The Chronically Courageous, where chronic illness warriors come to feel empowered and uplifted. Listen each week to be inspired by others who have found happiness and peace, despite the physical and emotional tolls of chronic illness. Together, we navigate this complex journey and move forward with courage, passion, and purpose! Hosted on Acast. See acast.com/privacy for more information.
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Sure, it’s good to be flexible in life, but all things have their limits! If you’ve ever lived with a connective tissue disorder, you know all too well how often joint conditions like Ehlers-Danlos Syndrome (EDS) can go unrecognized by doctors and result in life-altering symptoms from pain and fatigue to gastrointestinal issues and insomnia. Whether you’re living with a hypermobility condition, treating one, or know someone living with their own – the greatest secret weapon you can use to ma ...
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Health practitioners from around the world empower you to be your own health hero.
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Grief, Healing, and Mental Health Strategies for Chronic Illness with Natasha Trujillo, PhD
1:02:53
1:02:53
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In this insightful episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with Dr. Natasha Trujillo, a licensed sports psychologist specializing in grief, loss, and chronic illness. Dr. Trujillo and Dr. Bluestien both work with the Colorado Ballet. Dr. Trujillo discusses the complex emotional landscape of grieving when faced with chronic p…
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Group Rehabilitation for POTS with Emily Rich, OT
55:21
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down with Emily Rich, an occupational therapist specializing in POTS (Postural orthostatic tachycardia syndrome), Ehlers-Danlos syndromes, and other chronic conditions. Emily, who is also a patient with hypermobile EDS and POTS, shares her insights on how o…
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Understanding the Brain's Role in Chronic Pain with Kaitlin Touza, PhD
1:05:41
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, engages in an enlightening conversation with Dr. Kaitlin Touza, a renowned pain psychologist. Dr. Touza delves into the complexities of chronic pain, explaining how the nervous system, brain processes, and psychological factors contribute to pain experiences. Sh…
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Connective Tissue Disorders and Lipedema with Karen Herbst, MD
1:15:38
1:15:38
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, hosts an enlightening discussion with Dr. Karen Herbst, a leading expert on lipedema and other adipose connective tissue diseases. Dr. Herbst shares her extensive knowledge on the complexities of lipedema, Dercum's disease, and their connection to connective tis…
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Linking Mast Cell Activation, Autoimmunity, and EDS with Kara Wada, MD
1:00:02
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In this episode, Dr. Linda Bluestein, the Hypermobility MD, delves into the intricate connections between the immune system and hypermobility disorders with Dr. Kara Wada. A quadruple board-certified physician and Sjogren's patient, Dr. Wada shares her expertise on mast cell activation syndrome, autoimmunity, and the role of inflammation. Discover …
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Examining The Future of EDS Diagnosis and Care with EDS Society CEO Lara Bloom
1:04:27
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In this episode, Dr. Linda Bluestein, the Hypermobility MD, hosts a captivating conversation with Lara Bloom, President and CEO of the Ehlers-Danlos Society. Lara shares her journey in advocating for rare diseases, the progress made in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), and the upcoming updates in diagnostic c…
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Welcome back, every Bendy Body! In this special episode, I wrap up season four and share exciting plans for season five. Join me as I reflect on our journey, from focusing on high-risk populations like dancers and gymnasts to diving deep into medical topics. Listen in for gratitude-filled shoutouts from our wonderful listeners as I read their heart…
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101. Breaking the Vicious Cycle of Chronic Illness with Ashok Gupta
1:03:49
1:03:49
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In this conversation, Dr. Linda Bluestein interviews Ashok Gupta about his experience breaking the vicious cycle of chronic illness when he had ME-CFS. They discuss the impact of chronic conditions, the brain's priority of survival, and the vicious cycle of symptoms. Ashok explains the Gupta Program, which aims to make patients aware of subtle dang…
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It is with great pleasure that we welcome Stuart Phillips, PhD, back to the podcast! He last joined us to discuss protein intake and aging but today's podcast takes a look at the many other facets of his labs' ongoing research in long-term health, the menstrual cycle, and more. We take a deeper dive into what it means to focus on Health Span vs lon…
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Milestones and Reflections: 100 Episodes of Bendy Bodies with Linda Bluestein, MD
1:20:42
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Dr. Linda Bluestein celebrates 100 episodes of Bendy Bodies discussing the most rewarding part of hosting the podcast and the challenges of podcasting. She emphasizes the importance of balancing the complexity of EDS and the need for healthcare professionals to understand and empathize with the struggles of patients with hypermobility conditions. D…
