Best Mecfs Podcasts (2024)

1
The Future of Health | Connecting the Mind and Body | Wholism in Action 17:12

5h ago17:12

17:12

How Health is more than fixing the problem but engaging with a wider perspective - a truly wholistic vision of purpose, beliefs and connection We need to understand we are connected to a universal consciousness... Find me on alchemytherapies.co.uk and patriciaworby.com *If you're suffering from Chronic pain, fatigue or anxiety, I CAN HELP* CONTACT …

1
Cooperation not Competition | Understanding Living Systems Book Review | Denis Noble's New Biology 32:58

5h ago32:58

32:58

In my review of this most important book Understanding Living Systems by brothers Raymond and Denis Noble I show you how biology is beginning to move beyond the concept of the 'selfish gene' and turning to a more co-operative view of life. Find out how cells are embedded in organisms and it is our intelligence and agency that allows us to modify ou…

1
The Neuroscience of Flotation Therapy - How it Calms Anxiety in Mind and Body 18:51

5h ago18:51

18:51

I've been looking at innovative new therapies to help calm the mindbody as I'm writing my book Mind Medicine (soon to be published 6th September). Here I give a summary of how and why it works and what my experience was recently. *If you're suffering from Chronic pain, fatigue or anxiety, I CAN HELP* CONTACT ME: https://www.alchemytherapies.co.uk/ …

1
Part 2 with returning guest Rachel Jessey - faecal implant, vitamins and the gut microbiome 40:35

2h ago40:35

40:35

Send us a Text Message. Following on from the last episode of the podcast, as promised this is part 2 with Rachel Jessey from Benourised. We continue and expand on the short conversation we had at the end of the last episode on faecal implant, Rachel has so much knowledge and this is a really interesting topic. We also talk about the circadian rhyt…

1
Dear NHS, Don't Kill Karen Gordon 12:08

4d ago12:08

12:08

A Severe ME/CFS Patient in the UK named Karen Gordon went to the Conquest Hospital Hastings when her Jtube broke in hopes of getting a new one installed. Instead, the hospital has refused to give her a new Jtube or let her go home with Total Parenteral Nutrition (TPN), holding her hostage at the hospital for months. They have now given her an ultim…

1
10. "A holiday will do you good" 21:24

7d ago21:24

21:24

I explore the summer holidays and the challenges of planning things with the family. Also, after being told my symptoms might now be permanent I try and explain how I am beginning to come to terms with this. Oh, and an update on a supplement that seems to be working a little bit! Send us a Text Message.…

1
143 - David Joffe - Overcoming Sleep Challenges in Long Covid Patients 55:10

8d ago55:10

55:10

Unlock the secrets to better sleep and enhanced well-being in our latest episode featuring David Joffe, a leading expert in respiratory and sleep medicine. You'll gain valuable insights into the intricate roles of slow-wave and REM sleep, crucial for both physical restoration and cognitive functions like memory consolidation. David shares his exten…

1
9: "Well done, you are out!" 23:21

2d ago23:21

23:21

I talk with my wife, Rachel, about visiting a local festival using mobility aids. We also chat about a recent occupational health review. We also chat through how by being honest, we can manage my condition together. Send us a Text Message.By Paul Clarke

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142 - Jackie's thoughts of the day! 12:05

15d ago12:05

12:05

In episode 142 of the Long Covid Podcast, Jackie takes to the mic to explore her thoughts on Some Things, including almost 3 years since she started the podcast, why boundaries and self-care are so important and more. My youtube channel and the "Ask Jaxter" playlist Long Covid Breathing - see what I have created with Vikki and how you can join our …

1
Drops From The Well of Suffering: Honoring Maeve Boothby O’Neill 16:37

5d ago16:37

16:37

It is a travesty that Maeve did not receive nutrition like I received. I was just as sick as Maeve with very similar symptoms, including sensitivity to stimuli like light, sounds, voices and the company of other people in my room and like Maeve, I could not eat enough food to survive. If I was treated the way Maeve was treated, I would be dead just…

1
8: "When are you going back to work?" 22:36

7d ago22:36

22:36

In this episode I explore my experienes of attempting to work with Long Covid and the concequences. Hank the Cavalier King Charles makes a contribution, and even barked at himself upon playback! Send us a Text Message.

