We’ve all had a moment where we arrived at the grocery store and can’t remember passing any of the stoplights along the way. We’re halfway down an aisle and scrambling to remember what we even needed. Our mind is in overdrive trying to sort through our ever-growing to-do list. We’ve been there when just making it through the next task is hard. But the normal stresses of life aren’t the only thing YOU have to deal with. Nora McInerny hosts The Head Start: Embracing the Journey, a new podcast ...
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IBD and Somatic Therapy With Abri Bernstein
Manage episode 412774889 series 2327091
Content provided by About IBD With Amber J Tresca and Amber J Tresca. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by About IBD With Amber J Tresca and Amber J Tresca or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
People with IBD are more likely to live with anxiety, depression, or other mood disorders than people who don't live with one of these conditions. For that reason, caring for mental health is as important as caring for physical health. But it doesn't always work out that way, as patients may not know how important their mental health is to their physical health, or may not have access to a mental health professional. Abri Bernstein shares her personal journey with ulcerative colitis (UC) and how somatic psychotherapy helped her cope with living with the disease. Abri explains somatic psychotherapy as a holistic approach to healing that focuses on the body and nervous system regulation. She describes various modalities, such as somatic experiencing, sensorimotor psychotherapy, and acceptance and commitment therapy (ACT), emphasizing the importance of addressing trauma stored in the body for healing to occur.
Resources and information discussed in this episode:
- What Is Somatic Therapy?
- Trauma and the Nervous System: A Polyvagal Perspective
- Polyvagal Institute
- The Trauma Foundation
- Bonaz B, Sinniger V, Pellissier S. Therapeutic Potential of Vagus Nerve Stimulation for Inflammatory Bowel Diseases. Front Neurosci. 2021;15:650971. Published 2021 Mar 22. doi:10.3389/fnins.2021.650971.
- Polyvagal Theory: A Science of Safety
Find Abri Bernstein at:
- Web: Healing With Abri
- LinkedIn: Abri Berstein
- Email: abribern@gmail.com
Find Amber J Tresca at:
- AboutIBD.com: About IBD
- Verywell: Verywell Health
- Facebook: @aboutIBD
- Twitter: @aboutIBD
- Pinterest: @aboutibd
- Instagram: @about_IBD
Find Mac Cooney (mix, sound design, and theme music) at:
- Facebook: @maccooneycomposer
- Instagram: @maccooneycomposer
- Web: Cooney Studio
- Theme music, IBD Dance Party, is from ©Cooney Studio.
Episode transcript and more information at: https://bit.ly/AIBD150
These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
188 episodes
ShareManage episode 412774889 series 2327091
Content provided by About IBD With Amber J Tresca and Amber J Tresca. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by About IBD With Amber J Tresca and Amber J Tresca or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
People with IBD are more likely to live with anxiety, depression, or other mood disorders than people who don't live with one of these conditions. For that reason, caring for mental health is as important as caring for physical health. But it doesn't always work out that way, as patients may not know how important their mental health is to their physical health, or may not have access to a mental health professional. Abri Bernstein shares her personal journey with ulcerative colitis (UC) and how somatic psychotherapy helped her cope with living with the disease. Abri explains somatic psychotherapy as a holistic approach to healing that focuses on the body and nervous system regulation. She describes various modalities, such as somatic experiencing, sensorimotor psychotherapy, and acceptance and commitment therapy (ACT), emphasizing the importance of addressing trauma stored in the body for healing to occur.
Resources and information discussed in this episode:
- What Is Somatic Therapy?
- Trauma and the Nervous System: A Polyvagal Perspective
- Polyvagal Institute
- The Trauma Foundation
- Bonaz B, Sinniger V, Pellissier S. Therapeutic Potential of Vagus Nerve Stimulation for Inflammatory Bowel Diseases. Front Neurosci. 2021;15:650971. Published 2021 Mar 22. doi:10.3389/fnins.2021.650971.
- Polyvagal Theory: A Science of Safety
Find Abri Bernstein at:
- Web: Healing With Abri
- LinkedIn: Abri Berstein
- Email: abribern@gmail.com
Find Amber J Tresca at:
- AboutIBD.com: About IBD
- Verywell: Verywell Health
- Facebook: @aboutIBD
- Twitter: @aboutIBD
- Pinterest: @aboutibd
- Instagram: @about_IBD
Find Mac Cooney (mix, sound design, and theme music) at:
- Facebook: @maccooneycomposer
- Instagram: @maccooneycomposer
- Web: Cooney Studio
- Theme music, IBD Dance Party, is from ©Cooney Studio.
