A podcast series brought to you by the International Spinal Cord Society (ISCoS). With each episode, we will speak with experts from all over the world to discuss various aspects of spinal cord injury including etiology, prevention and care, providing valuable insights regarding the most up to date information for those providing care for the spinal cord injured. Collaboration is the key and at the heart of what ISCoS does. The podcast series will be an extension of ISCoS, philosophy to make ...
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Barry Singer, MD, Director of The MS Center for Innovations in Care at Missouri Baptist Medical Center, interviews global expert guests about the latest treatments, innovations and tips for people living with multiple sclerosis.
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The ISCoS 2024 Antwerp Annual Scientific Meeting
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Send us a Text Message. As anticipation builds for the 63rd Annual Meeting of the International Spinal Cord Society, Professor Micheal Fehlings shares his excitement with Dr Stolwijk-Swuste, a Rehabilitation specialist and Associate Professor at De Hoogstraat Revalidatie. Our hosts invite the spinal cord community to this unique event, located in a…
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2nd ISCoS International Regional Symposium : Sharing world knowledge for practical advancements
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Send us a Text Message. The Vison of ISCoS is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally". Partnership and collaboration is key in helping us to realise this vision. We are delighted that we have been able to partner with Wellspect to deliver, in addition to a number of webinars and podcast…
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Send us a Text Message. Welcome to the future of Spinal Cord. In this episode, our hosts Dr. Fehlings and Professor Anthony S. Burns welcome us to a new era of ISCoS’s flagship journal, Spinal Cord. Conceptualised in 1963, Spinal Cord is a specialised, international journal that publishes peer-reviewed manuscripts, to showcase powerful medicinal in…
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What role does the nurse have for successful bladder and bowel management?
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Send us a Text Message. Managing bladder and bowel health is a critical, yet often overlooked aspect of patient care, especially for those with spinal cord injuries (SCI). In a recent podcast episode host, Tracey Tattam, a Nurse Educator at the Spinal Injuries Unit Queensland, Australia is joined by Josefin Oja, a nurse and urotherapist at the spin…
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Awareness of the more uncommon multiple sclerosis symptoms can lead to an earlier diagnosis and appropriate treatment. For instance, experiencing electrical shock sensations when bending the neck forward, known as Lhermitte’s sign, may indicate an attack on the cervical spinal cord. Likewise, excruciating bolts of pain across either side of the fac…
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SCI Patient Perspectives: Life Before, During, and After Participation in SCI Clinical Research
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Send us a Text Message. In this episode, guest host Dr Kimberley Monden explores the world of SCI clinical research and rehabilitation medicine, exploring patient perspectives and life before, during, and after participation in SCI clinical research with Dr Trumbower, an associate professor in the Department of Physical Medicine and Rehabilitation …
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Prepare to be intrigued by the groundbreaking intersection of artificial intelligence (AI) and multiple sclerosis care! By combing through extensive databases, including genetic information and real patient records, AI can forecast with remarkable accuracy the likelihood of MS onset. In the near future, AI could even serve as a guiding light for cl…
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How Women Can Support Their Bladder and Bowel Health from Youth to Later Years
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Send us a Text Message. This webinar, in partnership with Wellspect, aims to raise awareness of these issues. Originally recorded as a webinar, we decided to release it as a podcast as well. We hope you enjoy listening. This episode will cover bladder and bowel management during the different stages of a woman's life, overcoming barriers to break t…
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Navigating MS with Other Medical Conditions
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Living with multiple sclerosis isn't just about managing the condition itself, but often involves navigating a myriad of additional health concerns known as comorbidities. Individuals with MS face a higher risk of experiencing new relapses when dealing with comorbidities like high cholesterol or depression. Furthermore, autoimmune diseases such as …
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Sex hormones, such as estrogens and testosterone, affect each individual's journey living with multiple sclerosis. While both genders face equal MS risk before puberty and after menopause, women experience up to three times higher risk during their reproductive years. Pregnancy generally brings less relapses, potentially attributed to high estriol …
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Exploring Sexuality and Fertility After Spinal Cord Injury with Dr. Marcalee Alexander and Dr. Gianluca Sampogna
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Send us a Text Message. This episode follows on from our previous webinar "Exploring Sexual Dysfunction," hosted by Francescapaola Polli, Enterology Product Manager for Wellspect in Italy. Returning guests Dr Marcalee Alexander and Dr Gianluca Sampogna provide invaluable guidance on overcoming sexual challenges and achieving fulfilling sexual lives…
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Revolutionizing Multiple Sclerosis Care: B-Cell Therapy
