Best Mecfs Podcasts (2024)

1
Guests Gary and Karen, discuss their personal journey and setting up a local Long Covid support group 39:09

1h ago39:09

39:09

Send us a Text Message. In this episode of the podcast I am grateful to speak with Gary and Karen, they talk with me openly about their acute and Long Covid journey as a married couple. We discuss how long covid impacts life and "the person we once was", Karen reads an impacting piece she wrote through a creative writing group titled "The goldfish …

1
Retrain Your Brain - Different approaches to CFS/ME recovery 24:26

2d ago24:26

24:26

Explore with me the multi-dimensional nature of complex chronic exhaustive conditions and how you can heal. See also Raelan Agle's fabulous channel @RaelanAgle and The @crappychildhoodfairy 00:00 intro and importance of the mind in Recovery - which can and does happen! 02:12 CFS/ME is not a diagnosis but a description - there are no biomarkers for …

1
How the Brain Creates Pain and how that differs from tissue damage pain 17:32

2d ago17:32

17:32

Talking about pain from a mindbody perspective and how to heal. 00:00 Intro and why I'm talking about pain today 01:30 how to treat acute pain relating to tissue damage and shock (held in the body) 05:20 acute vs. chronic pain - pain that doesn't resolve itself after 3 months - neuropathic or 'brain pain' is especially difficult to resolve as the s…

1
The Divided Mind - Dr Sarno's revolutionary take on the unconscious origins of mindbody disorders 20:20

2d ago20:20

20:20

Here I review the understanding put forward in the book The Divided Mind by Dr John Sarno as long ago as 2006. Doctor Sarno was one of the first medical doctors to embrace the idea of psychosomatic medicine which he dubbed mind body disorder to avoid the negative connotation that psychosomatic was all in your head. We now find many common condition…

1
138 - Jules Rogers - Long Covid Recovery 50:01

3d ago50:01

50:01

Episode 138 of the Long Covid Podcast is a chat with Jules Rogers, who shares how she recovered from Long Covid. We chat through the things that helped - some of which made a little difference, some a lot. As with all recovery stories - this is one person's experience. We wouldn't recommend trying to replicate it, as no two people are the same. But…

1
E20: Snippet - How resilient can recoveries be after ME/CFS, Fibromyalgia, POTS, MCS, PVFS (or long-covid)? 21:12

4d ago21:12

21:12

It’s finally time to share some of my health struggles during the last 6 years. It seems like a good opportunity to speak about how resilient ME/CFS, Fibromyalgia, POTS, MCS PVFS (or long-covid) recoveries can be – after all, when we recover we often can’t help but ask ….”will it last?” SHOWNOTES: https://cfsunravelled.com/episode20…

1
Homelessness Is Not a Crime! 10:52

5d ago10:52

10:52

Not having a home is not a crime! Yet after the Supreme court ruled that it was constitutional to make it illegal to sleep in public spaces, countless towns and cities are sure to follow suit in the United States and make it illegal to sleep in public spaces. (Illegal to sleep!). Sleep is a basic necessity and if you don’t have a home, you have no …

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137 - Lorrie Rivers - What is EFT Tapping and how can it help me? 50:54

10d ago50:54

50:54

Episode 137 of the Long Covid Podcast welcomes back Lorrie Rivers to chat about EFT tapping, a technique that she's personally had good results with and now uses with her clients. EFT stands for Emotional Freedom Technique and can be a great way of gently helping us out emotionally, which can be difficult with health challenges such as Long Covid. …

1
The pandemic, the government and the general election 39:04

14d ago39:04

39:04

Send us a Text Message. In this episode of the podcast, I have returning guest Rachel Hext. Rachel and I talk ahead of the UK general election, we discuss the floors, failings and ongoing issues around the pandemic, clean air and PPE. Rachel talks about her advocacy work including being part of media interviews and Panorama, and specifically Keywor…

1
136 - Dr Meg Anderson - Movement in Long Covid - Part 2 - "how to" 53:03

17d ago53:03

53:03

Episode 136 of the Long Covid Podcast is a continuation of my chat with the fabulous Dr Meg Anderson about movement in Long Covid. In this episode, we talk more about what that movement might actually look like and how to tailor that. The previous episode, where we talk about "getting ready" for movement is definitely worth a listen HERE Links: Meg…