Episode transcript and more information at: https://bit.ly/AIBD150
These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
188 episodes
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1 GetYourBellyOut: Picturing Hope for IBD Featuring Victoria Marie 52:46
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Play Later Play Later Lists Like LikedIn this episode, Victoria, founder of GetYourBellyOut, shares her journey with ulcerative colitis and the importance of community support for those with inflammatory bowel disease (IBD). She discusses her diagnosis experience, the challenges of navigating healthcare, and the need for better patient advocacy. Victoria highlights the organization's growth, its initiatives like the IBD Nurse Helpline leaflets, and the significance of connecting patients with healthcare providers. She emphasizes the importance of funding to expand their services and create more opportunities for support, while also reflecting on the personal connections that drive her passion for this work. Topics covered on this episode: Personal journey with ulcerative colitis and diagnosis experience Emotional and physical challenges of living with inflammatory bowel disease (IBD) Importance of community support and connection for individuals with chronic illnesses Founding and evolution of the organization "GetYourBellyOut" Advocacy and awareness efforts for IBD and its impact on patients Family dynamics and the effects of IBD on relationships Role of social media in connecting individuals with IBD Challenges of being a public figure in the IBD community Importance of patient feedback in improving care and resources Future goals and initiatives for expanding support and resources for those affected by IBD Find GetYourBellyOut on: Web: https://getyourbellyout.org.uk/ Facebook: @getyourbellyout Twitter: @getyourbellyout Instagram: @getyourbellyout_official LinkedIn: @getyourbellyout-cic Tik Tok: @getyourbellyout_official Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD175 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
Amber and gastroenterologist Dr Neil Parikh discuss technology’s impact on IBD management. Dr Parikh emphasizes the importance of patient diaries and open communication between patients and providers. They also address concerns about data privacy, integrating holistic approaches in patient care, and the potential of wearable technology in gastroenterology. Find Neil D. Parikh, MD at: Web: Connecticut GI LinkedIn: Neil D. Parikh, MD Find The Gut Doctor Podcast at: RSS feed Apple Podcasts Spotify All other podcast apps Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD174 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
1 Reclaiming Joy in Eating with IBD Featuring Stacey Collins, MA, RDN/LDN 57:50
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Play Later Play Later Lists Like LikedPeople with Crohn's disease or ulcerative colitis (forms of inflammatory bowel disease, or IBD) were told for many decades that diet didn't affect the disease. Even today, some patients are still told this, even though there is now significant evidence that diet absolutely matters in IBD. Stacey Collins, MA, RDN/LDN describes how her journey with ulcerative colitis led to j-pouch surgery. Her philosophy as a registered dietician is one of “nutrition by addition" rather than by dietary restriction. Stacey also focuses on the emotional aspects of eating with IBD, including the understandable fear and anxiety around food. Topics discussed: The role of diet in managing inflammatory bowel disease (IBD). Personal experiences with ulcerative colitis and dietary management. The misconception that diet does not impact IBD management. The philosophy of "nutrition by addition" versus dietary restrictions. The importance of individualized dietary approaches for IBD patients. The impact of food on gut health and bacterial diversity. Emotional aspects of eating with IBD, including fear and anxiety around food. The significance of finding joy in cooking and eating. Practical dietary recommendations for IBD patients, including the Mediterranean diet. The importance of community support and connection in managing IBD. Find Stacey Collins, MA, RDN/LDN at: Stacey Collins Nutrition: https://www.staceycollinsnutrition.com/ Twitter: @staceynellc_rd Instagram: @staceynellc_rd LinkedIn: @stacey-cutler-collins Publications from Stacey Collins, MA, RDN/LDN: Scarlata K, Zickgraf HF, Satherley RM, et al. A Call to Action: Unraveling the Nuance of Adapted Eating Behaviors in Individuals with GI Conditions . Clin Gastroenterol Hepatol . Published online December 14, 2024. doi:10.1016/j.cgh.2024.11.010 Collins S, DIGID Inflammatory Bowel Diseases Workgroup. Iron in GI conditions. Patient.Gastro.org . 2024. https://patient.gastro.org/iron-in-gi-conditions/ Collins S, Castelan VC, Wernick R, et al. Effects of nutrition status and perioperative nutrition supplement completion on postoperative outcomes in patients with inflammatory bowel disease undergoing surgery . Gastroenterology . 2024;166(3):S22-S23. doi:10.1053/j.gastro.2023.11.081 Collins S. Surgery and Nutrition. Crohn’s & Colitis Foundation. 2024. https://www.crohnscolitisfoundation.org/patientsandcaregivers/diet-and-nutrition/surgery-and-nutrition . Nishioka H, Hasegawa Y. Addressing sarcopenia in people with disabilities: definition, assessment, and nutritional care. Medical Nutrition Matters. Reviewed by Collins S. October 1, 2024. https://www.eatrightstore.org/dpg-and-mig-products/dmnt/addressing-sarcopenia-in-people-with-disabilities-definition-assessment-and-nutritional-care . Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD 173 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
1 Infusion Hero: Stylish Hoodies for Young Patients Featuring Rachel Bee 33:25