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In a paradigm-shifting discovery, researchers uncovered that B cells, not T cells, wield significant influence on orchestrating neurological damage in MS. Join UCSF Professor Dr. Stephen Hauser as he shares the remarkable odyssey from hurdles to triumphs of developing B cell monoclonal antibody treatment for multiple sclerosis. Disease impact, safe…
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Recipe for Resilience: The Blind Cook and NMOSD
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Christine Ha, an award-winning blind chef and restauranteur, shares her experience grappling with neuromyelitis optica spectrum disorder (NMOSD). Facing relapses with the inability to walk and feed herself that challenged her independence, she leaned on the support from family and friends. As she lost her sight due to optic neuritis in both eyes, M…
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Little Leaks to Big Wins: Paediatric Bladder and Bowel Management
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Send us a Text Message. In this episode of the podcast, in partnership with Wellspect, host Lisa Beauchemin talks to her colleagues Katherine Fernandez and Dr Lawrence (Larry) Vogel about bladder and bowel management in paediatric spinal cord dysfunction. They discuss physical health alongside social health and lifestyle factors that need to be con…
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Interview with SCI Grant recipient about the new work-care rehabilitation pathway for spinal cord patients in Bangladesh
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Send us a Text Message. In this bonus episode, we talk to an SCI grant recipient, Kamrunnaher Koly, from Bangladesh, about her work as a researcher, the new work-care rehabilitation pathway for spinal cord patients in Bangladesh, and how she found her first experience at the ISCoS conference. The opinions of our host and guests are their own; ISCoS…
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In conversation with Julian Taylor and Kathy Zebracki on setting up the first-ever Paediatrics SIG
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Send us a Text Message. In this bonus episode, we sit down for a conversation with Kathy Zebracki, a clinical psychologist from Shriners Children's, Chicago, and Julian Taylor from Toledo's National Paraplegic Hospital in Spain to learn all about the first-ever paediatric spinal cord injury Special Interest Group (SIG) for ISCoS. Kathy and Julian r…
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In conversation with the Praxis team at ISCoS 2023
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Send us a Text Message. In this bonus episode, we spoke with Bill Barrable, Vanessa Noonan, John Chernesky and Barry Monroe of Praxis as they discuss the 62nd ISCoS scientific meeting and the role of their organisation in setting best practices for managing spinal cord injury and rehabilitation. They also discuss the challenges and strategies of in…
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In conversation with SRI grantees Jacob Schoffl and Kiera Tranter
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Send us a Text Message. In this episode, Christine Hendry, CEO of the Spinal Research Institute, chats with two standout grant recipients for ISCoS 2023, Jacob Schoffl and Kiera Tranter to discuss their research. Jacob discusses research on the effects of spinal cord injury on autonomic and psychosocial health. Meanwhile, Kiera, a physiotherapist s…
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Navigating SCI Care in Conflict with ISCoS Disaster committee members, Eric Weertz and Geraldine Jacquemin
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Send us a Text Message. In this bonus episode, Eric Weertz and Geraldine Jacquemin discuss the work of the ISCOS Disaster Committee and the unique difficulties faced in conflict settings that they support, including developing the ISCoS SCI toolkit. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints,…
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In conversation with Dr. Haleluya Moshi: Revolutionary Research in SCI Care
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Send us a Text Message. In this episode, Spinal Research Institute CEO, Kristine Hendry interviews grant awardee Dr. Haleluya Moshi from Tanzania. Dr Moshi discusses his research on traumatic spinal cord injury in rural areas. Listen as he shares his experience at ISCoS 2023. The opinions of our host and guests are their own; ISCoS does not endorse…
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Send us a Text Message. In this episode, Dr Samford Wong, Chair of the newly formed nutrition special interest group, is joined by fellow group members Sharon Lee, Firas Sarhan and Hanne Bjorg Slettahjell as they discuss the plans and developments for this SIG. There will also be a Nutrition SIG workshop to be held in ISCoS 2024, more details to co…
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Robert Buren on Cognitive Behavioural Therapy on the management of Neuropathic Pain
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Send us a Text Message. In this bonus episode, Kristine Hendry, CEO of The Spinal Research Institute, interviews Robert Buren, a researcher studying at the University of British Columbia, Canada and SRI grant awardee, on his research highlighting the effectiveness of cognitive behavioural therapy in managing neuropathic pain and attending benefits …
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Candice Care-Unger on attending the pre-conference Psychosocial day
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Send us a Text Message. In this episode, Candice Care-Unger is a renowned psychosexual therapist and specialist social worker from Sydney. Candice shares her insights on attending the pre-conference psychosocial day. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. If …
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Bev Collins and Sallyanne Haigh discuss non-spinal settings and SCI Care