1
E22: Snippet - Is Looking For Treatments Stopping You Recovering From ME/CFS, PVFS(long-covid), Fibromyalgia & POTS 14:17

7d ago14:17

14:17

Looking for treatments to help you recover from ME/CFS, PVFS (long-covid), Fibromyalgia or POTS or related illnesses should surely be a good thing. It’s what most of us do whilst we are ill until we eventually give up or are told ‘there is not cure, so you can’t recover’. But whilst it can be key to your recovery breakthrough, it can also have sign…

1
Our Body Electric | Nerves and Electropollution | The Invisible Rainbow by Arthur Firstenberg Part 3 29:38

11d ago29:38

29:38

By special request - more info from the book The Invisible Rainbow by Arthur Firstenberg on the importance of the myelin sheath in transmission of energy throughout the body - and what can go wrong with Electromagnetic pollution. 00:00 Intro to the book 02:00 The importance of electrical energy in healing damaged tissue - porphyrins as transmitters…

1
Martha Beck - The Way of Integrity - Finding the path to your true self | Book Review 18:48

11d ago18:48

18:48

A book review and interpretation of Martha Beck's wonderfully illuminating book The Way of Integrity based on Dante's The Divine Comedy as a book of an existential midlife crisis! Martha takes us through the process of recovery from this through The Dark Wood of Error The Inferno Purgatory Paradise based on her experience and the lessons she learne…

1
Brain pain - how Psychogenic Pain Develops from Unfelt Emotions- and how to treat it 10:22

22d ago10:22

10:22

Chronic or persistent pain is very different to acute pain both in origin and management. Find out the secret to overcoming this debilitating condition 00:00 Intro - reminder acute vs. chronic pain (nocioceptive, neuropathic vs. psychogenic) 03:41 Failures of inhibition pain signals - allodynia 05:00 Stress build up from unheard/ unacceptable emoti…

1
Human Complexity and Emotions as Resonance | Healing as a Cell Mitochondrial Feedback System 27:44

11d ago27:44

27:44

Healing is an act of self-organising feedback resonance within the body.Here I explain how I came to learn this and what you can do to promote it within your body. Here is the video I talk about extensively The Secret Life of Chaos https://www.youtube.com/watch?v=mEHbdrpy_Lg Find me on alchemytherapies.co.uk *If you're suffering from Chronic pain, …

1
7: "It's all in your head" 21:02

23d ago21:02

21:02

In this episode, I talk about how Long Covid affects my mental health and the things that I do to help. Maisie the dog makes a brief appearance. I found this a difficult episode to record, as I was feeling down at the time and it is a very emotional topic. As always though, I decided to present it 'as is' so that you can at least get a feel of how …

1
141 - Todd Davenport - a deep dive into Post-Exertional Malaise (PEM) 51:13

12d ago51:13

51:13

Episode 141 of the Long Covid Podcast is a chat with the fabulous Todd Davenport - physio & exercise scientist specialing in Long Covid, MECFS & Post-exertional Malaise. We take a dive into PEM, some of the science behind it and some things that can help avoid & mitigate it. Some useful links: Bateman Horne crash care plan Workwell Foundation Links…

1
E21: Dr Michael Lenz on treating Fibromyalgia, CFS, POTS - treating children & the connection with ADHD 1:08:59

23d ago1:08:59

1:08:59

In this episode, we sit down with Dr. Michael Lenz, a dedicated physician specializing in fibromyalgia, ME, CFS, POTS, and related illnesses. Dr. Lenz discusses his conservative approach to medications and emphasis on lifestyle medicine, particularly for children with these conditions. A notable part of the discussion delves into the common comorbi…

1
Interlude: A bad day 6:27

15d ago6:27

6:27

I want this podcast to show the highs and lows of living with Long Covid. Today is a low, and I decided to record this short audio to try and describe it. Reach out : lifewithlongcovid@icloud.com Send us a Text Message.

