Crohn's disease and ulcerative colitis (collectively known as inflammatory bowel disease) are about more than diarrhea: they affect the whole person. About IBD focuses on health and lifestyle issues important to people living with Crohn's or colitis. IBD patients, doctors, therapists, and care partners give their tips and advice on topics including diet, nutrition, treatments, mental health, family dynamics, and sexuality as it relates to living with IBD.
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The Beautiful Bag is a compelling podcast that explores the world of Ostomies with compassion and authenticity. Join me as I share inspiring stories, practical insights, and educational discussions about living with an Ostomy. Each episode features guests who generously share their experiences, providing a supportive community for Ostomates and valuable knowledge for those curious about Ostomy life. Tune in to gain a deeper understanding, find empowerment, and discover the beauty within the ...
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Host James Steensma invites you into his "inner circle" as he shares his story of emotional and prescription drug addiction stemming from his ileostomy surgery and liver transplant. His brutal, honest, sincere, and funny account of his past will leave you inspired to discover your own art to letting go.
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This show was created for people living with an ostomy or those living with bowel disease that may have an ostomy in the future. Each episode contains personal stories, hints, and tips for ostomy living. Hosted by Jameson Cycz.
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IBD and the Patient-Physician Relationship
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The relationship between patient and physician in inflammatory bowel disease (IBD, Crohn's disease, ulcerative colitis) is so critical to the success of the management of the disease. Both the patient and the physician have roles to play in developing and maintaining a good working relationship. One such example of a truly special and inspirational…
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IBD and Accommodations at Work With Katie Connelly
51:53
51:53
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Amber Tresca and Katie Connelly discuss the challenges and importance of workplace accommodations for individuals with inflammatory bowel disease (IBD). Katie has been through the process of asking for accommodations with different employers and shares her personal experience, emphasizing the need for understanding the Americans with Disabilities A…
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Connecting to Cure Crohn's and Colitis With Stacy Dylan
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53:09
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Amber is joined by Stacy Dylan, co-founder and executive director of Connecting to Cure Crohn's and Colitis (CtoC). CtoC is a patient advocacy group focused on addressing unmet needs in the IBD community. Stacy founded CtoC to help other families after her son was diagnosed with Crohn's disease. CtoC offers support groups, mentorship programs, and …
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There tend to be more women than men who share their journey with inflammatory bowel disease (IBD, Crohn's disease, ulcerative colitis). The reasons are challenging to uncover, but what's clear is that more can be done to raise the visibility of men living with an IBD, ostomy, or other digestive condition. My guest is Jordan William Henry Aggen, al…
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Dr Iris Wang, assistant professor in the division of Gastroenterology and Hepatology and the Associate Program Director of the GI fellowship at Mayo Clinic in Rochester, Minnesota and Amber Tresca discuss the stigma surrounding gut health and poop. Dr Wang shares the experience of writing a children's book focused on preventing and managing constip…
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Navigating GI Issues While Training for a Marathon Embracing Life with a Chronic Illness
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53:20
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Leanne Watanabe shares her journey with ulcerative colitis and the decision to undergo surgery to remove her colon. She discusses her late discovery of fitness and her initial motivation to work out for weight loss. Leanne talks about her mentor who introduced her to marathon running and helped her believe in her abilities. She shares her experienc…
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Navigating the Emotional Journey of Living with a Chronic Illness with Dana Gebrian
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SummaryDana shares her 17-year journey with ulcerative colitis and the challenges she faced before ultimately getting an ostomy. She reflects on her carefree college years, multiple surgeries, and the disappointment of the J-pouch not working as expected. Dana discusses the emotional toll of living with a chronic illness and the importance of thera…
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What is being done to help prevent inflammatory bowel disease (IBD) in the next generation? The Genetic, Environmental, Microbial (GEM) Project is a research study from Crohn's and Colitis Canada (CCC) focused on finding possible causes for Crohn’s disease by following healthy people who are at a higher risk for developing the disease. To talk abou…
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In this episode, host LeeAnne Hayden interviews Raina about her journey with an ostomy and her book 'Bare'. Raina shares her experiences with ulcerative colitis, her decision to get an ileostomy, and her subsequent journey with a J-pouch. She discusses the role of social media in her life and how it has helped her connect with others. Raina also ta…
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Did you notice that suddenly one year you started paying more for your healthcare? Crohn's disease and ulcerative colitis are sometimes treated with medications that are expensive. Manufacturers create programs to help patients afford these drugs. In the beginning, these payments from assistance programs counted toward a yearly health insurance ded…
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Living with an Ostomy from Birth: Chloe Moody's Unique Journey