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Join Bonni as she gets personal about all things EDS, with filmmaker and EDS warrior Jen Kain. They discuss Jen's upcoming documentary, "Exhausted Existence: An EDS Story”, which explores living with chronic illness through a therapeutic lens. Bonni and Jen share tears and laughs as they discuss their common struggles, coping strategies, and what k…
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99. From News Anchor to Advocate: A POTS and EDS Journey with Summer Dashe
1:02:17
1:02:17
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Summer Dashe, a former news anchor and advocate for the chronically ill, shares her POTS and EDS journey. She covers how she manages her symptoms in everyday life and the challenges of getting diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome) and EDS (Ehlers-Danlos Syndrome). #dysautonomia #ChronicIllness #POTSAwareness Takeaways Gett…
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98. Environmental Triggers of Mast Cell Disease with Tania Dempsey, MD
1:19:15
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Summary Dr. Tania Dempsey discusses mast cell activation syndrome (MCAS) with a focus on environmental triggers of mast cell disease. Takeaways Infections can trigger mast cell reactions and people with MCAS may react differently than those without. Identifying and addressing environmental triggers, such as mold and plastics, is important in managi…
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97. Learning to Spot the Signs of Ehlers-Danlos Syndromes with Guest Host, Kate Colbert
1:08:47
1:08:47
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In this special “EDS Awareness Month” episode of the Bendy Bodies Podcast, founder Dr. Linda Bluestein and guest host Kate Colbert discuss how everyone can learn to spot the signs of Ehlers-Danlos Syndromes. Dr. Bluestein emphasizes the importance of EDS awareness, as many people are still not getting the evaluations and care they need. She also de…
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Move Daily Health Podcast S3E7: How to Hone (not hack) your Health
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It is very easy to find supplement "stacks", pricey products, and rigid dietary or exercise regimes sold under the guise of being crucial to health. The simplest things are often the truest and achieving sleep, improving foot health, resolving tension associated with desk work, as well as figuring out meal or exercise timing should not come at a hi…
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96. Coping with Dance Injuries and Career Transitions with Chelsea Pierotti, PhD and Guest Cohost, Jennifer Milner
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46:19
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In this episode, Dr. Chelsea Pierotti discusses coping with dance injuries and transitions, both from a physical and psychological perspective. She explains that the way dancers appraise their injuries and their emotional response to them can greatly impact their coping mechanisms. Dr. Pierotti emphasizes the importance of shifting the mindset from…
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95. Pain Care Redefined: Non-Drug Therapies for Pain Relief with Heather Tick, MD
1:44:10
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Dr. Heather Tick, a renowned pain expert, discusses non-drug therapies for pain relief; applying the principles of integrative medicine for comprehensive pain care. She emphasizes the need for education and understanding of pain neuroscience to empower patients. Dr. Tick also highlights the significance of nutrition in reducing chronic pain and inf…
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94. Support and Bracing for Hypermobile Joints with Susan Chalela, MPT, and Guest Cohost, Scott Borjeson
1:08:27
1:08:27
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In this Bendy Bodies with the Hypermobility MD podcast, Susan Chalela, MPT discusses support and bracing for hypermobile joints. She shares how her personal and professional experience with joint hypermobility led her to develop the Finding Functional Foundations approach which is being taught as part of The Ehlers-Danlos Society EDS ECHO program. …
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Move Daily Health Podcast S3E6: How to Recover
1:14:04
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Recovery is the foundation: from sickness, exercise, injury, hEDS/HSD flares, jet lag and more. Recovering well allows you to live and train well. Notably, recovery is not just about sleep and static rest on the couch even though those can be components of it.By Freyja Spence and Dain Wallis
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93. Unveiling Taming the Zebra: A Discussion with Physical Therapists Patricia Stott and Heather Purdin
1:00:22
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This episode centers around unveiling 'Taming the Zebra', a book co-authored by physical therapists, Dr. Patty Stott and Heather Purdin. The book aims to fill a void in understanding and provide therapists with the knowledge to effectively work with patients with hypermobility spectrum disorders (HSD) and Ehlers-Danlos Syndromes (EDS). It covers th…
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We had the pleasure of speaking with Lara Bloom, President and CEO of The Ehlers-Danlos Society. Lara raises global awareness of rare, chronic and invisible diseases, specialising in the Ehlers-Danlos syndromes, hypermobility spectrum disorders (HSD) and related disorders. Tune in to hear Lara's insights on the people, projects, and global effort b…
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92. Empowering Zebra Warriors: THE Guide to Effective Physical Therapy for EDS and HSD with Lilian Holm, DPT
1:07:33