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Play Later Play Later Lists Like LikedIBD patients are innovative, resilient, and powerful. My guest, Rachel Bee, is an incredible example of all these virtues. Rachel is a remarkable 17-year-old entrepreneur who was diagnosed with Crohn's disease at just 13 years old. She turned her experiences with IBD into a mission to help others by founding Infusion Hero, a company that designs innovative hoodies specifically for young patients receiving infusions. Infusion Hero hoodies provide comfort and feature a unique design that allows for easy access during medical treatments. Rachel shares her story of navigating the challenges of her diagnosis, balancing high school, and running a business—all while maintaining her health and staying connected with friends. Don't miss Rachel's insights on how to turn personal challenges into opportunities for growth and innovation. Discussion points include: Personal health journeys related to inflammatory bowel disease (IBD) Experiences of living with Crohn's disease as a teenager The impact of chronic illness on daily life and activities The importance of education and support for young patients with IBD The creation and purpose of Infusion Hero, a clothing line for infusion patients Balancing health, school, and entrepreneurial endeavors The role of mentorship and resources for young entrepreneurs Emotional aspects of managing chronic illness during adolescence The significance of community support and relationships with peers and teachers Future aspirations and educational goals for young patients and entrepreneurs Find Rachel Bee of Infusion Hero at: Web: https://www.infusionhero.com/ LinkedIn: Rachel Bee Facebook: Infusion Hero Instagram: @infusion_hero Tik Tok: @infusion.hero Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD172 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
1 Freelancing Freedom: Crafting Your Career While Caring for Your Health 46:18
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Play Later Play Later Lists Like LikedIt's not easy to manage both a career and chronic illness like inflammatory bowel disease (IBD, Crohn's disease, or ulcerative colitis). We need tools and tips in order to keep everything moving and succeed at work while caring for ourselves. I talk with Jen Hubley Luckwaldt about how freelancing can be a valid way of meeting both goals. Jen shares her journey from traditional employment to freelancing, including how it offers her flexibility in balancing work, health, and family. We talk about the importance of setting boundaries with clients, how to identify your marketable skills, and building a supportive community. Jen emphasizes the value of an abundance mindset in freelancing and offers practical tips for finding work and managing time effectively. If you've ever wondered how you can manage to work while still making it to infusions and appointments: we have a roadmap for you. Episode highlights: Managing a career while living with inflammatory bowel disease (IBD) Challenges of maintaining traditional full-time employment with chronic illness Advantages of freelancing, including flexibility and work-life balance Importance of setting boundaries with clients Identifying marketable skills for freelancing The role of community and support in a freelance career Strategies for effective communication and feedback in professional settings Tools and resources for freelancers to enhance productivity The concept of an abundance mindset in freelancing Find Jen Hubley Luckwaldt and The Job Hopper at: The Job Hopper: https://thejobhopper.substack.com Bluesky: @jenlucky.bsky.social Old Mom Things: https://oldmomthings.substack.com/ LinkedIn: @jen-hubley-luckwaldt Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD 171 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
1 Declutter Your Life While Living with Chronic Illness 1:04:57
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Play Later Play Later Lists Like LikedDo you find it difficult to find the time and energy to deal with mental or physical clutter? Lisa Zawrotny, a productivity coach and founder of Positively Productive Systems, helps us learn how to manage clutter, even when flaring. We discuss practical strategies for decluttering both your physical space and mental load, and how to celebrate even the smallest victories in your day-to-day life. Plus, Lisa reveals her insights on creating systems that work for you, no matter your circumstances. If you’ve ever felt weighed down by expectations or struggled to find balance, this episode is packed with valuable takeaways that can help you reclaim your time and energy. Key points: Intersection of productivity and chronic illness Challenges faced by caregivers and individuals with chronic conditions Personal journey of caregiving and its impact on productivity coaching Importance of compassion and realistic approaches to productivity Strategies for managing stress and clutter Prioritization of tasks and setting boundaries Techniques for decluttering and energy management Celebrating small wins and acknowledging achievements The role of journaling in emotional healing and reflection Building community and support for individuals with chronic illnesses Episode sponsored by Connecting to Cure Crohn's and Colitis . Find Lisa Zawrotny of Positively Productive Systems at: Web: www.positivelyproductive.com LinkedIn: @positivelyproductive Facebook: @positivelyproductive Twitter: @positively_lisa Instagram: @positively_lisa YouTube: @positively_lisa Tik Tok: @positivelylivingpodcast Pinterest: @positivelyproductive Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD170 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
1 Embracing Life with an Ostomy Featuring Danielle Barlieb 31:37
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Play Later Play Later Lists Like LikedDanielle Barlieb was diagnosed with Crohn's disease in childhood. She discusses her experiences with diagnosis, surgeries, and becoming a mother, including the challenges of a permanent ileostomy. Danielle emphasizes the importance of mental health, sharing her struggles and the support she received from her family. She also talks about dating with an ostomy, encouraging others not to let fear hold them back. Finally, she highlights her son's interests and the joy he brings to her life, along with resources for women with inflammatory bowel disease. Information and resources discussed on this episode include: National Alliance on Mental Illness Suicide Hotlines and Prevention Resources Around the World Girls with Guts Camp Oasis IBD Parenthood Project PIANO (Pregnancy Inflammatory bowel disease And Neonatal Outcomes) Study Find Danielle Barlieb at: Tik Tok: @always.danielle.barlieb Instagram: @always.danielle.barlieb Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD169 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