1
Returning guest Rachel Jessey - lets talk about the gut! 39:55

17d ago39:55

39:55

Send us a Text Message. In this episode of the podcast I talk with a fantastic returning guest Rachel Jessey. We talk about all things gut related and the microbiome, Rachel explains how these can be effected by the Circadian rhythm and also how and what we can do to help support a "healthy gut". Listen to Rachel talk about a study that supports th…

1
6: "This is the best thing I have ever tried" 23:22

29d ago23:22

23:22

In this episode, I talk about my journey of introducing supplements and how it eventually led me to realise that I was looking for answers in the wrong place. I mention a few that I have tried; Krill Oil (for the ultimate in fishy breath!) NADH (warning: massive tablets) Vitamins C, D, B12 CBD Oil, balms and capsules (and chocolate, gummies,

1
140 - Jess Dove London - Turnto - the app that aims to revolutionise healthcare 38:16

20d ago38:16

38:16

Episode 140 of the Long Covid Podcast is a chat with Jess Dove London, CEO of the startup "Turnto". Jess tells the story behind Turnto and how it's now helping people with ME/CFS & Long Covid. We talk about the app, it's main features and how it can help. Have you enjoyed the app? Let us know! https://turnto.ai/download Message the podcast! - quest…

1
5: "You just need to do some exercise" 21:55

22d ago21:55

21:55

In this episode, I talk about my experiences with various medical professionals and their reactions to my illness. I recorded this whilst having a tired and emotional day. I thought about re-recording it, but in the end, I believe it is important that you hear me on the not-so-good days as well. Let me know your experiences, email: lifewithlongcovi…

1
4: Sunday afternoon "Walk" & talk 16:17

23d ago16:17

16:17

My plan was to do a short walk and record how I was feeling. In reality, it turned into a 'wheel' and talk with my wife, Rachel! Join us on a Sunday afternoon wheel/walk as we discuss my use of a wheelchair, people's perceptions of my illness and how Rachel has had to change her life. Send us a Text Message.…

1
139 - Patrick Ussher & Peter Deen - Excessive Thirst in ME/CFS & Long Covid 47:47

26d ago47:47

47:47

Episode 139 of the Long Covid Podcast is a chat with Patrick Ussher and Peter Deen about excessive thirst in ME/CFS & Long Covid. We talk about what this is - and how it can be a very serious issue, as well as what brought Patrick & Peter together for the research they are now doing. The Survey mentioned is not quite ready yet - it will be added an…

1
3: "Everybody gets tired" 22:26

28d ago22:26

22:26

Living with Long COVID means constantly feeling tired, but it is likely that other people won't understand. In this episode, I delve deeper into fatigue and some of the coping strategies I have developed along the way. It would be great to hear from you if you have any tips or comments, email me: lifewithlongcovid@icloud.com For more information ab…

1
2: "You look well" 19:27

29d ago19:27

19:27

Long Covid is hard to understand at the best of times, so no wonder people do not know how to respond to our illness. In this episode, I talk about how I deal (or find it hard to deal) with comments on our disability. Guest starring Maisie the Pomeranian, who barks at the wind in the background! Send us a Text Message.…

1
1: An Introduction 20:19

1M ago20:19

20:19

In this episode, Paul introduces himself and the series. Send us a Text Message.By Paul Ian Clarke

1
Guests Gary and Karen, discuss their personal journey and setting up a local Long Covid support group 39:09

1M ago39:09

39:09

Send us a Text Message. In this episode of the podcast I am grateful to speak with Gary and Karen, they talk with me openly about their acute and Long Covid journey as a married couple. We discuss how long covid impacts life and "the person we once was", Karen reads an impacting piece she wrote through a creative writing group titled "The goldfish …

1
The Divided Mind - Dr Sarno's revolutionary take on the unconscious origins of mindbody disorders 20:20

1M ago20:20

20:20

Here I review the understanding put forward in the book The Divided Mind by Dr John Sarno as long ago as 2006. Doctor Sarno was one of the first medical doctors to embrace the idea of psychosomatic medicine which he dubbed mind body disorder to avoid the negative connotation that psychosomatic was all in your head. We now find many common condition…