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In this Bendy Bodies podcast episode, Dr. Lillian Holm discusses effective physical therapy for EDS and HSD and the importance of correcting function to achieve pain relief and tolerance for exercise. She explains why physical therapy may not always lead to the expected outcome, emphasizing the need for specialized therapists and individualized tre…
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91. Hand Problems in EDS with Corinne McLees, OT and Hand Coach
1:24:30
1:24:30
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In this episode, Dr. Linda Bluestein and Corinne McLees discuss hand problems in EDS including pain, weakness, and injuries. This conversation covers various topics related to hand problems, including ring splints, hand exercises, avoiding strain and hyperextension, tips for traveling, challenges of the medical system for chronic pain, hand pain wi…
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Move Daily Health Podcast S3E4: How to Determine Resistance and Aerobic Training Needs
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59:24
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In this episode we discuss the guidelines around resistance and aerobic training from government bodies and the dramatically different recommendations from strength and endurance industries. We touch on the need for individualized interpretations of both strength and aerobic exercise recommendations, how to interject variability, and that a change …
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90. Decoding Brain Fog: Expert Insights with Ilene Ruhoy, MD, PhD
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In this episode, Dr. Linda Bluestein interviews Dr. Ilene Ruhoy about causes of brain fog, as well as its relationship to various conditions such as mast cell activation syndrome, craniocervical instability, dysautonomia, and CSF leaks. She explains how these conditions contribute to cognitive dysfunction and the importance of identifying underlyin…
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89. Conquering the Sleep Struggle with Roger Seheult, MD
1:31:57
1:31:57
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In this episode, Dr. Linda Bluestein interviews Dr. Roger Seheult about the importance of sleep for people with chronic illness, chronic pain, and joint hypermobility. Dr Seheult, a quadruple board-certified physician with expertise in sleep medicine, discusses various topics related to sleep, including the circadian rhythm, the impact of light on …
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Move Daily Health Podcast S3E3: 2023 Health Research Updates
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This episode takes a look some health research highlights from the past calendar year. The topics include protein consumption, hypertrophy training, the menstrual cycle's impact on food and exercise, sleep regularity versus duration, and more! If you don't want to miss an episode, subscribe to The Move Daily Health Podcast on Stitcher, iTunes, or Y…
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88. Service Dogs and Disability Rights with Tiffany Lee, JD
1:09:57
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In this episode, Professor Tiffany Lee is interviewed about service dogs and disability rights and accommodations. They discuss the Americans with Disabilities Act, the definition of disability, and disability benefits. They also explore reasonable accommodations in the workplace and education settings, as well as the challenges and advocacy involv…
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87. Disordered Eating in Dance with Josh Spell, LICSW, and Guest Co-Host Jennifer Milner
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49:05
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In this episode, psychologist Josh Spell discusses disordered eating in dance. Josh shares insights into the coping mechanisms behind eating disorders and offers advice for directors, teachers, and friends who suspect someone may be struggling with an eating disorder. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. YOUR guest co…
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86. The Unfair EDS Journey with Amanda Cassil, PhD
1:08:09
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In this episode, psychologist Dr. Amanda Cassil discusses the unfair EDS journey (Ehlers-Danlos Syndromes) and provides strategies for effectively communicating with healthcare providers. Dr. Cassil provides valuable insights and tools for navigating the healthcare system and improving the quality of life for individuals with chronic illnesses. In …
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85. Making a MCAS Documentary with Drs. Weinstock, Dempsey, Bluestein, Afrin, Kinsella & Jill Brook, MA
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In this Bendy Bodies with the Hypermobility MD podcast episode, making a MCAS documentary is discussed. Distinguished participants in this collaborative effort include Dr. Leonard Weinstock, Dr. Larry Afrin, Dr. Tania Dempsey, Dr. Laurence Kinsella, and Dr. Linda Bluestein, alongside dedicated patient advocate Jill Brook. YOUR host, as always, is D…
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84. Slipping Rib Surgery in EDS with Adam Hansen, MD
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In this episode, join thoracic surgeon and chest wall reconstruction expert Adam Hansen, MD, to learn about slipping rib surgery in EDS. Well known for his innovative surgeries for slipping rib syndrome (SRS), Dr Hansen has treated close to 1000 SRS patients. Many of his patients are challenged with Ehlers-Danlos Syndrome and other skeletal hypermo…
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Mode Daily Health Podcast S3E2: How Do You Define Aging, Longevity & Health Span?