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Chloe Moody shares her unique experience of living with an ostomy since birth due to necrotizing enterocolitis. She discusses her childhood, including multiple surgeries and hospitalizations, as well as the challenges she faced in school, such as bullying and feeling different. Chloe emphasizes the importance of finding a supportive community, like…
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IBD and Somatic Therapy With Abri Bernstein
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53:24
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People with IBD are more likely to live with anxiety, depression, or other mood disorders than people who don't live with one of these conditions. For that reason, caring for mental health is as important as caring for physical health. But it doesn't always work out that way, as patients may not know how important their mental health is to their ph…
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Navigating life after 3 ostomies with guest Ann Marie
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28:21
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LeeAnne introduces guest Ann Marie Lupacckino, who has had 3 ostomies. Ann Marie shares her journey, which began 18 years ago during pregnancy with a bowel perforation. Ann Marie underwent emergency surgery to remove her large intestine while pregnant. Despite challenges, Ann Marie gave birth full-term and underwent reversal surgery a year later. A…
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In this episode I interview retire US navy man Dan Dry Dock Shockley. HIGHLIGHTS Being in the Navy and learning perseverance Recovering from a surgery and needing to be back on assignment after 9/11 Finding out about his rare genetic condition Living life in an ostomy His advocacy work How he lives by the 3 steps ADAPT, Improvise, Overcome You can …
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Introduction: LeeAnne expresses excitement for spring and its positive impact on wellness. Proper Hydration with an Iliostomy: Importance of hydration, especially with an Iliostomy. Tips for staying hydrated: carry water or herbal teas, use electrolytes. LeeAnne's personal hydration routine: drinking a gallon of water daily. Recommendations: Drink …
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Colorectal Cancer Awareness Month With Dan "Dry Dock" Shockley
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32:51
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Diagnosed with attenuated familial adenomatous polyposis (AFAP), retired Navy veteran Dan "Dry Dock" Shockley shares his remarkable journey of service, diagnosis, and advocacy. Following his diagnosis, Shockley became a passionate advocate for early detection and reducing the stigma associated with living with an ostomy. He emphasizes the importanc…
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Thriving Through Challenges: Cass Roberts' Journey
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Introduction: LeeAnne Hayden welcomes listeners to the episode from her loft, introducing Cass Roberts as her guest. They met at the UAA convention in August and bonded over their shared experiences. Dancing and Transformative Power: Cass shares her love for dancing and how it has been transformative for her. She reflects on the immense joy she exp…
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Fueling Your Health Journey: Nourish, Hydrate, and Thrive with LeeAnne Hayden!
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In this episode, I, LeeAnne Hayden, emphasize the crucial role of nutrition in maintaining overall health and well-being. I stress the importance of consuming a balanced diet rich in nutrients, including whole grains, fruits, vegetables, lean meats, and healthy fats. Throughout the discussion, I recognize that individual preferences and tolerances …
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Finding Hope and Community Through Ostomy Surgery
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Join us this week as Nikki Kilpatrick shares her inspiring journey through ostomy surgery and the profound impact of mindset and community support on her recovery. Nikki's story highlights the power of connecting with others who have undergone similar experiences, emphasizing the importance of positivity and advocacy in facing health challenges. Tu…
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Title: Embracing Self-Love: Body Positivity and Self-Esteem Description: Join host LeeAnne Hayden in this powerful episode of the Beautiful Bag podcast as she delves into the crucial topics of body positivity and self-esteem. With a compassionate heart and insightful perspective, LeeAnne guides listeners through practical steps to cultivate self-lo…
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Guest Jenny Harrison - Ostomy Journey and the lessons learned from a father
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In this episode of The Beautiful Bag, host LeeAnne Hayden sits down with Jenny Harrison, a remarkable individual whose journey with gastrointestinal challenges serves as a testament to the power of strength and determination. Introduction: LeeAnne and Jenny dive deep into Jenny's journey, exploring the highs and lows, the triumphs and tribulations,…
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Love and Relationships: A Journey of Communication and Connection
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23:13
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LeeAnne greets listeners and wishes them a happy Valentine's Day. She explains that her husband was supposed to join her for the episode but couldn't make it. Instead, she discusses the theme of love and relationships, reflecting on her own journey with her husband. Discussion Highlights: LeeAnne shares the story of how she and her husband met and …
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Making Crohn's Disease Funny With Matt Nagin
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36:35
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We can hold two truths: Crohn’s disease is funny. It is also not funny. I speak with Matt Nagin, who has many talents, but we focus on his work as a comedian and actor living with Crohn’s disease. Our discussion focuses on how people need laughter and comedy in their lives. Yet, living with an illness like inflammatory bowel disease (IBD), it can b…
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Navigating Life with HSAN IV: Tori Judson's Inspiring Journey