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135 - Dr Meg Anderson - Movement in Long Covid Part 1 - Getting ready 53:33

24d ago53:33

53:33

Episode 135 of the Long Covid Podcast is a chat with the fabulous Dr Meg Anderson about movement in Long Covid. This is part one of our chat where we talk about getting ready for movement, how to know you might be ready and kind of setting the scene. Watch out for part 2 next week, where we talk more about what that movement might actually look lik…

1
Four years later! 29:11

29d ago29:11

29:11

Send us a Text Message. In this episode of the podcast, I talk about reaching the 4 year mark of living with Long Covid. I don't like to acknowledge this as an anniversary but I wanted to acknowledge the time that has passed, and what I have learnt along the way. It is strange how 4 years is such a long time, and in one way it has felt like the lon…

1
134 - Vicky van der Togt & Jeremy Rossman - Research-Aid Networks 56:53

1M ago56:53

56:53

Episode 134 of the Long Covid Podcast is a chat with Vicky van der Togh & Dr Jeremy Rossman from Research-Aid Networks. We discuss what the organisation does, what brought Vicky & Jeremy together as well as their recently published hypothesis paper. Research-Aid Networks www.researchaidnetworks.org Pandemic-Aid Networks www.researchaidnetworks.org/…

1
Dealing with Trauma - The SHOCK loss of Michael Mosley Triggers an Outpouring of Grief and Disbelief 26:08

1M ago26:08

26:08

My reaction to the death of TV presenter and doctor Michael Mosley was one of deep sorrow and shock despite not knowing him personally. I was stunned by the unnecessary loss but also realising I was reacting to an event that happened to me 40 years ago!! Find out how here. 00:00 Nature of Trauma - shock trauma of loss e.g. the tragic death of Micha…

1
What REALLY causes CFS/ME - and how to heal it psycho-spiritually - A therapist's view 25:13

1M ago25:13

25:13

My commentary on the insight and understanding of healing ME/CFS as a spiritual disconnect that nevertheless has physical consequences. I draw on an interview between Jenny Lynn and Raelan Agle as well as my own experience as a therapist for over 15 years. See that here https://www.youtube.com/watch?v=KyFQKb0qS70 00:00 Intro 00:56 CFS/ME is a disco…

1
Recovery from Chronic Disease is NOT about 'Fixing the Problem'- A New Paradigm of Healing 12:58

1M ago12:58

12:58

Recovery from chronic disease or conditions is not about fixing the problem. How the experience of Craig McKinley's sepsis and the work of Dr Rangan Chatterjee, Nicola Singleton and John Campbell has informed my work. Here's the interview with Nicola and Dr Chatterjee where she talks of what she discovered from working with him and how she got well…

1
133 - Anna Davidson - Long Covid Recovery 51:07

1M ago51:07

51:07

Episode 133 of the Long Covid Podcast is a chat with A K Davidson, author & poet, who has now recovered from Long Covid. We chat through her experience, how writing because so important as well as helping with recovery, although not always in the way she expected! As always - recovery stories are one person's experience! They can be useful for idea…

1
Guest; A. K. Davidson - Poetry for life and other chronic conditions 37:58

1M ago37:58

37:58

Send us a Text Message. On this episode of the podcast I chat to freelance writer and editor A. K. Davidson. We talk about her book; Poetry for life and other chronic conditions, which is due out on the 6th June, the link to pre order the book can be found below. Anna talks about her journey and experiences with acute and Long Covid, and how she no…

1
132 - Rosalba Courtney & Hadas Golan - Dysfunctional Breathing in Long Covid 52:48

2M ago52:48

52:48

Episode 132 of the Long Covid Podcast is a chat with the wonderful Hadas Golan & Rosalba Courtney. Hadas and Rosalba have been collaborating on working with people with Long Covid and have recently published a series of case studies detailing their successes. We take a deep dive into my favourite subject - breathing - discussing some of the underly…

1
Reviewing Gabor Mate's Extraordinary New Book: The Myth Of Normal 25:09

2M ago25:09

25:09

Why is this groundbreaking book so important? Here's my view... 00:00 Intro and Dr Mate's background 02:00 A leading light in emotional trauma awareness- and his personal experience of childhood trauma 03:44 Synopsis of chapters and the general direction of the book - disconnect from the self, attachment wounding, trauma is not always what we got b…