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56:06
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This episode takes a look at the conflicting message around aging as a natural process versus aging as a disease. We dive into the beliefs that drive behaviour based on the interpretation of aging and the anti-aging industry. Tune in to learn what you can do to self-assess quality of life longevity factors, and how to avoid the fear-driven messagin…
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83. Expert Insights: Breath Work in Pain Management with Jill Miller
1:18:33
1:18:33
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In this episode, YOUR guest is Jill Miller, author of the book 'Body by Breath: The Science and Practice of Physical and Emotional Resilience.' Jill has 30 years of corrective movement expertise that forges links between the worlds of yoga, massage, athletics, and pain management. Her signature self-care fitness programs, Yoga Tune Up® and The Roll…
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82. The Impact of Clinician-Associated Trauma on EDS and HSD with Colin Halverson, PhD
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In this episode, YOUR guest is Colin Halverson, PhD. He received his Ph.D. in linguistic and medical anthropology from the University of Chicago, where he studied communication issues in medical genetics, based on fieldwork at Mayo Clinic. At Chicago, he also completed a fellowship in clinical ethics, and then a postdoctoral fellowship in medical e…
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81. Foot Pain 101: Everything You Need to Know with EDS and HSD with Lisa Ralston, PT
1:14:53
1:14:53
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In this episode, YOUR guest is Lisa Ralston, a physical therapist with over 30 years of experience in orthopedics, joint hypermobility, foot pain, and sports medicine. Since 2009, she has traveled internationally treating Team USA Olympians and World level figure skaters. Lisa was the physical therapist for Team USA figure skating for the 2022 Wint…
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Move Daily Health Podcast S3E1: Check Your Health Pillars
1:16:12
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We are kicking off our third season with a check-up on the Move Daily health pillars: Movement, Nutrition, Self, Community, and Stillness. If you don't want to miss an episode, subscribe to The Move Daily Health Podcast on Stitcher, iTunes, or YouTubehttps://youtu.be/gpeznlSjp0oShow NotesIntro to Season 31:30 Movement is an expectation of your orga…
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80. A Multidimensional Approach to EDS and HSD Care with Dacre Knight, MD
1:20:21
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In this episode, YOUR guest is Dacre Knight, MD. Dr. Knight established a specialty clinic for treating patients with hypermobility syndromes including hypermobile Ehlers-Danlos Syndrome (hEDS) and hypermobility syndrome disorder (HSD) at Mayo Clinic Jacksonville, Florida in 2019. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. …
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79. Gastrointestinal Problems in Hypermobile EDS: Learning to Treat and Spot them with Leonard Weinstock, MD
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In this episode, YOUR guest is gastroenterologist Leonard Weinstock, MD, author of over 150 peer-reviewed journal articles. His extensive research on MCAS (Mast Cell Activation Syndrome) and diseases of the esophagus, stomach, small intestine, and colon has been presented at national and international conferences. He is actively researching the con…
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78. Uncovering Inequality in Healthcare with Brianna Cardenas, DMSC, PA-C
1:06:27
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In this episode, YOUR guest is Brianna Cardenas, DMSC, PA-C, ATC and the founder of Healed and Empowered. Brianna courageously shares her own personal journey with Ehlers-Danlos Syndrome (EDS), cervical instability, spinal CSF leak, and dysautonomia, shedding light on the mistreatments she endured - both as a patient and a healthcare professional. …
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77. Neurosurgical Insights from Paolo Bolognese, MD and Guest Cohost Pradeep Chopra, MD
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In this episode, YOUR guest is neurosurgeon, Paolo Bolognese, MD, founder of the Chiari Neurosurgical Center in New York. Dr. Bolognese is also on the Board of Directors of the American Syringomyelia & Chiari Alliance Project, Inc. (ASAP), on the Scientific Education and Advisory Board of the Chiari Syringomyelia Foundation (CSF), and is a member o…