1
How the Brain Creates Pain and how that differs from tissue damage pain 17:32

1M ago17:32

17:32

Talking about pain from a mindbody perspective and how to heal. 00:00 Intro and why I'm talking about pain today 01:30 how to treat acute pain relating to tissue damage and shock (held in the body) 05:20 acute vs. chronic pain - pain that doesn't resolve itself after 3 months - neuropathic or 'brain pain' is especially difficult to resolve as the s…

1
Retrain Your Brain - Different approaches to CFS/ME recovery 24:26

1M ago24:26

24:26

Explore with me the multi-dimensional nature of complex chronic exhaustive conditions and how you can heal. See also Raelan Agle's fabulous channel @RaelanAgle and The @crappychildhoodfairy 00:00 intro and importance of the mind in Recovery - which can and does happen! 02:12 CFS/ME is not a diagnosis but a description - there are no biomarkers for …

1
138 - Jules Rogers - Long Covid Recovery 50:01

1M ago50:01

50:01

Episode 138 of the Long Covid Podcast is a chat with Jules Rogers, who shares how she recovered from Long Covid. We chat through the things that helped - some of which made a little difference, some a lot. As with all recovery stories - this is one person's experience. We wouldn't recommend trying to replicate it, as no two people are the same. But…

1
E20: Snippet - How resilient can recoveries be after ME/CFS, Fibromyalgia, POTS, MCS, PVFS (or long-covid)? 21:12

1M ago21:12

21:12

It’s finally time to share some of my health struggles during the last 6 years. It seems like a good opportunity to speak about how resilient ME/CFS, Fibromyalgia, POTS, MCS PVFS (or long-covid) recoveries can be – after all, when we recover we often can’t help but ask ….”will it last?” SHOWNOTES: https://cfsunravelled.com/episode20 **MEDICAL DISCL…

1
Homelessness Is Not a Crime! 10:52

1M ago10:52

10:52

Not having a home is not a crime! Yet after the Supreme court ruled that it was constitutional to make it illegal to sleep in public spaces, countless towns and cities are sure to follow suit in the United States and make it illegal to sleep in public spaces. (Illegal to sleep!). Sleep is a basic necessity and if you don’t have a home, you have no …

1
137 - Lorrie Rivers - What is EFT Tapping and how can it help me? 50:54

1M ago50:54

50:54

Episode 137 of the Long Covid Podcast welcomes back Lorrie Rivers to chat about EFT tapping, a technique that she's personally had good results with and now uses with her clients. EFT stands for Emotional Freedom Technique and can be a great way of gently helping us out emotionally, which can be difficult with health challenges such as Long Covid. …

1
The pandemic, the government and the general election 39:04

2M ago39:04

39:04

Send us a Text Message. In this episode of the podcast, I have returning guest Rachel Hext. Rachel and I talk ahead of the UK general election, we discuss the floors, failings and ongoing issues around the pandemic, clean air and PPE. Rachel talks about her advocacy work including being part of media interviews and Panorama, and specifically Keywor…

1
136 - Dr Meg Anderson - Movement in Long Covid - Part 2 - "how to" 53:03

2M ago53:03

53:03

Episode 136 of the Long Covid Podcast is a continuation of my chat with the fabulous Dr Meg Anderson about movement in Long Covid. In this episode, we talk more about what that movement might actually look like and how to tailor that. The previous episode, where we talk about "getting ready" for movement is definitely worth a listen HERE Links: Meg…

1
135 - Dr Meg Anderson - Movement in Long Covid Part 1 - Getting ready 53:33

2M ago53:33

53:33

Episode 135 of the Long Covid Podcast is a chat with the fabulous Dr Meg Anderson about movement in Long Covid. This is part one of our chat where we talk about getting ready for movement, how to know you might be ready and kind of setting the scene. Watch out for part 2 next week, where we talk more about what that movement might actually look lik…

1
Four years later! 29:11

2M ago29:11

29:11

Send us a Text Message. In this episode of the podcast, I talk about reaching the 4 year mark of living with Long Covid. I don't like to acknowledge this as an anniversary but I wanted to acknowledge the time that has passed, and what I have learnt along the way. It is strange how 4 years is such a long time, and in one way it has felt like the lon…

