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Voices of Dysautonomia
Manage episode 344108033 series 3266574
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October is Dysautonomia Awareness Month. Dysautonomia is mild for some people and completely disabling for others. Imagine having to think about all of the bodily functions you take for granted….breathing, heart rate, blood pressure, digestion and more. Dysautonomia causes a dysregulation of all of the functions that so many of us take for granted. The result can be debilitating.
Join me as I have conversations with Marina Lombardi, Valerie Rose, and Samantha Brechner, who each live with dysautonomia. Hear how it has impacted each of them and how they have found ways to manage their symptoms.
Some things that you’ll learn:
- What dysautonomia is and the effects it can have on people diagnosed with it
- How dysautonomia has impacted Bonni
- Why one of the scheduled guests was unable to be included in this episode
Some questions Bonni asks Marina, Valerie, and Sam:
- How would you describe dysautonomia to people who don’t know what it is?
- What led to your diagnosis ?
- What type of dysautonomia do you have?
- If you were to try to get someone to understand what it feels like to live with dysautonomia how would you describe what it feels like to have dysautonomia?
- What symptoms affect you most?
- What have been the most effective ways of managing your symptoms?
Show Resources:
Learn more about dysautonomia: http://www.dysautonomiainternational.org/
Connect with Bonni:
https://www.instagram.com/thechronicallycourageous/
https://www.facebook.com/bonni.howard
bonni@thechronicallycourageous.com
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