1
Guests; Jess and Ally talk about the Turnto app for Cerebral Palsy and the upcoming app for - Long Covid and MECFS 37:54

2M ago37:54

37:54

Send us a Text Message. In this episode of the podcast I talk with Jess, the founder of the Turnto app, and Ally from Turnto Long Covid. Jess shares her inspiration for the Turnto app and her personal journey with her son who has a rare form of cerebral palsy, and the challenges navigating health care services and trying to find treatment and suppo…

1
131 - Dr Wes Ely - What is Immuno-modulation & how could it help with Long Covid? 40:46

2M ago40:46

40:46

Episode 131 of the Long Covid Podcast is a chat with the wonderful Dr Wes Ely, internist & pulmonologist, clinical triallist & also author & Long Covid advocate. We chat through some of his experiences with Long Covid patients as well as the clinical trial of baricitinib for Long Covid which is enrolling very soon. ICUdelirium.org Stat News - "Don'…

1
Iain McGilchrist What's the Matter with Medicine Commentary - Part 2 25:49

2M ago25:49

25:49

My commentary on the lecture given by Iain McGilchrist yesterday to McGill University. for the original lecture go here https://www.youtube.com/watch?v=REB7GOxX5Mk 00:00 Intro to what's the matter with medicine in a left-brain world of disconnect - toxic world vs. 01:55 The importance of attention as a form of love 03:00 The doctor patient relation…

1
I Still Feel Free 3:04

2M ago3:04

3:04

I haven’t felt the wind on my back in 11 years. But I still feel free…We are not our circumstances. This physical world does not define us nor can it confine us. We are infinite beings…This year on ME/CFS awareness day, let’s acknowledge what ME/CFS has taken from us, But let’s also look around at the life we still have… ✏️ My ME/CFS Blog ❓What is …

1
ME/CFS Anthem 0:47

2M ago0:47

0:47

An anthem for ME/CFS and Long Covid patients leading up to ME/CFS Awareness Day. YOU ARE NOT ALONE. This song is a beautiful testament to our connectedness no matter our physical isolation. -> Listen to the song here

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130 - Dr Marco Leitzke - Using Nicotine Patches for Long Covid 38:54

2M ago38:54

38:54

Episode 130 of the Long Covid Podcast is a chat with Dr Marco Leitzke who has been exploring the use of Nicotine Patches to help with Long Covid. We discuss what Nicotine is, why it can help and how this could be something incredibly useful. Links to Dr Marco's work & social media etc: https://linktr.ee/marcoleitzke A blog written on "Health Rising…

1
The Unique Ways Men Handle Stress: An Insight Into Men And Therapy 14:57

2M ago14:57

14:57

Men and women - the difference in how stress operates and how it manifests. And why men are less likely to admit they need help See this article for more details on gender differences in neurobiology https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3425245 00:00 The stress response in men and women are different - physiological differences in brain org…

1
Transforming Trauma | Microdosing Psilocybin | Healing Trauma With Psychedelics/EMDR/Altered States 19:51

2M ago19:51

19:51

Find out how to transform past experiences so that you can move forward in life without sabotaging yourself. An update on my microdosing months 3 after 1 month off Also how I've noticed EMDR works similarly to psychedelics. For the start of my microdosing journey go here https://youtu.be/841soWqB8Xs Find the talk with Jude Currivan and Pam Gregory …

1
What's Wrong with Medicine - Iain Mc Gilchrist & Importance of Right Brain in Wholistic Healing 26:08

2M ago26:08

26:08

My commentary on the lecture given by Iain McGilchrist yesterday to McGill University. for the original lecture go here https://www.youtube.com/watch?v=REB7GOxX5Mk 00:00 Iain is a unique voice in that he marries the humanities (philosophy) and science (medicine) which gives him a broad view of the world. 02:10 Writing my current book Mind Medicine …

1
The Perils of AI - Artificial Intimacy and Social Media | The Wisdom of Esther Perel and Brene Brown 24:44

2M ago24:44

24:44

In this commentary on the words of Esther Perel and researcher Brene Brown I delve into how AI is creating a mental health crisis. Not Artificial intelligence but Artificial Intimacy!! Intimacy and Connection are crucial to healthy human expression but our relationships are being co-opted and distorted by social media. Find out how to build connect…