1
134 - Vicky van der Togt & Jeremy Rossman - Research-Aid Networks 56:53

2M ago56:53

56:53

Episode 134 of the Long Covid Podcast is a chat with Vicky van der Togh & Dr Jeremy Rossman from Research-Aid Networks. We discuss what the organisation does, what brought Vicky & Jeremy together as well as their recently published hypothesis paper. Research-Aid Networks www.researchaidnetworks.org Pandemic-Aid Networks www.researchaidnetworks.org/…

1
Recovery from Chronic Disease is NOT about 'Fixing the Problem'- A New Paradigm of Healing 12:58

2M ago12:58

12:58

Recovery from chronic disease or conditions is not about fixing the problem. How the experience of Craig McKinley's sepsis and the work of Dr Rangan Chatterjee, Nicola Singleton and John Campbell has informed my work. Here's the interview with Nicola and Dr Chatterjee where she talks of what she discovered from working with him and how she got well…

1
Dealing with Trauma - The SHOCK loss of Michael Mosley Triggers an Outpouring of Grief and Disbelief 26:08

2M ago26:08

26:08

My reaction to the death of TV presenter and doctor Michael Mosley was one of deep sorrow and shock despite not knowing him personally. I was stunned by the unnecessary loss but also realising I was reacting to an event that happened to me 40 years ago!! Find out how here. 00:00 Nature of Trauma - shock trauma of loss e.g. the tragic death of Micha…

1
What REALLY causes CFS/ME - and how to heal it psycho-spiritually - A therapist's view 25:13

2M ago25:13

25:13

My commentary on the insight and understanding of healing ME/CFS as a spiritual disconnect that nevertheless has physical consequences. I draw on an interview between Jenny Lynn and Raelan Agle as well as my own experience as a therapist for over 15 years. See that here https://www.youtube.com/watch?v=KyFQKb0qS70 00:00 Intro 00:56 CFS/ME is a disco…

1
133 - Anna Davidson - Long Covid Recovery 51:07

3M ago51:07

51:07

Episode 133 of the Long Covid Podcast is a chat with A K Davidson, author & poet, who has now recovered from Long Covid. We chat through her experience, how writing because so important as well as helping with recovery, although not always in the way she expected! As always - recovery stories are one person's experience! They can be useful for idea…

1
Guest; A. K. Davidson - Poetry for life and other chronic conditions 37:58

2M ago37:58

37:58

Send us a Text Message. On this episode of the podcast I chat to freelance writer and editor A. K. Davidson. We talk about her book; Poetry for life and other chronic conditions, which is due out on the 6th June, the link to pre order the book can be found below. Anna talks about her journey and experiences with acute and Long Covid, and how she no…

1
132 - Rosalba Courtney & Hadas Golan - Dysfunctional Breathing in Long Covid 52:48

3M ago52:48

52:48

Episode 132 of the Long Covid Podcast is a chat with the wonderful Hadas Golan & Rosalba Courtney. Hadas and Rosalba have been collaborating on working with people with Long Covid and have recently published a series of case studies detailing their successes. We take a deep dive into my favourite subject - breathing - discussing some of the underly…

1
Reviewing Gabor Mate's Extraordinary New Book: The Myth Of Normal 25:09

3M ago25:09

25:09

Why is this groundbreaking book so important? Here's my view... 00:00 Intro and Dr Mate's background 02:00 A leading light in emotional trauma awareness- and his personal experience of childhood trauma 03:44 Synopsis of chapters and the general direction of the book - disconnect from the self, attachment wounding, trauma is not always what we got b…

1
Guests; Jess and Ally talk about the Turnto app for Cerebral Palsy and the upcoming app for - Long Covid and MECFS 37:54

3M ago37:54

37:54

Send us a Text Message. In this episode of the podcast I talk with Jess, the founder of the Turnto app, and Ally from Turnto Long Covid. Jess shares her inspiration for the Turnto app and her personal journey with her son who has a rare form of cerebral palsy, and the challenges navigating health care services and trying to find treatment and suppo…

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