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76. Orofacial Pain with Robinson-Smith, DDS
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In this episode, YOUR guest is Julie Robinson-Smith, DDS, diplomate of the American Board of Oral Medicine, a diplomate of the American Board of Orofacial Pain and an instructor of Orofacial Pain at the University of Colorado Anschutz School of Dental Medicine. Following dental school, she served in the US Air Force for five years as a general dent…
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75. Cervical Instability: Thinking Beyond the Neck with Patty Stott, DPT
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In this episode, YOUR guest is Patricia Stott, DPT, physical therapist with expertise in Ehlers-Danlos Syndromes and related conditions. Dr Stott and Dr Bluestein presented together on integrative approaches to pain management at the EDS Society Global Learning Conference in August 2023 in Dublin, Ireland. Dr Stott is the founder of Elevation Welln…
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74. Podcast Secrets and Sneak Peeks with Guest Host Kate Colbert
1:18:38
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In this episode, where we close out Season 3 of the podcast and kick off Season 4, YOUR guest (and host!) is Bendy Bodies founder, Dr. Linda Bluestein, the Hypermobility MD. YOUR guest co-host – serving up questions to Dr. Bluestein – is Kate Colbert, outspoken EDS advocate, world-renowned marketer, and award-winning healthcare and higher-education…
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73. Understanding Lower Extremity Pain with Pradeep Chopra, MD
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The lower extremities must bear the weight of our whole bodies. Problems in the hip may cause a chain reaction of aches, imbalances, or chronic issues that could manifest in the knee, ankle, or somewhere else along the kinetic chain. Continuing our series on pain with Dr. Pradeep Chopra, we explore the hips, knees, ankles and feet, diving into mult…
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72. Examining Upper Extremity Pain with Pradeep Chopra, MD
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Joints of the upper extremity (eg: shoulders, elbows, fingers, etc) can be prone to subluxation and dislocation in those with joint hypermobility and/or joint instability. As we continue our discussions on common causes of pain throughout the body with Pradeep Chopra, MD, we focus on an often-overloaded area of the body: the upper extremities. Dr. …
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71. Examining Head, Spine, and Chest Pain with Pradeep Chopra, MD
1:31:45
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Connective tissue runs throughout your body, surrounding and connecting every system. This is what makes treating issues that arise from connective tissue disorders so difficult: when everything is connected, it’s hard to find the root cause of something. We’re in the midst of our summer series with Dr. Pradeep Chopra, renowned expert on connective…
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70. Examining Abdominal Pain with Pradeep Chopra, MD
1:21:03
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Abdominal pain is an extremely common finding in people with connective tissue disorders, like Ehlers-Danlos Syndromes (EDS). Similar to other issues patients face with EDS or Hypermobility Spectrum Disorders (HSD), getting answers can be challenging. Often, people go from specialist to specialist, trying to get help. Gastroenterologists, allergist…
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Part 2 - The Chronic Illness Warriors' Bill of Rights
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Having a chronic illness can bring about so many challenges, not only physical but also social, emotional, and psychological. We deserve to have certain rights to thrive despite these challenges! This is where the "Chronic Illness Warriors' Bill of Rights" comes in. Last week, Bonni talked about the first five of the eleven principles that she beli…
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The Chronic Illness Warriors' Bill of Rights
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Over a lifetime of living with chronic illness, Bonni has learned that people with chronic illnesses have many physical, social, emotional, and psychological challenges. They deserve to have certain rights so they can better manage and navigate all their challenges. This "Chronic Illness Warriors' Bill of Rights", lays out eleven principles that Bo…
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