1 Why Representation Matters for the LGBTQ+ Community 51:02
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Play Later Play Later Lists Like LikedThere's a need for more research addressing social determinants of health in the inflammatory bowel disease (IBD) community. Cass Condray, an IBD researcher who also lives with an IBD, points out the lack of information and resources focused on the unique experiences of LGBTQ patients. Cass also talks about the significance of representation in research, and the impact that intersecting identities have on people's health outcomes. Plus, we talk about Cass' web site, PrideAndPoop.com, what his hopes are for the future, and what there is to do in Oklahoma. Find Cass Condray at: Web: Pride and Poop Bluesky: @cdalecondray.bsky.social LinkedIn: Cass Condray Google Scholar: Cass Dale Condray Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD168 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
1 How to Thrive as a Parent with IBD Featuring Jaime Holland 40:31
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Play Later Play Later Lists Like LikedAmber hands over hosting duties to Jamie Holland, a patient advocate with Crohn's disease. They discuss their personal experiences with inflammatory bowel disease (IBD). They focus on Amber's decision to have j-pouch surgery after being diagnosed with dysplasia and the effects it had on her fertility. Jamie asks Amber to share about the emotional and physical challenges of motherhood with IBD, including fatigue and guilt. They also touch on the possibility of passing IBD on to children and the importance of community and support. Concepts discussed on this episode: Xue M, Leibovitzh H, Jingcheng S, et al. Environmental Factors Associated With Risk of Crohn's Disease Development in the Crohn's and Colitis Canada - Genetic, Environmental, Microbial Project . Clin Gastroenterol Hepatol . 2024;22(9):1889-1897.e12. doi:10.1016/j.cgh.2024.03.049. Singh N, Bernstein CN. Environmental risk factors for inflammatory bowel disease . United European Gastroenterol J . 2022;10(10):1047-1053. doi:10.1002/ueg2.12319. Oh SJ, Kim HJ, Lee CK; Big Data Research Group (BDRG) of the Korean Society of Gastroenterology. A dose-dependent increase in the risk of inflammatory bowel disease after exposure to broad-spectrum antibiotics: A national population study in Korea . Aliment Pharmacol Ther . 2023;58(2):191-206. doi:10.1111/apt.17542 Growing Up With a Dog Might Lower Crohn’s Risk My IBD Life Parenthood Project Inflammatory Bowel Disease (IBD): Everything You Need to Know Find Jaime Holland at: Facebook: @prettyrottenguts Instagram: @prettyrottenguts Tik Tok: @prettyrottenguts Bluesky: @prettyrottenguts.bsky.social Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD167 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
1 Navigating Hernia Surgery Featuring Mike Tresca 1:22:35
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Play Later Play Later Lists Like LikedAmber is joined by her husband, Mike, who recently underwent robotic hernia surgery. In this candid conversation, they explore the entire experience—from the initial discovery of the hernia to the surgery itself and the recovery process that followed. Mike shares his insights on the challenges he faced, including unexpected pain, dietary adjustments, and the importance of having a supportive caregiver. They also discuss the nuances of patient-provider communication and how to navigate the complexities of post-surgery life. Whether you’re considering surgery or simply curious about the process, this episode offers valuable lessons and firsthand experiences that might resonate with you. Episode transcript and more information at: https://bit.ly/AIBD166 Find Michael Tresca at World of Welstar: Twitter: @WorldofWelstar Instagram: @world_of_welstar Facebook: @worldofwelstar MeWe: http://tinyurl.com/MeWeTRPG Threads: http://tinyurl.com/threadsWOW Bluesky: https://blskyl.ink/worldofwelstar Amazon: http://amzn.to/41jMn5h EN World: http://tinyurl.com/ENWRPG Drive Through RPG: http://tinyurl.com/DTRPGMNT Patreon: https://www.patreon.com/talien Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party , is from ©Cooney Studio. These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
Amber shares some of the books she read over the previous year including biographies, young adult fiction, bestsellers, and romance. Hear about Amber's reading list from 2024, which was truly a mixed bag. The good news is that it contains something for everyone. Plus: learn about how you can read or listen to books for free using your local library — maybe without even leaving your house. Library apps mentioned in this episode: Libby Hoopla Freegal Music Books mentioned in this episode: Leave the World Behind by Rumaan Alam The Giver by Lois Lowry Warrior Girl Unearthed by Angeline Boulley The Woman in Me by Britney Spears My Sister, the Serial Killer by Oyinkan Braithwaite Yellowface by R. F. Kuang Everyone Here Is Lying by Shari Lapena The Cloisters by Katy Hays Rebel Rising by Rebel Wilson I am Not Your Perfect Mexican Daughter by Erika L. Sanchez Once There Were Wolves by Charlotte McConaghy Hello, Molly! by Molly Shannon Leslie F*cking Jones by Leslie Jones Everything, Everything by Nicola Yoon Funny Story by Emily Henry Snowglobe by Soyoung Park Find Katie Connelly and the Chronically Ch(ill) Book Club at: Instagram Discord Server Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD165 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
1 "Fine" Dining With Crohn's Disease Featuring Michael Ornelas 1:02:19