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Send us a Text Message. In this bonus episode, Beth Collins, a clinical lead at Wellspect Healthcare, interviews colleague and friend Sallyanne Haigh on her recent surgery experience in a non-spinal setting. They discuss the significant gaps in SCI care and the lack of training and knowledge within these settings. Sallyanne shares that despite the …
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A conversation with Allen Heinemann, Jane Duff, Marcel Post, and Ashley Craig about a new research project on the length of stay for rehabilitation
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Send us a Text Message. In this bonus episode, we talk about a new federally funded research project that involves ISCoS members Professors Allen Heinemann, Jane Duff, Marcel Post, and Ashley Craig. They are working on an international comparative study of rehabilitation length of stay for people living with spinal cord injuries. What's the ultimat…
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Challenges and Triumphs: Robert Buren in conversation with ISCoS 2023 Keynote speaker Claire Lomas MBE
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Send us a Text Message. Claire Lomas MBE welcomed over 900 participants to the recent 62nd ISCoS meeting in Edinburgh. She shared her moving story from her life before a spinal cord injury to the difficulties she faced immediately after to the triumphs she enjoys since she grieved the life she lost and accepted the life she now has, ultimately chan…
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Behind the Scenes at the 62nd ISCoS Scientific Meeting with Mohit Arora and Jacob Shuffl
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Send us a Text Message. In this bonus episode, we caught up with Mohit Arora, Senior Research Fellow and Senior Lecturer at the University of Sydney talking with student and colleague PhD student Jacob Shoffl at the Psychosocial pre-conference day on the 8th Oct during ISCoS 2023. They discuss their biggest takeaways of the day and why they are ISC…
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Wherever you are on your multiple sclerosis journey, there are many reasons to be optimistic about the future of mobility. Our experts, both holding doctorates in physical therapy, offer invaluable guidance on enhancing your walking abilities through targeted exercise and specialized therapy. Learn how to reduce the risk of falls, alleviate spastic…
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Empowering SCI Care: A Global Nursing Initiative with Debbie Green, Tracey Tattam, Veronika Geng and Letitia Graves
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Send us a Text Message. Welcome to SCI Care: What really Matters, Edinburgh conversations. This is a series of discussions recorded live during the #ISCoS2023 meeting. Our guests include Debbie Green, the Chair of the Nurse Special Interest Group, Tracey Tattam, a renowned nurse educator, Veronika Geng from Germany, and Letitia Graves from Houston …
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Conquering Adversity: Claire Lomas’ MBE Story of Resilience
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Send us a Text Message. In this episode, Dr Ali Jamous talks to Claire Lomas MBE taking us through Claire's remarkable journey from a devastating accident to finding a new purpose in life. Claire shares her experiences from before her accident and the difficult early years of recovering from her injury and when hope seemed lost. She will discuss th…
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MS Care Equity: Empowering Underserved Communities
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Health equity represents the pursuit of the highest level of well-being for all individuals, ensuring that every person, regardless of their background, enjoys a fair and just opportunity to achieve their optimal health. Disparities exist within the multiple sclerosis community. It's a stark reality that Black individuals with MS face an increased …
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Navigating life with multiple sclerosis? Gain valuable insights from MS insiders! Stanford nurse practitioner Jong-Mi Lee reveals strategies for accessing MS centers and maximizing available resources. Acquire valuable tips on various topics including overcoming mobility challenges, managing workplace issues, and receiving quality care despite insu…
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Step into the powerful realm of MRI imaging, providing us with an unparalleled view of multiple sclerosis. Discover how acute inflammation becomes vivid with contrast, and how various MRI sequences unveil the past battles fought within your brain and spinal cord. We'll explore advances in techniques, revealing brain shrinkage, gray matter disease a…
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VR and Rehabilitation: Dr Ram Hariharan and Dr Abayomi Salawu explore the future of patient care
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Send us a Text Message. Dr Abayomi Salawu is a neuro-rehabilitation consultant at Hull University Teaching Hospital NHS Trust who is pioneering the use of virtual reality (VR) in rehabilitation. Dr Ram Hariharan is a consultant in spinal injuries at the Princess Royal Spinal Injuries and Rehabilitation Centre in Sheffield and the chair of the UK SC…
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Advancements in Spinal Cord Injury Research with Nigel Henderson
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Send us a Text Message. In this enlightening discussion, host Dr Ram Hariharan, a consultant at the Princess Royal Spinal Cord Surgery Centre in Sheffield and Chair of the UK Spinal Cord Surgery Research Network, speaks with Mr Nigel Henderson, a former consultant at Stoke Mandeville Hospital and later the clinical director of the National Spinal I…
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Dive into a deeper understanding of the role of inflammation in causing injury to the brain and spinal cord in multiple sclerosis. It’s a journey marked by ups and downs, where the adaptive immune system composed of lymphocytes (T and B cells) attack myelin and the innate immune system clears damaged myelin. An immune cell called microglia can crea…
