did teach the compassion a…

1
The Case against Reality by Donald Hoffman - extra notes... 17:55

19h ago17:55

17:55

Some extra ideas I had after reading this book.. on the 'unintelligence' of the mammalian retinal system' (see at 09:38) Although I have covered some of this in the first recording I thought it was important to counter this argument. *If you're suffering from Chronic pain, fatigue or anxiety, I CAN HELP* CONTACT ME: https://www.alchemytherapies.co.…

1
15: "if you could just fill in this form" 21:27

5d ago21:27

21:27

The UK Government has recently once again made it clear that the national welfare benefit budget needs to shrink. What does it feel like for somebody with a chronic illness to apply? I share my deeply personal and often frustrating journey through the maze of seeking validation and support for a condition that many misunderstand. You'll hear about …

1
147 - Dan Neuffer - How can we build & ensure resilience in our recoveries? 48:47

5d ago48:47

48:47

Episode 147 of the Long Covid Podcast is the first of a two-part series with Dan Neuffer. Dan is a coach working with people with Long Covid & ME/CFS. He is also an author of "CFS Unravelled" and has developed the "ANS Rewire" Program which has been mentioned by some others on the podcast previously. In this episode we dive into How is recovery pos…

1
E24: Snippet - Beyond Knowledge: Unlocking Recovery Progress for ME/CFS, Fibromyalgia, POTS, MCS, PVFS or long-covid 13:31

6d ago13:31

13:31

In over a decade of helping people recover, I have found that whilst knowledge can be key, often other factors are more important. In this video, we delve into why knowledge alone isn't enough for recovery from chronic illness like ME/CFS, Fibromyalgia, POTS, MCS, PVFS (or long-covid). We uncover potential missing pieces in your journey. Discover w…

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14: "You are needed at the hospital urgently" 21:43

12d ago21:43

21:43

What happens when you're grappling with the relentless symptoms of long COVID and suddenly your daughter is hospitalized? In this heartfelt episode, I share the raw realities of balancing my own health struggles while supporting a loved one in crisis. From the emotional and physical exhaustion to the spiritual toll it takes, I discuss the importanc…

1
Life Under a Blanket of Death 3:10

12d ago3:10

3:10

No one ever sees the world of color that lives inside of me because the black void doesn’t let it out. I feel it, smell it, taste it. I exist there in every moment of my life. But the only thing anyone ever sees are the bits of dust of a broken down machine…When the world of color and light shines, this second world coughs and flounders and lays do…

1
Part 3 with returning guest Rachel Jessey - Artificial light, sunrise, sunset, sleep and much more 40:05

16d ago40:05

40:05

Send us a text This is part 3 of the short series of podcasts with the wonderful Rachel Jessey from Benourished. Rachel has so much knowledge and experience which is why we have discussed several interrelated topics over the 3 podcasts. In this episode we focus on disrupted sleep, the process of natural melatonin and cortisol to support and regulat…

1
146 - Dr Becca Kennedy - Chronic Pain & Fatigue Doctor 52:07

19d ago52:07

52:07

In episode 146 I speak to the fabulous Dr. Becca Kennedy, a family medicine physician, who discusses her approach to treating chronic pain and fatigue using evidence-based neuroscience. She emphasizes the mind-body connection, explaining that many medically unexplained symptoms are due to brain signaling rather than structural damage. Kennedy highl…

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13: "When will this end?" 23:52

20d ago23:52

23:52

What happens when you feel like your life has been put on pause indefinitely? Join me, Paul, as I share my raw and personal journey through the relentless battle of long COVID. In the chapter, 'When Will This End?', I open up about the emotional turmoil and physical setbacks that have marked over two years of my life. From fleeting moments of hope …

1
Riding on Hope 0:23

22d ago0:23

0:23

Getting through bad days with ME/CFS, Long Covid, chronic illness, or disability. ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Resources 🙏 Donate to ME/CFS ResearchBy Whitney Dafoe

1
E23: Lynne's ME/CFS Recovery Story 1:24:25

22d ago1:24:25

1:24:25

Join us in this transformative episode as Lynne, an experienced nurse, bravely shares her journey to recovery from ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome). As a medical professional, she had been skeptical about the validity of ME/CFS diagnoses. However, Lynne's perspective shifted dramatically after facing years of debilitating…

1
Interlude: Your messages 18:13

25d ago18:13

18:13

Thank you so much for your messages! Today, I felt like I had enough energy to go through some of them and record them for this special 'interlude'. Please continue to share what your life is like living with Long Covid, and I will do these catch-up interludes regularly. Watch out for the online forum to complement this podcast, which is launching …