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Play Later Play Later Lists Like LikedWhat's the difference between ulcerative colitis and Crohn's disease? We talk about them like they're two distinct sides of a spectrum, but there are people who don't have a firm place on that continuum. Amber Tresca talks with Michael Ornelas, host of the "Fine" Dining podcast, about his journey with IBD. Michael was first diagnosed with proctitis, then Crohn's disease, and later, maybe, with ulcerative colitis. Michael shares his experiences with symptoms, treatments, and the impact IBD has on life. But it's not all serious! Michael also talks about his comedy podcast, "Fine" Dining, which encompasses the search for mediocrity in chain restaurants. Maybe an unexpected choice for a project for person with IBD, so they also discuss Michael's unique perspectives on food. Find Michael Ornelas and the "Fine" Dining Podcast at: Web: https://www.finediningpodcast.com/ Tik Tok: @finediningpodcast Instagram: @finediningpodcast YouTube: @finediningpodcast Spotify: https://open.spotify.com/show/0YQGBigjvjtme7rYqrHZRw? Apple Podcasts: https://podcasts.apple.com/us/podcast/fine-dining/id1649646224 Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD164 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
1 "3 Kidneys, No Colon" With Dave Piontkowski 40:06
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Play Later Play Later Lists Like LikedFor people living with inflammatory bowel disease (IBD), the path to pursuing our dreams can look different from that of our peers. Stand-up comedian Dave Piontkowski, lives with not only ulcerative colitis, but also chronic kidney disease. He developed a one-man show called "Three Kidneys, No Colon," which describes his journey with both of these conditions. Dave talks about how and why his comedy actually improved while he was fighting for his life with kidney disease. He also tells us how his comedy is connecting the chronic illness community, but there are some audience members who find it can be too much. Find Dave Piontkowski at: YouTube: @dpcomedy Instagram (check his bio for show tickets): @davepcomedy Get tickets to 3 Kidneys No Colon in Tampa, FL on December 7 at 8:00 p.m (The Commodore, 811 E. 7th Ave. Tampa, FL 33602) Find Amber J Tresca at: AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD https://www.threads.net/@about_ibd Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD163 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
Alicia and Robin, co-hosts of the "Bowel Moments" podcast, join Amber for a discussion about podcasting in the IBD community. Robin shares her IBD journey, including her diagnosis of ulcerative colitis, the complications that led to an ileal anal anastomosis, the later diagnosis of Crohn's disease, and evebtyak J-pouch surgery. They also talk about the challenges of producing the podcast, the importance of therapy, and keeping up a social media presence. The conversation highlights the emotional and logistical aspects of creating a podcast about IBD. Select episodes of Bowel Moments: Bowel Moments Episode 1 : Get to know your co-host Robin and Alicia! Bowel Moments Episode 6 : A Tale of 2 Surgeries Bowel Moments Episode 20 : Meet Robin's Daughters - Logan & Baylee! Find Robin and Alicia on Bowel Moments at: Web: BowelMomentsPod.com Facebook: @thebmpodcast Twitter: @bowelmomentspod Instagram: @bowelmomentspod LinkedIn: Bowel Moments Pod Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD162 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
1 Finding the Balance - Honoring Veteran's Day With Stephanie Gish 59:18
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Play Later Play Later Lists Like LikedStephanie Gish, host of the Crohn's Fitness Food podcast, gives the details of her journey with Crohn's disease and IGA nephropathy. Stephanie's Crohn's symptoms began in 2003, but she was initially misdiagnosed with an anal fissure. After being discharged from the Army for medical reasons unrelated to IBD, she went through years of fragmented care, and finally received a Crohn's diagnosis in 2009. Stephanie brought her knowledge of health and fitness to bear in managing Crohn's, but the diagnosis of IGA nephropathy had her changing course and rethinking her approach. Buy "Crohn's, Fitness, Food and My Rock Road to Health" at Amazon: Paperback Ebook Audiobook Find Stephanie Gish at: Web: Crohn's Fitness Food Facebook: @crohnsfitnessfood Podcast: Crohn's Fitness Food LinkedIn: @stephlivsey Instagram: @crohnsfitnessfood Find Amber J Tresca at: AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD https://www.threads.net/@about_ibd Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD161 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
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About IBD
Amber interviews Alison McGauley, a teacher and author of "Kenzie's Little Tree," a children's book about a girl whose mother lives with chronic illness. Alison shares her journey with ulcerative colitis, irritable bowel syndrome (IBS), and ankylosing spondylitis, and how her hospitalization impacted her two daughters. She emphasizes the importance of talking about illness with children to help them process their emotions. Alison’s book, set to release in March 2025, aims to provide a narrative for families dealing with chronic illness. Pre-orders are available, with proceeds donated to Crohn's and Colitis Canada and the Arthritis Society. Buy Alison's book: https://www.alisonmcgauley.com/books/my-books Find Alison McGauley at: Web: https://www.alisonmcgauley.com Facebook: @author.alison.mcgauley Twitter: @AlisonMcgauley YouTube: @AlisonMcGauleyAuthor Instagram: @alisonmcgauley Find Amber J Tresca at: AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD https://www.threads.net/@about_ibd Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD160 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
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About IBD
1 Choosing Ostomy Surgery With Hannah Martin-Spencer 58:46