1
Being Vulnerable is HEALTHY | Unlock Your Creativity & Boost Self-worth By Embracing Vulnerability 16:26

2M ago16:26

16:26

I've become aware that vulnerability is key to true creativity - you cannot create something new without risk. Find out how I've discovered this in my own life and work - with the help of some others who've explored this - Brene Brown, Gabor Mate and King Charles!! 00:00 Intro to Vulnerability is the key to Creativity - work of Brene Brown 01:00 My…

1
Lessons From Amy Winehouse & Gabor Mate: Regulating Your Nervous System 19:12

2M ago19:12

19:12

Lessons from the life and untimely death of Amy Winehouse after watching the movie Back to Black and also reading The Myth of Normal by Gabor Mate. How nervous system dysregulation plays out in the life and how it inevitably takes its toll as we seek to calm our nervous system in any way we can. Luckily with support and proper tools it IS possible …

1
129 - Lily Spechler - The Long Covid Dietitian 55:49

2M ago55:49

55:49

Episode 129 of the Long Covid Podcast is a chat with Lily Spechler, a registered dietitian who is working with people with Long Covid following her own experience with it. We chat through some of the trends she is seeing and some pointers for people to follow. Lily's Instagram: https://www.instagram.com/longcoviddietitian/ The Energy Expansion Proj…

1
Alexander Taylor - Creating a safe space 43:03

3M ago43:03

43:03

Send us a Text Message. In today's episode of the podcast I talk with my son Alexander. Alexander and I were talking some time ago, and he explained to me this concept of "safe space" which he had been thinking about. He explained he was developing and applying this to everyday life, but specifically to the salon he works in. He currently works at …

1
128 - Nigel McCracken & Sean Knight - Research into T-Cell Exhaustion 51:27

3M ago51:27

51:27

Episode 128 of the Long Covid Podcast is a chat with Nigel McCracken, COO of Virax Biolabs & Sean Knight, Clinical research fellow at the University of Manchester. Nigel and Sean are working together in collaboration on a study to dive deeper into T-Cell exhaustion in people with Long Covid. We take a deep dive into T-Cells, immunology and the ques…

1
When Does Self Care Become Harmful? 7:25

3M ago7:25

7:25

I’m desperate to feel better. I would do anything to feel better and I spend an enormous amount of energy following routines and taking medications and supplements to try to get better. This desperation to get better is something we all face. We’re willing to try anything that we know doesn’t harm us like GET to get better. But at what point does t…

1
127 - Rachael's Long Covid Recovery Story 46:49

3M ago46:49

46:49

Episode 127 of the Long Covid Podcast is a chat with Rachael Heath-Porsz about her recovery from Long Covid! We chat through her experience - the things that helped, the things that didn't and what life looks like now. We also chat a bit about what Rachael is doing now - helping people with Long Covid to return to movement in a safe & supported way…

1
As requested....My experience on using a fitted Vagus nerve stimulator! 27:40

3M ago27:40

27:40

Send us a Text Message. As requested by those of you who follow me on social media, in this episode of the podcast I am sharing my experience so far, of using a fitted vagus nerve stimulator (VNS). I have aimed to answer all of the questions you guys asked me. I have given some information on the VNS, how it is fitted, what it does and how I am fin…

1
We Are Not Defined by their Prejudice 7:06

3M ago7:06

7:06

Laziness is not the opposite of being sick. How have we come to this place where if we show any lack of productivity we are terrified of being labelled "lazy" and therefore not legitimately sick? …how do we start to re-frame the prejudice against us? ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Resources 🙏 Donate to ME/CFS Research…

1
ME/CFS / Long Covid is an Ever Changing Journey 2:53

3M ago2:53

2:53

ME/CFS / Long Covid is an ever changing journey and we never know where it will take us. We can do the best we can and no more; After that, we must try to find as much life along the way as possible, knowing that it is fleeting like all else; It slips through our fingers the moment we try to hold onto it. But as it slips through our fingers we don’…

1
126 - Joshua Roman talks about Long Covid, Music, Vulnerability & Connection 46:09