1
145 - Jenny Adams - Recovery from ME/CFS 50:03

26d ago50:03

50:03

Episode 145 of the Long Covid Podcast is a chat with Jenny Adams who is here to share her recovery story! We chat through her illness, the things that helped her and the lessons she has learned. We also discuss the work Jenny is doing now, and the links to work with her are below. Free workshop sign up: https://jenny-adams-f409.mykajabi.com/moreene…

1
12: "You just need a good nights sleep" 20:35

1M ago20:35

20:35

In this episode, I talk about sleep and how Long Covid affects it, plus some of the things I have found helpful. I give an update on a few products that seem to be working (links below) along with a negative experience I encountered whilst advertising the podcast. Herbal Health, who produce the fabulous 'Ninja Balm' in both regular strength and 'su…

1
144 - Dr Sarah's Long Covid Recovery 53:08

1M ago53:08

53:08

Episode 144 of the Long Covid Podcast is a chat with Dr Sarah about her recovery from Long Covid. Sarah tells of her experiences with Covid and her route to Long Covid, as well as some of the things she found that helped. Sarah takes us through her "6 pillars of wellness" that she developed to help her recover - these 6 areas which she thinks are i…

1
Athletes and Anxiety | Recorded for the Centre for Integrative Sports Nutrition CISN 1:01:40

1M ago1:01:40

1:01:40

Anxiety is a common problem for athletes: 00:00 Intro and how I got into somatic trauma work 03:40 Chronic anxiety is a natural response to past experience stored in your body in a feedback loop with your limbic brain 06:50 The body cannot lie - it will reveal the truth of your unmet emotional needs from childhood as symptoms 09:20 Symptom suppress…

1
The Neuroscience of Flotation Therapy - How it Calms Anxiety in Mind and Body 18:51

1M ago18:51

18:51

I've been looking at innovative new therapies to help calm the mindbody as I'm writing my book Mind Medicine (soon to be published 6th September). Here I give a summary of how and why it works and what my experience was recently. Catch the original paper I am referring to here which outlines the medical benefits https://www.sciencedirect.com/scienc…

1
11: "I hope you had a nice holiday" 24:41

1M ago24:41

24:41

I recorded this whilst still very weary after a holiday with the family. I reflect on my week away and the highs and lows of managing in a different environment. If you find this podcast helpful, do let me know. You can message me via the link below. Send Paul a text here Support the showBy Paul Clarke

1
Cooperation not Competition | Understanding Living Systems Book Review | Denis Noble's New Biology 32:58

1M ago32:58

32:58

In my review of this most important book Understanding Living Systems by brothers Raymond and Denis Noble I show you how biology is beginning to move beyond the concept of the 'selfish gene' and turning to a more co-operative view of life. Find out how cells are embedded in organisms and it is our intelligence and agency that allows us to modify ou…

1
The Future of Health | Connecting the Mind and Body | Wholism in Action 17:12

1M ago17:12

17:12

How Health is more than fixing the problem but engaging with a wider perspective - a truly wholistic vision of purpose, beliefs and connection We need to understand we are connected to a universal consciousness... Find me on alchemytherapies.co.uk and patriciaworby.com *If you're suffering from Chronic pain, fatigue or anxiety, I CAN HELP* CONTACT …

1
The Neuroscience of Flotation Therapy | How it Calms Anxiety in Mind and Body 18:51

1M ago18:51

18:51

I've been looking at innovative new therapies to help calm the mindbody as I'm writing my book Mind Medicine (soon to be published 6th September). Here I give a summary of how and why it works and what my experience was recently. *If you're suffering from Chronic pain, fatigue or anxiety, I CAN HELP* CONTACT ME: https://www.alchemytherapies.co.uk/ …

1
Part 2 with returning guest Rachel Jessey - faecal implant, vitamins and the gut microbiome 40:35

2M ago40:35

40:35

Send us a text Following on from the last episode of the podcast, as promised this is part 2 with Rachel Jessey from Benourised. We continue and expand on the short conversation we had at the end of the last episode on faecal implant, Rachel has so much knowledge and this is a really interesting topic. We also talk about the circadian rhythm and ho…

1
Dear NHS, Don't Kill Karen Gordon 12:08

2M ago12:08

12:08

A Severe ME/CFS Patient in the UK named Karen Gordon went to the Conquest Hospital Hastings when her Jtube broke in hopes of getting a new one installed. Instead, the hospital has refused to give her a new Jtube or let her go home with Total Parenteral Nutrition (TPN), holding her hostage at the hospital for months. They have now given her an ultim…