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Play Later Play Later Lists Like LikedIs it surprising to learn that some people living with IBD choose to have ostomy surgery? Hannah, a 24-year-old woman, shares her journey through the initial symptoms of IBD at the age of 15, to getting a diagnosis of ulcerative colitis. She describes how her symptoms worsened after diagnosis, including bleeding, bowel urgency, and fatigue, which led to multiple hospitalizations. Hannah advocated for surgery to treat her pancolitis, despite an initial difference of opinion with her medical team. After surgery, Hannah's symptoms were significantly improved and she regained a sense of normalcy in her life. Hannah discusses the pros and cons of choosing an ostomy over a J-pouch, the importance of quality of life, and how surgery could impact her future fertility. Concepts discussed on this episode: Yang X, He M, Tang Q, et al. Assessment of anti-inflammatory efficacy of acupuncture in patients with inflammatory bowel disease: A systematic review and meta-analysis. Complement Ther Med. 2023;74:102946. doi: 10.1016/j.ctim.2023.102946 . Bao C, Wu L, Wang D, et al. Acupuncture improves the symptoms, intestinal microbiota, and inflammation of patients with mild to moderate Crohn's disease: A randomized controlled trial. EClinicalMedicine. 2022;45:101300. doi: 10.1016/j.eclinm.2022.101300 . Bae JH, Kang SY, You SE, Jeong HI, Jang S, Kim KH. The Effects of Acupuncture on Crohn's Disease: a systematic review and meta-analysis. J Pharmacopuncture. 2023;26(3):211-226. doi: 10.3831/KPI.2023.26.3.211 . Find Hannah Martin-Spencer on: Instagram: @hans_colitisjourney Find Amber J Tresca at: AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD https://www.threads.net/@about_ibd Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD159 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
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About IBD
Christina King shares her journey with being diagnosed with Crohn's disease in 2021. She was misdiagnosed with gastritis and hemorrhoids, until her severe symptoms of rectal bleeding and weight loss, plus multiple trips to the emergency department led to a hospitalization. An in-patient colonoscopy finally led to a diagnosis of Crohn's, and she was finally able to get treatment and improve. She was unable to go to school with her high school graduating class, and is now ready to start pursuing her dream of becoming a nurse. Christina tells Amber where she went for information in the early days after diagnosis and how she's approaching accommodations for IBD as she begins school. Find Christina King at: Twitter: @cking5498 Instagram: @christina_king227 SnapChat: @christinaking16 Find Amber J Tresca at: AboutIBD.com: About IBD Verywell Health: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD158 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
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About IBD
The relationship between patient and physician in inflammatory bowel disease (IBD, Crohn's disease, ulcerative colitis) is so critical to the success of the management of the disease. Both the patient and the physician have roles to play in developing and maintaining a good working relationship. One such example of a truly special and inspirational patient-physician relationship is illustrated here between Dr Julie Spivack, a gastroenterologist with Connecticut GI, and Rosa, her patient. Rosa and Dr Spivack discuss their close bond and how the listening, empathy, honesty, and open-mindedness work to build trust and achieve successful outcomes in patient-physician relationships Find Julie Spivack, MD at: Web: Connecticut GI Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD157 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
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About IBD
1 IBD and Accommodations at Work With Katie Connelly 51:53
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Play Later Play Later Lists Like LikedAmber Tresca and Katie Connelly discuss the challenges and importance of workplace accommodations for individuals with inflammatory bowel disease (IBD). Katie has been through the process of asking for accommodations with different employers and shares her personal experience, emphasizing the need for understanding the Americans with Disabilities Act (ADA). She relates her experience and gives advice to both employers and employees on how to manage the accommodation journey. Plus, she gives the resources that she found most helpful to help her learn about her rights as an employee. Find Katie Connelly at: Spotify: Katie Connelly Web: Badass With a Bad Ass LinkedIn: Katie Connelly Instagram: @badass.w.a.bad.ass Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD156 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
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About IBD
1 Connecting to Cure Crohn's and Colitis With Stacy Dylan 53:09
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Play Later Play Later Lists Like LikedAmber is joined by Stacy Dylan, co-founder and executive director of Connecting to Cure Crohn's and Colitis (CtoC). CtoC is a patient advocacy group focused on addressing unmet needs in the IBD community. Stacy founded CtoC to help other families after her son was diagnosed with Crohn's disease. CtoC offers support groups, mentorship programs, and gut-friendly workouts. Stacy offers advice to parents of children with IBD, encouraging them to take things one step at a time and not be overwhelmed by information from the internet. Follow Connecting to Cure: Web: https://www.connectingtocure.org Twitter: @connecttocure Instagram: @connectingtocure Facebook: @ConnectingToCure Follow Stacy’s Medium page at: https://stacyjdylan.medium.com . Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD155 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
There tend to be more women than men who share their journey with inflammatory bowel disease (IBD, Crohn's disease, ulcerative colitis). The reasons are challenging to uncover, but what's clear is that more can be done to raise the visibility of men living with an IBD, ostomy, or other digestive condition. My guest is Jordan William Henry Aggen, also known as Crohn's Trooper. Jordan emphasizes the importance of open communication, pre-planning, and finding support from friends, family, and social media to cope with the disease. Concepts discussed on this episode: Which is Nerdier: Star Wars or Star Trek? Find Jordan William Henry Aggen at: Facebook: @JWHA2011 Instagram: @crohnstrooper Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD154 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