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Join your host, LeeAnne Hayden, in this heartening episode of "The Beautiful Bag Podcast," coming to you from New Hampshire. This week, we are honored to have Tori Judson, a remarkable guest who shares her unique and rare journey living with HSAN IV and navigating life as a double ostomate. Diagnosed at 19, Tori's story is one of resilience, courag…
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The Global Ostomy Community: Uniting 13.5 Million Strong
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22:52
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Episode Summary: Join LeeAnne Hayden, broadcasting from a snowy New Hampshire loft, for an enlightening solo episode of "The Beautiful Bag Podcast." As we journey through the heart of winter, LeeAnne shares eye-opening statistics that underscore the vastness and diversity of the global ostomy community. With insights gathered from a recent brand aw…
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What did you read over the past year? If you made a reading goal: did you hit it? The books I read in 2023 included biographies, fantasy, fiction, and romance. Plus, I had several authors who live with Crohn’s disease or ulcerative colitis on the show this year, so I read their books as well. Hear more about some of the books I enjoyed in 2023, how…
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Traveling with an Ostomy: Tips, Tricks, and Stories
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17:28
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In this solo episode of "The Beautiful Bag Podcast," host LeeAnne Hayden shares invaluable insights and personal experiences about traveling with an ostomy. From preparing for your journey, whether by plane, train, or automobile, to practical advice on managing your ostomy supplies, LeeAnne covers it all. Tune in to learn about handling airport sec…
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The Beautiful Bag Podcast - Celebrating Four Years and Embracing Self-Love
22:49
22:49
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In This Episode: Celebrating 4 Years: Reflecting on the journey of 'The Beautiful Bag Podcast' now entering its fourth year. Gratitude: A heartfelt thank you to listeners for tuning in weekly and sharing in the stories of resilience and inspiration. Surviving and Thriving: Emphasizing the importance of resilience and thriving despite life's obstacl…
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A diagnosis of inflammatory bowel disease (Crohn’s disease, ulcerative colitis, IBD) affects the entire family. When it’s a child that’s diagnosed, it changes so many things and brings a host of challenges. Families experience many unmet needs related to IBD. My guest is Lisa Fournier of IBD Connect. Lisa is the mother of two children who live with…
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The Ostomy Odyssey - Sara Levitt's Journey of Self-Discovery and Strength
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In this episode, LeeAnne Hayden engages in a heartfelt conversation with Sara Levitt about her life with an ostomy. Sara shares her personal experiences, including her struggles and triumphs in dealing with Crohn's disease, her journey towards self-acceptance, and how she has become a source of inspiration for others. Episode Highlights: Introducti…
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Introduction LeeAnne welcomes listeners to Episode 120 of the Beautiful Bag Podcast. She acknowledges that it's a special solo episode and mentions that it's Christmas. LeeAnne shares her recent 53rd birthday celebration and expresses gratitude for life. Celebrating Christmas LeeAnne talks about the significance of Christmas and her personal belief…
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Post-Traumatic Stress Disorder and IBD With Stephanie Brenner, LCSW, MSW
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My guest is Stephanie Brenner of Chronic Illness Psychotherapy. Stephanie is a Licensed Clinical Social Worker who has experience in working with clients with chronic illnesses. She has also taken on a variety of roles in GI space, including previously serving on both the advisory team for the Pediatric Crohn’s Guidebook and the recruitment committ…
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How to deal with blockages with an Ostomy
17:34
17:34
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Hello, beautiful souls! I'm LeeAnne Hayden, your host, and I'm thrilled to welcome you to another inspiring episode of "The Beautiful Bag Podcast." Whether you're tuning in during your morning coffee or unwinding at night, I want to express my deepest gratitude for being a part of our amazing community. Episode Highlights: A Personal Journey: In th…
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Triumph Over Adversity: Crystal's Journey as a Double Ostomate
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29:38
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LeeAnne Hayden, host of "The Beautiful Bag Podcast," welcomes listeners to Episode 118, expressing gratitude for their continual support and encouraging them to share the podcast on social media. Reminder: LeeAnne encourages listeners on Apple Podcasts to leave ratings and reviews to help promote the show. Guest Introduction: Crystal, a double osto…
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IBD in the Hispanic Community With Oriana Damas, MD
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As an assistant professor of medicine in the Division of Gastroenterology at the University of Miami Miller School of Medicine, and the Director of Translational Studies for the Crohn’s and Colitis Center, Dr. Damas sheds light on the misconception that IBD only affects certain ethnicities. Her extensive research explores the connection between of …
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Embracing Life with a Stoma: Raphaela's Journey
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29:14
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In Episode #117 of "The Beautiful Bag" podcast, host LeeAnne Hayden is joined by Raphaela, a former flight attendant from the UK, to discuss her transformative journey with an ostomy bag. Diagnosed with stage 2 bowel cancer, Raphaela shares her story, from her initial diagnosis and surgery to how she embraced life with a stoma. We delve into the im…
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