3M ago46:09

46:09

Episode 126 of the Long Covid Podcast is a chat with Joshua Roman - Cellist, Composer & Curator, as well as Longhauler. We chat through some of the things that he experienced, learned and some of the incredibly inspiring work he is now doing to help others with Long Covid as well as heal himself. Links: Joshua Roman Website "Immunity" Project Your …

1
125 - Peter Burt - Man Stuck on Desert Island! 53:23

4M ago53:23

53:23

Episode 125 of the Long Covid Podcast is a chat with Peter Burt. Peter has found himself "washed up on a desert island" after floating around in the sea of Long Covid for a couple of years. We talk through a lot of fascinasting stuff, the idea of "not feeling like a man" and how difficult but extremely important it is to ask for help - and then rec…

1
How to Change your Mind | Book Review of Michael Pollan's The New Science of Psychedelics 20:13

4M ago20:13

20:13

In this audio I describe this ground-breaking information on how to heal with psychedelics from the book How to Change your Mind: The New Science of Psychedelics by Michael Pollan. The article I mention By Robin Carhart-Harris on The Entropic Brain on psychedelics is here https://www.frontiersin.org/articles/10.3389/fnhum.2014.00020/full 00:00 Intr…

1
Working with Emotion | The Influence of Virginia Satir in Healing Relationships and Life 25:52

4M ago25:52

25:52

Psychotherapist Virginia Satir (1916 - 1988) remains one of the most influential family therapists there have ever been but she is virtually unknown now outside of psychology. She taught the importance of feelings over thoughts and blew the current understanding and practice out the water with her emphasis on safe emotional connection and the reaso…

1
124 - Dr Elizabeth So - East Asian Medicine & Acupuncture 57:52

4M ago57:52

57:52

Episode 124 of the Long Covid Podcast is a chat with Dr Elizabeth So about East Asian Medicine. We take a deep dive into what EAM is and some of the background to it, as well as how it can help with conditions such as Long Covid - and why! This was such a fascinating discussion - we could have carried on for hours - and one of the biggest takeaways…

1
NHS court hearing update with Kevin Digby and Rachel Hext 40:05

4M ago40:05

40:05

Send us a Text Message. In this episode of the podcast I talk with Kevin Digby and Rachel Hext following the High court hearing on the 6th March 2024. Kevin is a partner at GA Solicitors and is representing nearly 70 healthcare workers with Long Covid taking the NHS and other employers to court. Many healthcare workers are living with the disabling…

1
123 - Jackie's Reflections on 4 years since "The Beginning" & Long Covid Awareness Day 17:35

4M ago17:35

17:35

Episode 123 of the Long Covid Podcast falls on Long Covid Awareness Day, and also 4 years since I first became unwell. This is my reflections on the last 4 years - Long Covid & beyond. I also did a video for youtube which might be of interest here Episode 94 - my recovery story Message the podcast! - questions will be answered on my youtube channel…

1
122 - Professor Louise Cummings - Research into Cognitive & Linguistic Difficulties in Long Covid 52:35

4M ago52:35

52:35

Episode 122 of the Long Covid Podcast welcomes back the wonderful Professor Louise Cummings to talk about her follow-up study into the cognitive & linguistic difficulties in adults with Long Covid and also looking at employment outcomes for those people. This is a hugely enlightening discussion, covering a lot of information - I hope you enjoy it a…

1
Anxiety is not a sickness it's a back brain threat reaction - How to soothe and heal 22:15

4M ago22:15

22:15

Anxiety is not a disease in the sense that doctors describe. It is a message from the body that something in your environment feels unsafe. For original article I'm commenting on go here. https://www.carolynspring.com/blog/six-steps-to-managing-anxiety/ 00:00 Intro - everyday trauma impacts the mind to create a sense of unsafety which can be easily…

1
Enhancing Energy Metabolism | Is Methylene Blue the Magic Bullet for Chronic Neurological Diseases? 35:37

4M ago35:37

35:37

A new 'Magic Bullet' that few people know about (including your doctor!) ... The importance of Methylene Blue and how it might transform human health particularly in areas of low oxygen delivery (fatigue states, depression and neurological damage). Check out the original recording with Dr Gonalez-Lima on https://deeprootsathome.com/methylene-blue-m…

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