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About IBD
Dr Iris Wang, assistant professor in the division of Gastroenterology and Hepatology and the Associate Program Director of the GI fellowship at Mayo Clinic in Rochester, Minnesota and Amber Tresca discuss the stigma surrounding gut health and poop. Dr Wang shares the experience of writing a children's book focused on preventing and managing constipation titled "Boo Can't Poo!" They also discuss the challenges of publishing a book on gut health and the potential benefits of talking about poop and toileting, emphasizing the importance of open communication and personalized treatment. Listen to learn about where you can get "Boo Can't Poo!" and how parents with IBD can manage their anxiety around the idea of their kids developing IBD. Order "Boo Can't Poo!" ISBN 9798887701431: Mayo Clinic Press Amazon Barnes and Noble Bookshop.org Target Walmart Find Xiao Jing "Iris" Wang, MD at: Twitter: @IrisWangMD LinkedIn: @xiao-jing-wang-b755339 Instagram: @iriswangmd Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer YouTube: @MacCooneyComposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD153 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
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About IBD
What is being done to help prevent inflammatory bowel disease (IBD) in the next generation? The Genetic, Environmental, Microbial (GEM) Project is a research study from Crohn's and Colitis Canada (CCC) focused on finding possible causes for Crohn’s disease by following healthy people who are at a higher risk for developing the disease. To talk about GEM, Amber interviews CCC volunteer Chantel Wicks. Chantel is the chapter president for the Durham Region in Ontario and the Chair of their Gutsy Walk, which is a fundraiser and event that takes place every year in the first weekend of June. Learn more about how the GEM Project is uncovering important information on the development of IBD and how to get involved in CCC and The Gutsy Walk. Find Chantel Wicks on the Guts and Glory Podcast at: Web: https://gutsnglory.ca/ Facebook: @GtsNGlry Twitter: @GtsNGlry Instagram: @gtsnglry Find Crohn's and Colitis Canada at: Web: https://crohnsandcolitis.ca/ The Gutsy Walk: https://gutsywalk.ca/ Facebook: @getgutsycanada Twitter: @getgutsycanada Instagram: @getgutsycanada Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD152 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
Did you notice that suddenly one year you started paying more for your healthcare? Crohn's disease and ulcerative colitis are sometimes treated with medications that are expensive. Manufacturers create programs to help patients afford these drugs. In the beginning, these payments from assistance programs counted toward a yearly health insurance deductible. Then, suddenly: they stopped counting. Overnight, patients found themselves responsible for more costs, while insurance carriers received what amounts to double payments. A 2023 court ruling says that this practice should be reversed again, but it's not happening. Amber McCown tells her story of how a copay accumulator program took her by surprise and why she's partnering with the HIV+Hepatitis Policy Institute and working with legislators and agencies to advocate for change. Aimed Alliance. How a Loophole in the Patient Protection and Affordable Care Act Can Impact Access To Your Necessary Treatments: https://aimedalliance.org/wp-content/uploads/2022/07/Aimed-Alliance-Non-EHB-Fact-Sheet-FINAL-1.pdf Patient Protection and Affordable Care Act; HHS Notice of Benefit and Payment Parameters for 2021; Notice Requirement for Non-Federal Governmental Plans: https://www.federalregister.gov/documents/2020/05/14/2020-10045/patient-protection-and-affordable-care-act-hhs-notice-of-benefit-and-payment-parameters-for-2021 Copay Accumulator Programs: https://cga.ct.gov/2024/rpt/pdf/2024-R-0034.pdf?t=1713267305928 State Insurance Departments: https://content.naic.org/state-insurance-departments From the HIV+Hepatitis Policy Institute: In 2022, the HIV+Hepatitis Policy Institute , two diabetes groups, and individual chronic disease patients filed a lawsuit in the U.S. District Court for the District of Columbia challenging the federal rule that allowed "copay accumulators." Insurers use "copay accumulator" programs to avoid counting the value of copay coupons that patients get from drug manufacturers toward a patient's deductible and out-of-pocket costs -- effectively double charging the patients. In 2023, the court ruled in favor of the plaintiffs and struck down the federal rule that had allowed health insurers to avoid counting copay assistance from drug manufacturers toward a patient's out-of-pocket cost. But the government isn't enforcing the court's ruling, so patients are still subject to copay accumulator schemes. It's bad enough that the federal government is effectively ignoring a court ruling . Far worse is the fact that patients are still being unjustly subjected to copay accumulators that prevent them from being able to afford their prescription drugs as a result. Patients need the federal government to issue a new rule ASAP. Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD151 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
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About IBD
1 IBD and Somatic Therapy With Abri Bernstein 53:24
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Play Later Play Later Lists Like LikedPeople with IBD are more likely to live with anxiety, depression, or other mood disorders than people who don't live with one of these conditions. For that reason, caring for mental health is as important as caring for physical health. But it doesn't always work out that way, as patients may not know how important their mental health is to their physical health, or may not have access to a mental health professional. Abri Bernstein shares her personal journey with ulcerative colitis (UC) and how somatic psychotherapy helped her cope with living with the disease. Abri explains somatic psychotherapy as a holistic approach to healing that focuses on the body and nervous system regulation. She describes various modalities, such as somatic experiencing, sensorimotor psychotherapy, and acceptance and commitment therapy (ACT), emphasizing the importance of addressing trauma stored in the body for healing to occur. Resources and information discussed in this episode: What Is Somatic Therapy? Trauma and the Nervous System: A Polyvagal Perspective Polyvagal Institute The Trauma Foundation Bonaz B, Sinniger V, Pellissier S. Therapeutic Potential of Vagus Nerve Stimulation for Inflammatory Bowel Diseases. Front Neurosci. 2021;15:650971. Published 2021 Mar 22. doi:10.3389/fnins.2021.650971. Polyvagal Theory: A Science of Safety Find Abri Bernstein at: Web: Healing With Abri LinkedIn: Abri Berstein Email: abribern@gmail.com Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD150 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