1
10: "A holiday will do you good" 21:24

2M ago21:24

21:24

I explore the summer holidays and the challenges of planning things with the family. Also, after being told my symptoms might now be permanent I try and explain how I am beginning to come to terms with this. Oh, and an update on a supplement that seems to be working a little bit! Send Paul a text here Support the show…

1
143 - David Joffe - Overcoming Sleep Challenges in Long Covid Patients 55:10

2M ago55:10

55:10

Unlock the secrets to better sleep and enhanced well-being in our latest episode featuring David Joffe, a leading expert in respiratory and sleep medicine. You'll gain valuable insights into the intricate roles of slow-wave and REM sleep, crucial for both physical restoration and cognitive functions like memory consolidation. David shares his exten…

1
9: "Well done, you are out!" 23:21

2M ago23:21

23:21

I talk with my wife, Rachel, about visiting a local festival using mobility aids. We also chat about a recent occupational health review. We also chat through how by being honest, we can manage my condition together. Send Paul a text here Support the showBy Paul Clarke

1
142 - Jackie's thoughts of the day! 12:05

2M ago12:05

12:05

In episode 142 of the Long Covid Podcast, Jackie takes to the mic to explore her thoughts on Some Things, including almost 3 years since she started the podcast, why boundaries and self-care are so important and more. My youtube channel and the "Ask Jaxter" playlist Long Covid Breathing - see what I have created with Vikki and how you can join our …

1
Drops From The Well of Suffering: Honoring Maeve Boothby O’Neill 16:37

2M ago16:37

16:37

It is a travesty that Maeve did not receive nutrition like I received. I was just as sick as Maeve with very similar symptoms, including sensitivity to stimuli like light, sounds, voices and the company of other people in my room and like Maeve, I could not eat enough food to survive. If I was treated the way Maeve was treated, I would be dead just…

1
8: "When are you going back to work?" 22:36

2M ago22:36

22:36

In this episode I explore my experienes of attempting to work with Long Covid and the concequences. Hank the Cavalier King Charles makes a contribution, and even barked at himself upon playback! Send Paul a text here Support the show

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E22: Snippet - Is Looking For Treatments Stopping You Recovering From ME/CFS, PVFS(long-covid), Fibromyalgia & POTS 14:17

2M ago14:17

14:17

Looking for treatments to help you recover from ME/CFS, PVFS (long-covid), Fibromyalgia or POTS or related illnesses should surely be a good thing. It’s what most of us do whilst we are ill until we eventually give up or are told ‘there is not cure, so you can’t recover’. But whilst it can be key to your recovery breakthrough, it can also have sign…

1
Brain pain - how Psychogenic Pain Develops from Unfelt Emotions- and how to treat it 10:22

2M ago10:22

10:22

Chronic or persistent pain is very different to acute pain both in origin and management. Find out the secret to overcoming this debilitating condition 00:00 Intro - reminder acute vs. chronic pain (nocioceptive, neuropathic vs. psychogenic) 03:41 Failures of inhibition pain signals - allodynia 05:00 Stress build up from unheard/ unacceptable emoti…

1
Martha Beck - The Way of Integrity - Finding the path to your true self | Book Review 18:48

2M ago18:48

18:48

A book review and interpretation of Martha Beck's wonderfully illuminating book The Way of Integrity based on Dante's The Divine Comedy as a book of an existential midlife crisis! Martha takes us through the process of recovery from this through The Dark Wood of Error The Inferno Purgatory Paradise based on her experience and the lessons she learne…

1
Our Body Electric | Nerves and Electropollution | The Invisible Rainbow by Arthur Firstenberg Part 3 29:38

2M ago29:38

29:38

By special request - more info from the book The Invisible Rainbow by Arthur Firstenberg on the importance of the myelin sheath in transmission of energy throughout the body - and what can go wrong with Electromagnetic pollution. 00:00 Intro to the book 02:00 The importance of electrical energy in healing damaged tissue - porphyrins as transmitters…

1
Human Complexity and Emotions as Resonance | Healing as a Cell Mitochondrial Feedback System 27:44

2M ago27:44

27:44

Healing is an act of self-organising feedback resonance within the body.Here I explain how I came to learn this and what you can do to promote it within your body. Here is the video I talk about extensively The Secret Life of Chaos https://www.youtube.com/watch?v=mEHbdrpy_Lg Find me on alchemytherapies.co.uk *If you're suffering from Chronic pain, …