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Yes, children can get multiple sclerosis. Children ages 12 and up are more typically affected and rarely before age 8. Awareness is essential for prompt diagnosis and treatment of pediatric-onset MS (POMS). Accurate diagnosis of multiple sclerosis in children requires screening for other conditions like MOG antibody-associated disease (MOGAD). Risk…
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Send us a Text Message. In this episode, Jennifer Coker chats with Dr Andrew Park, a colleague and friend from Craig Hospital. They talk about first-time attendees, light bulb moments, and coming out of isolation. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. If you…
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In conversation with ISCoS Disaster committee members, Eric Wetz and Geraldine Jman
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Send us a Text Message. In this bonus episode, Eric Wetz and Geraldine Jman discuss the work the ISCOS Disaster Committee have been doing, covering how to help SCI patients in an area of crisis such as Afghanistan, as well as including distance learning and the work on the SCI toolkit ISCOS has been working on with the WHO. We hope you enjoy it. Th…
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Interview with ISCoS Education chair Stephen Muldoon at ISCoS 2022
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Send us a Text Message. In this conversation, Heather Pownall interviews Stephen Muldoon, the ISCOS Education Chair, during the ISCoS 2022 meeting in Vancouver. They discuss the value of both face-to-face conferences and virtual platforms, discussing their respective benefits and how they can complement each other to promote accessibility, educatio…
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The multidisciplinary attendance of the ISCoS Psychosocial Pre-Conference
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Send us a Text Message. In this episode, Dr. Jane Duff speaks with Ty Van Demon and Kimberly Monan to discuss the multidisciplinary attendance of the psychosocial pre-conference and how psychology and psychosocial care are so important in SCI. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given…
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Send us a Text Message. In this episode, Dr Jennifer Coker has a wonderful discussion with the Spinal Research Institute CEO Kristine Hendry and Emma Peleg, the International Spinal Cord Research Collaborations Manager and the importance of their partnership with ISCoS and offering grants to early career researchers to attend ISCoS meetings through…
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Experiencing ISCoS as a first-time attendee and The SRI grantee
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Send us a Text Message. In this bonus episode, Dr Jennifer Coker speaks with Merna Seliman and Nattha Boonthanakorn about their experience as first-time attendees as SRI grantees and the importance of such grants. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. If you…
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Send us a Text Message. In this episode, we do things a little bit differently as we find out more about the company Aneuvo and who better than to interview founder Yi Kai than the company's VP of Global Marketing and Strategy, Katie Valez. We hope you enjoy it. The opinions of our host and guests are their own; ISCoS does not endorse any individua…
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In conversation with SCI peer mentor Walt Lawrence
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Send us a Text Message. In this bonus episode, ISCOS President, Professor. Ruth Marshall and Walt Lawrence, an SCI peer mentor, who has worked tirelessly to help other people with SCI regain Hope and independence have a lovely discussion as Walt shares his story and their chance meeting in 1986. The opinions of our host and guests are their own; IS…
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In conversation with Richard Peter - Praxis Indigenous People's Liaison
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Send us a Text Message. In this bonus conversation, Prof Ruth Marshall talks with Praxis Indigenous People’s Liaison Richard Peter. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. If you enjoyed this podcast, please rate, review and subscribe with the podcast provider…
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Send us a Text Message. In this episode, our ISCoS education chair Stephen Muldoon talks with Nepalese students Surjana Bootun and Bina Gywali to discuss attending ISCoS 2022 and what learnings they can take back to Nepal. Here is what they have to say The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoin…
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Send us a Text Message. In this bonus episode, our team caught up with Sue Cross, a physiotherapist from Stoke Mandeville Hospital. Sue has now joined the ISCOS Education Committee, and in this conversation she discusses the importance of resources such as the ISCOS eLearn and textbook and how beneficial it is to attend an ISCOS meeting in person a…
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Trying to confirm if you have multiple sclerosis can be a frustrating process. Dealing with a new diagnosis a MS can be overwhelming. Julian Gamboa and Dr. Jakai Nolan shed light on a positive path forward living with multiple sclerosis. Julian Gamboa shares his first symptoms of multiple sclerosis including spinning sensation and double vision. He…
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Years before the first typical neurological symptoms of multiple sclerosis such as numbness or visual loss, individuals can have other symptoms that are often overlooked. This period of time is called the MS prodrome. During the prodrome phase, there is an increase in symptoms including skin, gastrointestinal and psychiatric issues. Research may le…
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