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1 Colorectal Cancer Awareness Month With Dan "Dry Dock" Shockley 32:51
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Play Later Play Later Lists Like LikedDiagnosed with attenuated familial adenomatous polyposis (AFAP), retired Navy veteran Dan "Dry Dock" Shockley shares his remarkable journey of service, diagnosis, and advocacy. Following his diagnosis, Shockley became a passionate advocate for early detection and reducing the stigma associated with living with an ostomy. He emphasizes the importance of proactive medical care and maintaining a positive attitude in the face of adversity. Through his advocacy work and personal journey, Shockley serves as an inspiration, demonstrating resilience, determination, and a commitment to making a difference for others. Find Dan "Dry Dock" Shockley at: Twitter: @Dryshockley Instagram: @DanDryDock LinkedIn: @Dan Dry Dock Shockley Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD149 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
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1 Making Crohn's Disease Funny With Matt Nagin 36:35
36:35 Play Later Play Later Lists Like Liked36:35
Play Later Play Later Lists Like LikedWe can hold two truths: Crohn’s disease is funny. It is also not funny. I speak with Matt Nagin, who has many talents, but we focus on his work as a comedian and actor living with Crohn’s disease. Our discussion focuses on how people need laughter and comedy in their lives. Yet, living with an illness like inflammatory bowel disease (IBD), it can be challenging to find those comedic moments. Especially when most people don’t know what IBD is, and even among those who do, they kind of don’t want to hear about it sometimes. Get tips from Matt on how to form a sense of humor about illness, keep people from getting burned out on you, and think outside the box when it comes to symptoms. Find Matt Nagin at: Web: mattnagin.com Facebook: @naginplease Twitter: @naginplease Instagram: @naginplease TikTok: @naginplease LinkedIn: Matt Nagin Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio LinkedIn: @macooney Theme music, IBD Dance Party , is from ©Cooney Studio. These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
What did you read over the past year? If you made a reading goal: did you hit it? The books I read in 2023 included biographies, fantasy, fiction, and romance. Plus, I had several authors who live with Crohn’s disease or ulcerative colitis on the show this year, so I read their books as well. Hear more about some of the books I enjoyed in 2023, how you can hear more from authors with IBD, and ways that you can hit those reading goals this year. IBD Author Episodes: The Plant-Based Crohn’s and Colitis Cookbook – About IBD Podcast Episode 127 Up and Adam: A Patient’s Experience on Winning with IBD — About IBD Podcast Episode 130 I Pooped My Pants With April Michelle Harris – About IBD Podcast Episode 133 Positivity Beats IBD With Josef Miller – About IBD Podcast Episode 143 Books mentioned in this episode: Why Not Me? - Mindy Kaling Yes Please - Amy Poehler Bossypants - Tina Fey Orange Is the New Black - Piper Kerman Spare - Prince Harry Born With Teeth - Kate Mulgrew Where the Deer and the Antelope Play - Nick Offerman Fan Fiction - Brent Spiner, Jeanne Darst Wrong Place Wrong Time - Gillian McAllister Tomorrow, and Tomorrow, and Tomorrow - Gabrielle Zevin The Dead Romantics - Ashley Poston Where the Crawdads Sing - Delia Owens The House in the Pines - Ana Reyes The Testaments - Margaret Atwood The Heart Goes Last - Margaret Atwood Maid - Stephanie Land Class - Stephanie Land Under the Whispering Door - TJ Klune In the Lives of Puppets - TJ Klune Long Way Down - Jason Reynolds Red at the Bone - Jackeline Woodson Hatchet - Gary Paulsen The Plant-Based Crohn’s and Colitis Cookbook - Helena Rose Murphy The Purple Rose - Josef Alexander Miller I Pooped My Pants - April Michelle Harris Up and Adam: A Patient's Experience on Winning with IBD - Adam Finkelstein Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio LinkedIn: @macooney Theme music, IBD Dance Party , is from ©Cooney Studio. These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
A diagnosis of inflammatory bowel disease (Crohn’s disease, ulcerative colitis, IBD) affects the entire family. When it’s a child that’s diagnosed, it changes so many things and brings a host of challenges. Families experience many unmet needs related to IBD. My guest is Lisa Fournier of IBD Connect. Lisa is the mother of two children who live with IBD. Her experiences in helping them manage IBD at different stages in life compelled her to be a support for others. She worked with her local hospital to start a support group and eventually founded IBD Connect. Learn about the programs IBD Connect offers and how the community can support their important mission. Concepts on this episode: Very Early Onset Inflammatory Bowel Disease (VEO-IBD) UMass Chan Medical School Center for Applied Nutrition Methicillin-resistant Staphylococcus aureus (MRSA) Find IBD Connect at: Instagram: @ibdconnectinc Facebook: @IBDConnectInc Web: IBD Connect, Inc. Find Amber J Tresca at: AboutIBD.com : About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party , is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD146 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.…
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