1
7: "It's all in your head" 21:02

2M ago21:02

21:02

In this episode, I talk about how Long Covid affects my mental health and the things that I do to help. Maisie the dog makes a brief appearance. I found this a difficult episode to record, as I was feeling down at the time and it is a very emotional topic. As always though, I decided to present it 'as is' so that you can at least get a feel of how …

1
141 - Todd Davenport - a deep dive into Post-Exertional Malaise (PEM) 51:13

2M ago51:13

51:13

Episode 141 of the Long Covid Podcast is a chat with the fabulous Todd Davenport - physio & exercise scientist specialing in Long Covid, MECFS & Post-exertional Malaise. We take a dive into PEM, some of the science behind it and some things that can help avoid & mitigate it. Some useful links: Bateman Horne crash care plan Workwell Foundation Links…

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E21: Dr Michael Lenz on treating Fibromyalgia, CFS, POTS - treating children & the connection with ADHD 1:08:59

2M ago1:08:59

1:08:59

In this episode, we sit down with Dr. Michael Lenz, a dedicated physician specializing in fibromyalgia, ME, CFS, POTS, and related illnesses. Dr. Lenz discusses his conservative approach to medications and emphasis on lifestyle medicine, particularly for children with these conditions. A notable part of the discussion delves into the common comorbi…

1
Interlude: A bad day 6:27

2M ago6:27

6:27

I want this podcast to show the highs and lows of living with Long Covid. Today is a low, and I decided to record this short audio to try and describe it. Reach out : lifewithlongcovid@icloud.com Send Paul a text here Support the show

1
Returning guest Rachel Jessey - lets talk about the gut! 39:55

2M ago39:55

39:55

Send us a text In this episode of the podcast I talk with a fantastic returning guest Rachel Jessey. We talk about all things gut related and the microbiome, Rachel explains how these can be effected by the Circadian rhythm and also how and what we can do to help support a "healthy gut". Listen to Rachel talk about a study that supports the thought…

1
6: "This is the best thing I have ever tried" 23:22

2M ago23:22

23:22

In this episode, I talk about my journey of introducing supplements and how it eventually led me to realise that I was looking for answers in the wrong place. I mention a few that I have tried; Krill Oil (for the ultimate in fishy breath!) NADH (warning: massive tablets) Vitamins C, D, B12 CBD Oil, balms and capsules (and chocolate, gummies,

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140 - Jess Dove London - Turnto - the app that aims to revolutionise healthcare 38:16

2M ago38:16

38:16

Episode 140 of the Long Covid Podcast is a chat with Jess Dove London, CEO of the startup "Turnto". Jess tells the story behind Turnto and how it's now helping people with ME/CFS & Long Covid. We talk about the app, it's main features and how it can help. Have you enjoyed the app? Let us know! https://turnto.ai/download Message the podcast! - quest…

1
5: "You just need to do some exercise" 21:55

2M ago21:55

21:55

In this episode, I talk about my experiences with various medical professionals and their reactions to my illness. I recorded this whilst having a tired and emotional day. I thought about re-recording it, but in the end, I believe it is important that you hear me on the not-so-good days as well. Let me know your experiences, email: lifewithlongcovi…

1
4: Sunday afternoon "Walk" & talk 16:17

2M ago16:17

16:17

My plan was to do a short walk and record how I was feeling. In reality, it turned into a 'wheel' and talk with my wife, Rachel! Join us on a Sunday afternoon wheel/walk as we discuss my use of a wheelchair, people's perceptions of my illness and how Rachel has had to change her life. Send Paul a text here Support the show…

1
139 - Patrick Ussher & Peter Deen - Excessive Thirst in ME/CFS & Long Covid 47:47

2M ago47:47

47:47

Episode 139 of the Long Covid Podcast is a chat with Patrick Ussher and Peter Deen about excessive thirst in ME/CFS & Long Covid. We talk about what this is - and how it can be a very serious issue, as well as what brought Patrick & Peter together for the research they are now doing. The Survey mentioned is not quite ready yet - it will be added an…

1
3: "Everybody gets tired" 22:26

3M ago22:26

22:26

Living with Long COVID means constantly feeling tired, but it is likely that other people won't understand. In this episode, I delve deeper into fatigue and some of the coping strategies I have developed along the way. It would be great to hear from you if you have any tips or comments, email me: lifewithlongcovid@icloud.com For more information ab…

1
2: "You look well" 19:27

3M ago19:27

19:27

Long Covid is hard to understand at the best of times, so no wonder people do not know how to respond to our illness. In this episode, I talk about how I deal (or find it hard to deal) with comments on our disability. Guest starring Maisie the Pomeranian, who barks at the wind in the background! Send Paul a text here Support the show…